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OTT Spoonies/Munchausen By Internet 26 days ago No. 345089
Over-The-Top Spoonies/Munchausen By Internet Attention Whores General #7
Previous Thread: >>355530
Discuss people who feign or exaggerate chronic illnesses and medical crises for attention and asspats online. Previous topic focused primarily on Instagram accounts, but posts from blogs and other social media sites are admissible.
Most recent active IG cows:
Eli, aka folie_a_you
kelly.ronahan; me_and_the_mr (has her own thread >>359452
The Munchie Queen of all time is Robyn Brown, who has her own threads (original: >>197138
). Sadly she is now incognito.
What Is A "Spoonie"?
People who identify as 'Spoonies' are referencing 'The Spoon Theory,' written by a woman with lupus to explain the chronic illness experience to a healthy friend who asked her what it really feels like to live with her medical problems.https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
The 'Spoonie' Community is, in general, a legitimate supportive network for people dealing with chronic illness. In recent years, however, it has become polluted with SJW types and has attracted a new breed of attention-seeking catfish: people who lie about, fake having, and/or exaggerate existing medical problems and crises for no benefit other than to garner attention.
What Is Munchausen By Internet (MBI)?
From Dr. Marc Feldman, an expert in factitious disorders including Munchausen Syndrome, first described Munchausen By Internet in 2000:
"…the advent of online support groups, combined with access to vast stores of medical information, enabled individuals seeking to gain sympathy by relating a series of harrowing medical or psychological problems that defy comprehension to misuse the groups. Communication forums specializing in medical or psychological recovery were established to give lay users support in navigating often confusing and frustrating medical processes and bureaucracy. Communities often formed on those forums, with the goal of sharing information to help other members. Medical websites also became common, giving lay users access to literature in a way that was accessible to those without specific medical training. As Internet communication grew in popularity, users began to forgo the doctors and hospitals often consulted for medical advice. Frequenting virtual communities that have experience with a medical problem, Feldman notes, is easier than going through the physical pain or illness that would be necessary before visiting a doctor to get the attention sought. By pretending to be gravely ill, Internet users can gain sympathy from a group whose sole reason for existence is support. Health care professionals, with their limited time, greater medical knowledge, and tendency to be more skeptical in their diagnoses, may be less likely to provide that support."
LINKS to articles and info on MBI:https://www.munchausen.com
(Dr. Feldman's website)https://www.thestranger.com/seattle/the-lying-disease/Content?oid=15337239https://www.abc.net.au/news/health/munchausen-by-internet-what-drives-people-to-fake-an-illness/7631990https://www.theguardian.com/society/2015/apr/29/jules-gibson-munchausen-by-internet-sickness-bloggers-fake-it-whole-pantryhttps://en.wikipedia.org/wiki/Munchausen_by_Internet#Characteristics
why the fuck she need to carry a huge lunchpack for a disease that's all in her head?
(thank you based anon for creating a new thread)
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>last night i had a very disrupted night as the ward was really noisy as quite a lot of people ended up unwell
How inconsiderate. Sick people cluttering up hospitals, being unwell and disturbing poor nicole who needs her beauty sleep.
given the current state of nhs psychiatric inpatient care, i sadly doubt it. very few people get a bed, even those as batshit crazy as her.
it's more likely that she's clogging up an acute medical bed. /medfag
Yep, she's def in an acute bed and they probably won't discharge her over the weekend,
Ladies and gentlemen, this is what my hard earned tax money pays for. I genuinely don't mind it laying for people to get good mental health support but not this.
this is absolutely fucking INFURIATING
how can she justify wasting resources like this. I'm not someone who hates her or has been without sympathy in the past. When she seemed to be accepting her somatic illness I respected that and really hoped it would see a change for her. But this pathetic shit just reveals again how selfish she is. It's always about Nicole and what Nicole wants.
That's because there is literally nothing the NHS will do for Lyme except give you a long course of antibiotics which in most cases is enough. I'm in the UK and have a few of these popular illnesses, and my mind boggles when I see EDS/POTS munchies having a wobbly day and deciding to trot off to the hospital for some saline. Basically, if they have insurance, they can milk whatever they want out of it.
Here, we at least don't get so coddled (if we're already lucky enough to have healthcare coverage).
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Oh yes, she gets to trade her big bulky tube out for the coveted GJ button. Also, what the fuck is that face?
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the dogs face is killing me>you little lying shit I know what you do behind closed doors
This is the reason I am glad the service dogs are so strictly controlled here. They have welfare checks to make sure the dog is happy and healthy and being used appropriately. You can't just get your own pet accredited.
Which reminds me of something I screengrabbed earlier…
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What makes you doubly special and doubly sick? DOUBLE THE SERVICE DOGS! Not only that, but she's recommending all sick people get one because it's nice to have a companion. What she is describing is a PET, not a service dog jesus fucking christ…
Also they're both very small dogs (sorry for lack of photo, it's on her IG tho). I don't think a small dog is a great choice for a service dog unless it's a hearing dog (which this isn't). She just wants to take her pets everywhere cos she's so special.
It must be nice to have enough money to tell doctors what you want and have them do it. Somehow she skipped every between stage of GP treatment, even though she's still eating solid food. It does not make any sense at all. And no one should be that excited to empty out food and stomach juices, unless they have an eating disorder. And if she can eat Dairy Queen, there's no need for venting or even a tube. I'm going with a mix of special spoonie points and eating disorder.
Sage for rehashing
As someone who faints regularly, she sure knows nothing about how fainting works? Especially if she needs a fucking dog to "alert" to her fainting.
before you faint you physically feel the blood pressure drop, it's like a huge flush comes over your body, then you start feeling tired and weak and you need to sit the fuck down, or at least that's how it is for me, I don't know if anyone else gets it like that, but either way - your body has a way of telling you when you're about to fucking faint. You do not need a fucking dog to tell you that.
Seizures on the other hand - seeing as though she's "epileptic" I can believe her having a dog for that.
I can tell when I'm going to faint most of the time. Even if it's just two seconds of tunnel vision it's enough time to get closer to the floor.
Sage for samefag/non-milk
I am pleased my partner would just tell me to get over myself if I tried that shit, or got even halfway to that point. Sick people (of which I am one) need practical support, and people with resilience, patience, and morbid humour. We don't need coddling.
Saged for blog/rant.
Lots of anorexic patients stay in their pre-pubescent mentality and voice if they became ill before puberty.
Her voice annoys me less than I'd assumed. She's nicer on video than in pictures/comments.
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Just like endlessvoices.
Her GI cant/doesn't know what to do since everything has failed..her GI did 1 GES after begging and fighting for a GES (been chasing it for years) she did everything she could to make sure the ges would show something. And it did and it's extremely mild and not gastroparesis just delayed emptying but her gi jumped the gun and decided to give her a single botox procedure (years ago botox treatment was not used first. Less invasive and less expensive treatment comes first. Botox is a little invasive because you have an Upper GI to get it done)
It didn't help her special gp and her gi referred her to temple.
Wth? There are several treatment plans left since she skipped so many options to go to the big wigs.
This picture is the dr she will be seeing and his about me.
I'm anxious to see how all this will unfold because the testing is thorough.
No doubt something isn't right just not sure what.im curious to see if any of her older illnesses she faked and tried to get diagnosed with something/anything suddenly resurface or suddenly brand new ones with her appts.
Temple is likely going to want a psych eval on her..i just hope they don't override it since she is in therapy and medicated
honestly temple is no longer the place to go. the head doc there, besides having a terrible bedside manner, places gastric pacemakers which don't always work, shock the patient with electrical currants, and only serve to reduce nausea and such. i go to a different hospital and have been advised to never go to temple because his methods are archaic. then again, my gp is severe and i'm running out of options so i shouldn't turn down anything - she is a complete joke with her gp. i don't understand why anyone would want this disease, as it took me from a fully functioning almost 30 year old to being bedridden with non stop symptoms, which i'm finally starting to recover from since being put on a GJ tube - and that's only 5 weeks after it was placed.
sage for self-blogging>>362790
I lost it at Berocca. In case you're unfamiliar: it's an etfervescent vitamin pill.
Fucking hell. She's not even properly epileptic, she has PNESs!
She needs her Teddy bear and soap bubbles for a hospital stay? She's in her 20ies, or? And she often has a special blanket with her. What does she need next? A whole ward for herself? Or homecare?
Why did she delete all her recent posts on instagram?
I also need a sledgehammer for myself
how does this bitch possibly manage to get hospitalised often enough that she needs a "comfort box", when she doesn't even have a physical problem
i was genuinely glad when she seemed to be getting therapy, but nope, all she wants is attention, she's not interested in being healthy at all. UGH she makes me so mad.
I saw many misconceptions from the last thread as well as the linked post. many of you seem to have vague or little knowledge, even if you have POTS. I'm all for you calling peoples' shit out, but ffs do it right.
POTS is one of the most debilitating conditions (though I highly doubt that many of the people in question are actually debilitated by it). it causes many more things than just orthostatic tachycardia since it's a type of dysautonomia, and usually comes along with other forms of dysautonomia (mainly vasovagal syncope) as well. I'm not going to list the symptoms because I don't want to give munchies hints, but please stop being so ignorant if you're going to attempt to hold some credibility.
"my ____ doesn't affect me like this so it can't affect others like that" or "I
know when ____ is going to happen so others should too" is just as bad as spoonies trying to compete with each other and is flawed logic.sage for medfagging / blogging
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dairy allergy chloe?
hahaha @ one of the "most" debilitating conditions
No, it's not. I have really fucking bad pots (sorry for blogging, farmers, it's relevant I promise) and am having intensive treatment, genuinely need a chair (which I don't post about on ig), etc, but no way is it one of the most debilitating conditions. That's freakin laughable. Compare it to actually seriously debilitating illnesses and accept that it's shitty and no fun and certainly not the picnic people have been implying, but it's nowhere near as bad as the most serious shit out there.
Saged because of some blogging
> one of the most debilitating conditions
ALS. SMA. Actual mito. Severe myopathies. Transverse myelitis. Spinal cord injuries. Severe late stage MS, especially progressive forms. Brain tumors. HD. Advanced PD. Severe heritable ataxias. A-T. (v)CJD. And so on.
These are severe conditions.
You with your POTS don't experience a fraction of the disability these people do. Sure, measured against, say, having a cold, POTS is super disabling. But to pretend it's on par with actual disabling illnesses is ridiculous. It's a non lethal and relatively limited dysautonomia (if you wish, consider there are autonomic neuropathies that are much, much more severe than POTS, such as AAG and pure autonomic failure.
If your POTS is soooper disabling, you don't know how to treat it properly. With hydration (not always/necessarily IV!), Florinef, some pressors and other meds, hypotensive POTS can be managed just fine. Go look for a doctor that doesn't subscribe to the 'POTS IS SUPER CEREAL!' idea but sees POTS as a highly treatable but at most unpleasant disease.
Sage for medfagging.
What the shitfuck. 'Please applaud me, I had chocolate'? Dear fucking Hippocrates, these people make 'do no harm' really difficult. I would expect they would, among others, not have dairy products if they're sensitive to it!
How's your epipen campaign going, Chloe?
Agree it's not the most debilitating disease but I have hyper pots and can't do anything. I sweat and overheat like crazy which makes my tachycardia worse, and it makes me more fatigued because being hot wears me out. And I unfortunately have electrical issues w/my heart to boot plus a bum valve and a murmur. I make the best of my life and alway try to stay positive but for me it's incredibly
yeah, no. not all of us are hypotensive. I have hyperadrenergic POTS and take bp pills and beta blockers, had a failed ablation, etc. I have to eat a low sodium diet and I overheat in the winter and whatever, there's literally nothing that can be done for me other than ICM monitoring, it is actually really difficult to live with.
Being hypotensive is much easier to deal with.
sage for blogging/not contributing(blogging)
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That poor dog. I've never heard of diet alone increasing muscle. Geez
is that a whole egg in there, shell and all?
i feel so sorry for that poor dog.
"leaner body", you don't say, this dog is verging on underweight if she isn't already.
Also is that bowl mostly fruit? It all looks like fruit, and you don't base a dogs diet on fruit.
They're carnivores. Not obligate carnivores, but for fuck sake, any good dog owner knows that fruit is an occasional treat for a dog
Harlow isn't underweight yet (and this is coming from someone who hates Jacquie a lot and I totally hate people who raw feed to be trendy and the majority of people should not feed raw and Harlow could easily become underweight and have more health issues soon from her incomplete diet) and what most people consider underweight for dogs is actually ideal and what most people consider ideal is usually 10 to 20 pounds overweight.
Sage for dogfagging
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Should someone tell her a motility specalist ordering basic motility testing in order to evaluate and diagnose her condition based on her GI referral to the specialist doesn't mean she is actually sick?
I wonder if she realizes she's not going to be able to manipulate him. He works with motility and has seen many many people for it..he knows his sh!t
I find it disturbing that she keeps asking for help on what to ask the Dr..
I dunno..i think it's icing on the cake that she threw in the whole "look at me im so special I have to travel, I have basic tests they listed on their website, I didn't try to tell him what tests to run. He picked them all by himself like a big boy, I can't be faking if I have testing because obviously there is no way on earth any of these tests will show nothing..im so sick my GP is special can't you tell by all my tests?"
Also pointing out she said a week full of testing at least 2 or 3 tests a day.
She listed 5.
That's a basic GI motility workup. We order it for everyone whose chart indicates unexplained vomiting and presents a suspicion for GI motility issues. None of those tests are even particularly risky or special.
Breaking news: you're still faking.
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I don't know whether to laugh or cry about the fact that there are so many unethical, easy-to-manipulate doctors. The doctor who insterted a J-tube into Jacqui is totally wacko.
This is her THREE weeks after the surgery. The video only showed her eating a small amount but firstly, not the foods people with gastroparesis should be eating and secondly, no way would she would be well enough to eat at this stage. Her weight looks the same in every video and photo also. Crazy crazy.
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i hope this speaks for itself but if you're wondering what exactly has me banging my head against a wall i've turned it red for you
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again milk is in red
i had a j tube inserted 5 weeks ago and the only thing i can have are clear liquids. i tried campbell's chicken noodle soup and what i didn't throw up came out my tube. there's absolutely no way this bitch can be sick enough to need a j tube if she's eating anything like that, 3 weeks after placement
sage for blogging(saged blog is still a blog)
how tf does she have so much energy?!
90% of the conditions she claims to have caused fatigue yet she is radiating energy. and it's not an occasional thing, it's every fucking time she's on video.
She doesn't deserve to die.
But she does deserve to be exposed as a munchie slash exaggerating dramacow.
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I've been following this one for a while now and at first she seemed to be accepting her non-epileptic diagnosis but lately she's been pushing for an epilepsy diagnosis, ending up in hospital regularly. This post really made me feel like there's something weird going on because conveniently the seizures only came once the eeg was taken off.
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Recently she saw a gynae and got diagnosed with endo from a physical exam. The same day she added #endowarrior to her bio.
Oh yes. Anybody who has spent 45 minutes in status is so fucked up on the Ativan and the phenytoin, they're drooling for the next few hours. Also, a seizure takes a LOT out of one. The post-ictal phase, as it is called, is a tough one. Some experience a spell of psychosis, others are just knackered and need to sleep it off. Few people just go on with their life and instagram.
Sage for fond memories of ER rotation.
Mefenamic acid. She's talking about mefenamic acid. It's one of the weakest painkillers you can give. It is also a typical 'dumb medication': there isn't a single RCT that shows that's it's superior to, say, diclo or APAP in pain relief, but because it has some prostaglandin activity, it was marketed in the 1980s as specifically for menstrual pain. So doctors prescribe a riskier and much more expensive drug just because somehow it stuck in the brains that it's great for period pain.
Gah. Sage for medfagging.
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And of course she writes articles for the Mighty…
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I think it was this point that I begin to think she may be slightly munchie. Although there was an earlier post which I'll share in a minute.
anyone who demands and gets a j tube and then eats a fucking sub sandwich deserves all the shit karma that catches up to them. i fucking wish i could eat a sandwich and enjoy meals with my family.
sage for ranting.
Yeah fair enough. But these munchies are adults. It's like with beads of courage - fine for kids, bit weird for adults…
And you can write ID on a little piece of paper…
>>363375>Also, a seizure takes a LOT out of one.
oh yeah. My best friend had epilepsy and he'd be fucking exhausted after a seizure. He also worked and went to college part time and still died from SUDEP, so when OTT spoonies get all "i just had a seizure 2 minutes ago" in their IG posts I get a bit bothered tbh.>>363414
fuuuuuuucksaaaaaaake does this bitch even understand how grave the shit she's depicting is? probs not would rather just lalala blog for pity points on insta.>>363425
Same but I think the difference between us and this lot is that we've got lives outside of being ill and they haven't? Like I just keep my meds and stuff in a pouch in my work bag. nbd. But if you've got no work and no school and you've constructed your life to revolve around being an illness, then yr gonna have a sooper speshul "medpac" and not just a regular person bag.
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She also likes to celebrate the anniversary of her first witnessed seizure (image 1 of 2)
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I also found this gem while scrolling back through her IG. I haven't searched for any other accounts yet but I'm hoping there's more milk out there.
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Since you mention it… She follows Nicole.
Am I seeing it correctly she has her goddamned PAYPAL in her Instagram link?!
How fucking tacky can one get?
There are so many studies out there that prove vaccines are safe. Even the chemicals that people (Chloe) say are harmful are in such minute quantities that they have absolutely no effect on us. Also, they're often different compounds than the ones people think of as dangerous (like thimerosal, which is a preservative found in just a couple vaccines; without it, the vaccine could contain harmful or even fatal bacteria). Unfortunately, there are plenty of idiots out there that jumped on the 'vaccines are dangerous' bandwagon without doing an research or even thinking for themselves. And now we have outbreaks of diseases that haven't been see in years.
sage for medfagging
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Fucking seriously? They're selling $25 tshirts.
Now THAT is tacky.
I can get behind the Chronically Fabulous ones, but how self-absorbed can one person get? She's just horrific.
No one is saying they're not, but:
1. You cannot die from a non-epileptic seizure. They are perfectly controllable through therapy to address the underlying psychological issues (trust me, I used to have them).
2. Eating disorders ARE serious, yes. What this board has an issue with is people pretending to be physically ill in order to enable their own eating disorders.
"Seizures" are not serious. Here's a little introductory neurophysiology for you. We differentiate between epileptic seizures and what used to be called pseudoseizures and are now called PNES. In epileptic seizures, it's actually not even the seizure that's dangerous, it's the cause of it. The worst that happens to most people seizing is breaking a bone or dislocating a joint. Rarely, people may choke but there are ways to prevent that. The real damage is caused by the strain a genuine seizure puts on the body and the nervous system. It's like electrocuting the brain, and it's got incredible effects.
PNES is a seizure without epilepsy. It is harmless. Importantly patients with PNES (I prefer NEAD - nonepileptic attack disorder, as many patients get cranky the moment they hear the p-word) are not unconscious
during their "seizure". There is no postictal phase. And most importantly at least from my perspective (I see these cases mainly in a correctional setting, I wonder why?): they do NOT respond to any antiepileptics unless they get so clobbered that they can't keep it up (which is why some think that giving them Ativan and phenytoin has 'helped': fuck no it hasn't, it just has made them too tired to continue).
There is a little known, painless and fully reliable test to differentiate PNES from a real seizure: crack an ammonia capsule over their nose. It will sting and they will be revulsed by the smell, but because they're not genuinely unconscious as they are not in a real seizure, they will awaken. I learned this from a correctional medicine blog and I LOVE it, it works really well.
if you have PNES, you do not have a serious illness, you have a form of conversion disorder, where some stress you are experiencing is converted into a physiological symptom. Nobody got better from a conversion disorder by dwelling over it. Most people find that a good approach is to explain to the pt that they're ok, they will recover, and they will have to understand that their mind is the boss here, and it is within their power to control their mind. The more they control their mind, the better they will be able to control their "seizures". For once, in this case at least, it really is mind over matter, and people can become very hard to treat if for some reason they have convinced themselves that they have a serious untreatable illness rather than a stress reaction.
Sage for medfagging.
Unfortunately, differentiation is 1) not widely taught, 2) the methods usually taught (sternal rub) are dumb, 3) only possible in the intraictal and immediate postictal phase, 4) in the intraictal phase, providers might not want to wait to confirm which one it is and thus potentially incur legal liability, whereas once they've pushed the Ativan, it's no longer really possible to differentiate what caused the episode, 5) people with PNES have a self-limiting pseudoictal phase, meaning that they do recover without intervention and so doctors may ascribe that to the antiepileptics rather than the fact that they would have gotten better anyway, 6) because PNES used to be called 'pseudoseizures', most people think they're completely fake as opposed to genuine but psychogenic, and doctors who try to test for PNES may soon face angry relatives who will want to know why s/he wasted time on making sure their loved one wasn't faking.
Does anyone know which "doctors" are "treating" this greedy fraud?
I know there are rules against action. I'm not saying anything. Just. You know. Just askin'.
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ana.ballerina, also has other Instagrams (chronically.emilia and life.will.out.) This girl kills me. Not quite a munchie, but way OTT. She's even jumping on the EDS and POTS train, and has made mentions of rheumatoid arthritis. Funny, she also has type 1 diabetes, but doesn't put that in her bio? But puts EDS in, even though she hasn't gotten a formal diagnosis.
I don't question if she's faking GP, but she's so dramatic about it all. Then suddenly she had EDS because she was "so flexible", and would post photos of her stretching. She talks about how she's a ballet dancer, so of course she's flexible (but wasn't even much for a dancer.) I'm not sure how she danced if all of her illnesses are as debilitating as she makes them out to be.
She shops around for doctors who'll confirm whatever dx she is out for.
Then suddenly she claims to have been subluxations, even though the only thing she ever went on about was being flexible.
Talking to her is like being in a competition, and she's trying to prove she's worse off. I couldn't stand it.
Calls herself a supertubie, is obsessed with grey's anatomy (kek), and says she's "being kept alive by machines" and makes sure to point out there is no cure for her problems when anyone says that they hope she gets better soon. Seems to go to the ER anytime there's a problem that her normal practitioner should be seen for.
Jaqui's definitely one of the very worst. Look back at the older threads for more on Chloe Leanne, though. There are screencaps of her money grubbing and excitement over all the attention she's getting. Pathetic. She's a British Jaqui, basically. She used to have a more normal username but of course she's changed it to be more spoonie focused!
She and Jaqui are the worst in my opinion. As bad as KR, or maybe worse even since they're both soliciting money directly (and Chloe Leanne is doing that on top of wasting nhs resources when the nhs is overstretched).
Her life.will.out account is pure milk, someone cap it because I can't. The post where she sees the geneticist and they say she doesn't have EDS and she's like, but I do though ur wrong yoo don't know my spoonie struggle. Milk glorious milk. Sorry I can't cap it.
This woman does not have EDS. Her dad told the geneticist her psych history and now she hates him, kek.
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Top kek. "Ridiculously hypermobile" my ass!
So much milk on her accounts, I'm surprised I haven't really seen much about her here.
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Dropped pic, sorry.
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Dropped pic, sorry.
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Her GP claim is total shit, 80% is normal, even faster than a lot of people without GP
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Here's another, oh-so-hypermobile. Her ankles are stable, and her knees aren't hyperextended at all.
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Really hilarious comment about serious heary disease. Top kek.
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Gimme TPN, I'm very sick.
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Moar TPN or I pitch a hissy pit
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For a few years after residency, I used to work for an insurer in what used to be, euphemistically, called clinical policy. What it really meant? Deciding what interventions we will fund and when, like a massive flow chart of 'if weight loss is under x, no tube' and all that. Now, while CP is the biggest cost saver to all insurance companies, it is also hopelessly overloaded. We needed to draw up policies on every single new drug, never mind the gazillion quack treatments that are now part of some gold plated plans that allow you 'alternative choices'. So we went, mostly, by what's costing us the most. For now, spoonies claiming POTS and GP demanding expensive treatments like TPN (one of the most expensive non-curative treatments known to man), IV fluids (IV fluids are cheap, but we have to budget for the risk that they'll develop line sepsis and then end up with an ICU bill that can pretty easily hit six digits, if not more!) are getting their way because it has not come up on the radar as a priority yet (there are bigger items of wasteful clinical spending on the whole). But eventually it will, and then the party will be over, and not their GI's pleas nor their crying fits can change that. They'll be forced to try to go out of pocket, but I don't know anyone wealthy enough to be able to cover the costs of some of this stuff without major financial difficulty.
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She's developing some new super speshul neurological symptoms now. Could we be witnessing the birth of the next hypermobileguy?
Ahahahahahahahahahaahah she's now on TRICARE? Well, Jacqui, say goodbye to your mommy and daddy's cushy insurance plan, because TRICARE is not going to indulge your shit. It's one of the strictest and worst insurance policies in America, even if she's on the HMO-style TRICARE plan.
Being on TRICARE also means she must go to a military hospital as long as they have a qualified service and enough beds, and if she's sent to a civilian hospital because they don't, she may be 'recaptured' as soon as a bed frees up. TRICARE is first and foremost a public health program, regardless of what it says on the tin, and it does not tend to indulge whiny dependapotamuses with fictitious health issues. She can kiss goodbye to tubes on demand and extensive tests. Here's some MCP, here's some Oxy, next!
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I screen grabbed emisdreamingthroughthealarm's story because it's kinda milky.
Yeah, I imagine them saying 'we have no doubt you'll end up back in emergency' (if they really said that) was in response to her tantrum/saying herself that she'll be back there
Not because they actually think she'll need to go back
I think they told her that.
Once it's suspected they are faking or self inducing an illness psych gets called in and one of the more common things they say with a patient who is noncompliant and upset and angry about being called out on faking
Is along the lines of "I'll see you 3-6 days from now when you come back to the er and they will page me immediately."
(specially if you are in and out of the hospital and ER with the same issues or new issues or have a history of dr/hospital/med/dx shopping and
facts just don't match up)
What I don't get (why it's not more common)
is once it's at this point you get flagged to psych in your chart (and of course get medical treatment of needed) why they can't do a psych hold on some of these who come to er at risk to themselves..therapy, detox, proper testing to confirm or deny diagnosis, proper psych and health meds, etc possible transfer or referral to outpatient or inpatient treatment.
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She's managed to get herself a longer stay.
I find it bizarre. The longest I've ever been in hospital was like 5 days and that was with an intractable migraine and status seizures. Being in hospital didn't help. It just made me feel worse.
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Here's MyBlondeVoyage's latest. It turns out that the miraculous supplement-prescribing clinic hasn't cured her, so she's asking for other options. No actual medicine, mind… I wonder if she's tried that route before and been told there's nothing wrong with her.
May I suggest the following two-step plan?
1) Try proper medicine.
2) If that doesn't work, go see a shrink. Possibly compounded by some sweet, sweet anxiolytics and a mouthful of seroquel.
My dog once got a tick and I freaked the fuck out. I dread tick season,
Sage for OT.(no1curr)
sorry for ot but I can't ignore bad advice.
If you remove a tick, you need to keep an eye on the bite site for a bullseye shaped rash for the next couple of days, removing the tick isn't enough to guarantee you haven't contracted lyme. Tick saliva has anaesthetic in it so it's impossible to know when you were bitten and how long the tick was attached.
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Has anyone looked through this account. Her diagnosis list is insane.
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Yaaas! New cow! Pill porn, self purchased wheelchair and selfies at the ER!
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Also this girl. She might be a decent example of a "high profile spoonie" with all sorts of people giving her ass pats.
Tons of milk in her older posts. It's crazy.
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Unending munchie points for an oxygen selfie
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I've been looking at Emisdreamingthroughthealarm's Mighty articles and this stood out for me. Why are these munchies always too complicated for regular doctors?
I found these threads yesterday and at first I got ticked at the people writing them but now I'm just ticked at the whole "spoonie" community thing. I have EDS and POTS, and yeah they can be life wreckers but they aren't some kind of beautiful tragedy. It irritates me that these people milking it for every bit it's worth destroy any credibility that people who legitimately suffer with these illnesses may have on the off chance they decide to actually talk about their issues. I've been part of various support group systems over the years but Instagram is by far the cringiest I've ever witnessed for the sole reason that it's not a support group at all. It's literally a bunch of people being artsy with their illnesses and posting a play by play of every single symptom they experience, complete with paragraphs sprinkled with emojis and hashtags before random words, and trying to be inspirational. It's all glam. Back a couple years ago, when The Fault in Our Stars came out, so many "spoonies" started putting "Okay? Okay" all over their profiles and suddenly started using words like "infinity" and "oblivion." It's just toxic. It's almost like a lot of these girls are so excited to be diagnosed with a genetic connective tissue disorder, and right after they score a POTS diagnosis they're immediately wanting a central line instead of trying the standard lifestyle changes and medications first. Because you know, actual medical doctors who spent years in school can't possibly know how to treat you. Soon after comes the "I'm thinking about buying a wheelchair" post, and eventually the "I wish my doctor would give me a feeding tube, I'm fading fast!" thing. I was a lot younger when I was diagnosed with POTS and was convinced I had "Lyme" after some time online talking to spoonies and to an extent I got into the whole "documenting every aspect of my health issues" thing but quickly realized I didn't want to have absolutely no life or identity outside of POTS. I mean I don't get why these people want to have an identity that is completely wrapped up in their medical devices and symptoms. Several years later I was actually pretty upset when my physical therapist told me she suspected I had EDS, as a normal person would be when being told they may have a genetic condition that can come with long term implications. But LIFE GOES ON, it's not a death sentence or automatically super morbid thing. I think a lot of the spoonies who have 28 diagnoses in their bios (which incidentally are mostly just "symptoms" that can come from autonomic issues or connective tissue problems, and aren't separated diagnoses at all) are excited to be diagnosed with EDS because it is genetic and genetic sounds scary and therefore more credible and "tragic". They don't realize they are thinking that way, but they are. EDS stinks, but I find that the people I know who are actually effected by it more severely are the ones who don't wear it on their sleeves. They just take it day by day, do what they have to do to take care of themselves, and focus on being as normal as they can. No need to draw excessive attention to your "story" and try to be an inspiration by keeping an hourly online diary of your symptoms. AGHHH.There's a huge difference in talking about your illnesses in a normal context from time to time or trying to connect with people who are like you, and turning it into a full time image to maintain. A lot of the people mentioned here are not going to have a life until they drop the whole "look what a warrior I am" act. I didn't even realize all of this in these terms until reading this website just made it all come together.
The whole sitting with her knees under her is a bit of a red flag.
I mean EDS is painful, sitting in one position for about 20 mins is enough to make pain start, I sit with my knees up against my chest while at the computer and that hurts after about an hour, but it's comfortable. I however cannot sit cross legged because of the position it puts my hips and knees in, for someone with super serious EDS and claims her hips dislocate a lot, I am going to call bullshit right there.
I've also noticed that she is constantly able to hold the camera up above her head and record constantly, because that doesn't fuck your shoulders up, yet in previous blogs she said she physically can't lift her arms above her head.
Also, there are plenty of videos of her walking, there is no signs of hip dysplasia or rotation in her walk, which is often. Caused by EDS and dislocations, there's no sign of her limping from pain in her hips or knees and she seems to be able to walk a lot for someone who's hips dislocate constantly
Saged for rant and sorta medfagging.
Yeah I fucking thought so. I don't have EDS, but I do have general joint problems/pain and I absolutely can't sit like that for more than 2 or 3 minutes. I have no idea how she can sit like that for an hour. If she's so bad that she has to use two walkers (one for upstairs and one for downstairs!!??) and get a wheelchair, she is not well enough to be sitting on the goddamn floor, or sitting on her knees. Let alone for 50 minutes, for several different videos, where she doesn't even appear to be uncomfortable. There isn't even a reason to sit on the floor, she could film from the fuckin couch. Fuck sake man. If you're going to exaggerate your illness so much, at least be consistent. Jesus christ. All this milk is making me sick.
(sage for rage and blogging a bit)
Thank you for posting and welcome. You have just had the experience that many here have had: coming to the realization that the whole sick-and-pony-show on social media is just over the top and counterproductive. You will find quite a few chronically ill people here and even some healthcare professionals who are tired of seeing the consequences of this illness glamorization in real life. We are here to vent and call out suspicious and annoying cases. These 'illness queens' are making the very real issue of stigma and judgment faced by people with yaknow, legit chronic illnesses, especially young women, even worse. They are not 'raising awareness' except about themselves. They are glorifying, glamorizing the 'romantic tragedy' of being young and ill. FUCK THAT. Everyone has to be sooper severe and too complex and rare and a #supertoobie and #spooniewarrior and have #chronicallyfabulous gear etc. The most annoying thing to me is how much people like this say "I am not my illness." Really? Because that's all we see and hear from you! If you have a spoonie account and then talk about how you are more than your illness, then proceed to discuss every tiny fucking thing about your medikul jerney and that's all you post about, check yoself. Most are reveling in the attention and sooper speshul frajul image. This is a culture of victimhood and overpraising and it is fucking shit up that ACTUAL patient advocates and people who have been sick a long time have fought against. Medicine has come a long way in taking complaints seriously from young people, especially young women, and this kind of shit is reversing some of that progress IMO, sad but true. Stereotypes come about for a reason. It is heartbreaking to see the damage to the reputation and bias against people with certain diagnoses because of obnoxious OTT "spoonie warriors." Then we have the MBI crowd, who aren't even sick but like to play that they are online, or worse actually try to fake or deliberately worsen their medical problems in real life. The damage they do is even worse and far-reaching. I could rant forever but I just want to thank you for posting and seeing things for what they are. We aren't a bunch of hateful cyberbullies who try to destroy people for fun. We're commenting among ourselves on the bullshit we see online, on social media platforms.
Yep. This forum inspired me to delete my spoonie account and focus on real life instead of my condition.
We can also point out when someone is being ridiculous and over reacting about their condition like when the OG spoonie Robyn was crying Brain Cancer over a Prolactinoma.
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> dramatic drama is dramatic
> vague hints of DYING!
> lol no, you're not dying
Her docs are discussing to withdraw feeding. That's a polite way of saying 'they're about to tell me I'm a fucking Munchie and throw me out… shit!'. But clever ambiguous phrasing to suggest she's on palliative care, which she is not (doctors don't simply decide to withdraw a life-sustaining intervention from a patient still conscious and able to make decisions, you dramatic fuck!)
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You're 16. When I was 16, I emancipated myself to put myself through experimental chemo my parents disagreed with. Checking yourself in to labs (= showing your ID and referral/order card) at age 16 is apparently super big let's celebrate adulting for these immature idiots. No wonder they want to spend their lives being taken care of.
(Sage, sorry for blogging)
Err, that's because these fucktards confuse venting (periodically opening G outlet, lay down, gently press on stomach) and drainage (connect a Farrell bag to G outlet and keep it below the approximate level of the fundus, and don't eat anything for fucks sake!) with using the G port for pull-force-draining, an absolutely contraindicated maneuver in which two large syringes, one filled with water or meat tenderizer/tube unblocker/papaya juice, are connected either separately or using a T valve. The empty syringe is pulled to drain what you have eaten out of the stomach. When it can't go anymore, you flip the T valve/change to the other syringe, and first instill about 5ml into the tube, let it work, then you push 10ml at high pressure. And you keep repeating this until you have suctioned your stomach contents off. Basically, they have medically enabled bulimia. Hooray.
I, too realized how harmful using Instagram as a health diary was to both myself and others. I came here first thinking "omg this is cyberbullying" but realized that it was more of a reality check. A prior friend had told me to make a separate spoonie Instagram and I thought that was the right thing but I was so wrong and I'm embarrassed for myself.sage for blogging (sorry farmhands) / not contributing to milk
Exactly. And it's FUCKING RAWWW. She loves processed white bread, ham, crackers, cheese, cucumber, frozen fucking peanut butter globs slathered onto chunks of frozen banana (which she scoffed down in one giant bite), broccoli, shrimp orzo, crumbed chicken marinated in ranch (bleurgh) those are just some of the many things I've seen her eat in the few vlogs I've watched. I can't believe her.
I think she said something about how she doesn't want diet suggestions because her body doesn't respond to food the same way someone normally would with GP. But that just seems like a bullshit excuse to eat whatever she wants (because she apparently can?) even though those foods would make even your average IBS sufferer sick and in pain. I know because I have a very simple case of IBS and I can not touch those foods. I don't have GP so there's obviously no way I can speak for that, but there's just no way processed white bread, cheese, processed mac and cheese and fucking dino nuggets are easy on a sensitive stomach.
I mean she claims her fucking GP is severe too. She's infuriatingly stupid, and stubborn, the worst combination.
I just watched a vlog where she was making chicken, broccoli and mashed potatoes for dinner, and the next morning she was throwing up for ages because of what she ate the night before, and this seems to happen often with her.
But she's totally fine on this shitty diet and doesn't need any advice you guys.
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New milk. How does one take a picture of themselves fainting?
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She's so happy to go get the coveted GJ button so she can purge through it now. So much easier than throwing it all up!
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Caption on the above post.
You and other spoonies who had a spoonie account and now feel a little sheepish: please don't be too hard on yourself
The whole spoonie stuff is like a cult, and it's damn easy to get sucked in. You made it out. It takes emotional strength to say no to being coddled and uncritically adored and yes to real life and recovery. Any shame or sheepishness you feel should be eclipsed by immense pride, because you took the arduous high road over the easy path of a life as a constant object of pity.
You guys/gals rock.
I was like that for fifteen and could say nothing more than "blr;sdfhasdafl" while post-ictal. to take my epilepsy seriously.
Benzos make me climb the walls but not enough to post anything.
you can actually have it done with a scope and no sedation too, at least here in the UK. I know for a few with EDS sedation is ineffective so some choose to have it without anything just to get home quicker. I do wonder if she would be this excited if she was having this done wide awake. But of course she wants sedation so that it takes longer and she can look super special sick
long time lurker first time poster so if I have got posting here wrong you can delete the post.
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Most important points?
- she didn't go to the appointment she had at her rheumatologist for 2 weeks and gets angry, when her rheumatologist isn't there
- they offer her an appointment at the 10/17 but it's too late for the munchie
- the gastroentologist offers her an appointment at the 10/17, which is too late for her gastroparesis(she thinks she has it!), but she waited month to even contact the doctor
- an old lady thought that she's a guy and it made her angry. She even wrote on instagram that her cup size is D!
- Someone on instagram contacted her and said that she is a guy and that people should feel sorry for rheuma_esgibtkeinzujung, because of all her alleged illnesses and psychosomatic stuff
another funny thing? Some days ago she wanted to get recommendations for a heart rate monitor, because she wants to show her doctor that she has POTS. Someone with POTS wrote that she probably can't skip the tilt table test. Suddenly the entry is gone.
She posts a photo, that she's happy about having 1000 followers(she wrote likes) on instagram and nearly 2000 on facebook. Later on she commented, that numbers aren't that important.
My personal opinion? She should go to her GP and ask him for help instead of going directly to a specialist. Having stomach problems while taking narcotics for such a long time is normal, but I guess it's not special enough for her.
And making a big drama on facebook and instagram, because one poor old lady misgendered her is so wrong! First she wrote that it doesn't bother her and now this.
Guess next thing she wants is EDS and a port and a feeding tube.
She hasn't contacted the surgeon for her wrist/hand pain yet, even though she already wanted to contact him last year. How many self-made problems does she even have?
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Nicole "suddenly" advertising Snapchat as away to show off her tube … for someone who is a health science major and wants to be a doctor she has no concept as to how therapy works and cannot recognize signs of a basic eating disorder which you are taught in the most general of psychology courses!
Cry me a fricking river. My parents worked full time so when I had blood tests, EKGs, teeth pulled out I went by myself. At age 12.
I guess this is a fair example though of how Spoonie Warriors are actually coddled and infantalised by those around them.
Sage for partly rage blogging.
In case anyone wants a comparison between munchie bullshit insta accts and an actual sick persons medical journal, there is this guy with cancer. And even with cancer, he manages to sound much less dramatic than these little bitches with EDS and POTS.
He died, so his family made the last few posts wrapping it up.http://dougduncan.info
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Yes, she 100% NEEDS that feeding tube. Hey goal rate was 45, she runs it anywhere between 25-35 because anything not makes her feel too bloated. She claims her goal rate was 35, but that is not what her doctors said when she got the tube. Apparently she claims MALS now too. She said she doesn't absorb anything she eats, it either it vommited up or comes out her drainage port. If her malabsorption was as bad as she claims the feeding tube wouldn't even work, she says her whole digestive tract doesn't absorb nutrients.
"Oh, poor me, I was so malnourished I blacked out after a few steps." Bull shit, is that why you look and did look so fucking healthy? She has never looked too skinny, or like someone that can't/isn't eating.
The hospital called her and recommended she get hydrated for the tube change. Instead of being a normal person and drinking water, she runs an infusion.
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Yeah she's getting fat. Sure she may of been on the lower end of ideal weight right as she got the tube. Left side picture the face is from the day or two pre tube and the close up of her stomach is the day she left the hospital and the right photos are from yesterday and today
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Here we see jacque in her natural habitat…
Seems youre not the only ones onto Jacquies shit https://gomiblog.com/forums/lifestyle-bloggers/chronically-jacquie-jacquie-blake/page-2
Stumbled across this while googling chronically Jaquie fraud/fake, found lolcow and this.
I've caught her contradicting herself countless times and her 50,000 viewers aren't even calling her out in the comments. She needs outing as a huge fraud.
So because I am bored, I am doing some research. In particular, I am taking shots of Jaqui's videos where she claims to be in pain and compare relative facial landmark positions (this is my field of expertise) with some reference pictures of people in severe pain.
I'm…. looking forward to the results..:)
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Her "I'm so exhausted, I'm in so much pain" face is ridiculous.
Totally. Her "I'm feeling shit" face is just super droopy eyelids, talking slow and monotone, that's it.
Not that I need experience to know why that's just dumb, but I'm a chronic pain patient who also deals with a few other illnesses and often have very bad days. I'm very familiar with a lot of different kinds of pain. I've never made a face anything like that, nor have I seen anyone else do it. Maybe it's just a weird thing she does, I don't know. But I know that when I'm in a lot of pain/feeling very sick, I can still keep my eyes open, if anything I'm squinting/tightening my bottom eyelids (if it's real bad, my eyes will just be closed) not in a constant state of droopiness anyway.
Other examples of genuine pain-face include, but not limited to, furrowed brow, tight mouth/lips, fidgeting, changes in breathing, not talking, and not being able to or wanting to pick up a fucking camera and film myself.
(sage for kind of blogging)
Ah of course. See your method seems waaay better. I mean, she's got a service dog to "make life easier" (I put that in quotes because she obviously doesn't NEED Harlow) but then she spends half her fucking energy making unnecessary food for her, that might actually be doing more harm than good? In what world does that make sense?
PS. I find it super funny how one of Harlow's main jobs is getting her slippers and blanket from the bucket across the room, when she could just you know… move the bucket to a spot beside the couch.
This reminded me of one of our past munchies. Does anyone else remember when Shelbie threw a temper tantrum because her vascular surgeon wouldn't place a port for her "veins that always blow"? They supposedly told Shelbie that it's too risky with her condition (this is when Shelbie claimed to have vEDS before genetic testing), but my guess is the doc asked why she wanted it and she had no good excuse. She doesn't get regular infusions (or doesn't talk about them) except when she goes crying to the ER about how weak she is, she's never had any other central line, and as far as we know she doesn't get blood work done weekly or more. It was laughable and was a shame I didn't know about this thread before than because it was high grade 2% milk. She seems to be laying low now, and her new insta bio says something along the lines of "don't expect me to accept you if I don't know you", I bet it won't last long kek.
Sorry to get off topic from Jacquie, though. A+ cow.
ugh that video was so cringey. I felt bad for the guy, he looked so uncomfortable. And what if he thought he was just going over there to just hang out, and she grabs the camera and starts asking him about his wheelchair before immediately turning the conversation back to herself (I say conversation, but it was pretty one sided) and all about her. And then she made him get out of it so she could use it/try it out, saying she wanted it in pink, etc etc.
I really hope that once she finally put the damn camera down they hung out and didn't have to talk about medical stuff. I'm sick, I have sick friends, and when we hang out usually the last thing we want to do is talk about all our medical problems, let alone excitedly try out each others medical devices. Talking about that stuff occasionally is good, but knowing Jaq, it's all she wanted to talk about.
I think it might be her autism… She talks about it in her "All about my Autism" video (lol). She talks about how she can't recognise other peoples emotions/facial expressions and social cues and stuff like that.
Maybe she has trouble showing emotion because of that. You can see it when she smiles/waves/poses for photos especially, she looks like she's trying really hard to do what she believes is supposed to be a smile. Sometimes her emotions are definitely genuine, but she seems to have a lot of trouble with that stuff.
A distant acquaintance has a daughter born w/hemiplegic CP. it's not particularly severe, in that she could walk with an AFO (albeit with a pronounced limp) and would maybe use a cane every now and then.
So somehow, she got involved with Special Olympics, which is all well and good. And somehow, she crossed paths with RL. At this point, she was an 11yo who other than some tendon surgeries and having to wear an AFO was 100% ambulatory and got by just fine.
Well, after hanging out with RL, she expressed the wish to use a wheelchair because it's more comfortable. At first, the parents thought she would prefer to compete in a wheelchair, because her upper body strength is less limited than her lower body issues. But a year later, she basically kept complaining about all and sundry until her OT finally signed off on getting a wheelchair. RL offered to send her one of her used racing wheelchairs (I don't know how that works, as they're different sizes, but I'm no expert). She's now using her wheelchair full time. Her parents are heartbroken. Her docs are puzzled as this kind of loss of function just doesn't happen. She's recently started going all activist, too.
Like Brynn whatshername, Robyn Lambyrd is one of these pied pipers, encouraging the healthy and moderately sick to full time spoonie it up.
Oh, no. Flattened affect and what autistics do is very different. In an autistic person, the content and the affect are both detached, flattens affect just refers to the way it is expressed.
Of course, it's never 100% so, but here's a ridiculously overdone example:
Autistic: "And so, my mother succumbed to breast cancer. She experienced a degree of pain she described as severe throughout the last weeks before expiring."
Flattened affect: "So my mother died of breast cancer. She was in unbearable, tormenting pain..
Both said in the same affect, in the second example, there is a clear detachment between the emotion that ought to be expressed and the affect through which it is expressed.
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This goes on forever, too much to screenshot. She is furious about the suggestion of psychiatric help.
This made me actual laugh. You are never too sick for emergency care in the UK.
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What Chloe needs is an explanation that she is not too complicated at all, she is merely a psychiatric case, for which A&Es are not equipped. They are not psychosomatic emergency units. If she deleted her Instagram, got herself a hobby and forgot about this idea that she needs to be a super sick super spoonie fighter in order to be someone - anyone! -, she could have a life.
This way, I see this ending in three ways: fatal nosocomial infection in a line she forces one of her poor doctors to insert, suicide when she is not getting her way one day and is forced to go to a psychosomatic unit, or long term mental health dependence, where she can play Girl, Interrupted to her heart's content.
Such a loss of a life, a life born with all the privileges of health, wealth and being born in an affluent country that wastes time on her antics. In most poor countries, she'd already been doing the Thorazine shuffle.
I'm not a psychiatrist. I did, however, work both in an A&E and do a psych rotation specialising in psychosomatic disorders and EDs.
Despite her exaggeration, I cannot see anything, and I mean anything at all, in which her care would have fallen below the standard any patient is entitled to expect from the NHS.
She claims no doctor took her on because she was too sick for a hospital. That… doesn't happen. If somebody turned up at our A&E with space amyotrophiphylencephilococcosclerendixioma, we may be puzzled what the fuck to do with them (we are your run of the mill large urban university hospital serving a fairly diverse community), but we have a very established practice: assess, document, stabilise and prep for transfer to tertiary care (in her case, a MH specialist hospital with a PD or somatic specialist ward). Least of all would someone coming in by ambulance
turned away (though from her description of symptoms, I do not see what warranted the blue light, she is either lying or herself acted like things are serious and the ambulance personnel erred on the side of caution).
That aside, she was assessed competently. She was given the A&E gold standard of diagnosis for suspected seizures. The putative diagnosis is spot on and the doctor had no other options. There are literally no conditions that would have produced seizure-like symptoms without ictal activity on the EEG (other than perhaps also making shit up!). Least of all is her expectation that A&E will somehow after seven years get her under the care of a neuro anything close to reasonable! A&E is about three things: triage, life support for those who need to go on to tertiary care and making the rest fit enough to go home and see their GP soonest. If in seven years her GP has not given her a neuro referral (during which she could have changed her GP, among others!), then there must be a reason and A&E rules exist exactly to prevent what she was trying to do.
She did, however, cost you and me quite a bit of money. Cheers, Chloe.
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she didn't get her precious button
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The thing I hate most about Chloe? The fucking vaccine bullshit.
There is absolutely zero proof that her illness, if any, had anything to do with her vaccine other than some temporal coincidence. But she keeps pushing against vaccines, lying and deceiving instead of admitting plain and simple that she has a mental illness that is causing her physical symptoms. But no, she has to blame the evil vaccines and hope for a big payout. Little does she know how many people she endangers. As she walks around with that stupid-ass vogmask, she of all people should understand that some people depend on herd immunity (because vogmasks don't fucking work!). I'm one of them, and I don't want to die of measles just because some mother saw this bullshit lie that Chloe is spreading to justify to herself that she has spent most of her last few years playing the sick person instead of putting up with life's challenges, and did not vaccinate her child. I also don't want that child to die or suffer pain, illness or disability. I get it, Chloe: you want someone to blame. But you're in control. It's all in your head, and the longer you blame other things, the less likely it is that you will recover. That is, if you still even want that…
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Different Chloe, equally full of shit. @chloeprintlambert has everything, from POTS through MCAS, but oddly, she is not allergic to the fuckload of pain medications she's taking (on virtually every photo you can see her chewing an Actiq and having her fent patch on). I mean, fine, I have a pain patch too and I sometimes have an Actiq lollipop, but I don't instagram it. It's tacky.
I used to be in two minds as to whether she really was unwell, but having followed her for years, I'm pretty sure she is full of shit. We met in person as we used to go to the same hospital for treatment. She has quite extensive self harm scars, and she and her parents threw an incredible hissy fit when it was suggested that her GI issues may be due to psychiatric problems. Initially, she had only gastroparesis and colonic inertia - to be quite honest, on her dosage of opioids and Zofran and all that, I don't think anyone wouldn't! Then someday she decided she had MCAS. Then POTS and somehow she talked her parents into buying her second-hand the wheelchair that was used by the protagonist in Me Before You. She is constantly obsessed with what new treatments she can get. When I had my Hickman sooner than she did, she was literally asking me details that would have made Sarah Silverman blush. Despite being on the NHS, her parents play the "affluent middle class pushy parent concerned about their child" stereotype so well. She knows procedure inside-out, and knows how to get her way inside the NHS, and doesn't shy away from telling doctors that. I'm pretty sure that by now there IS something physically wrong with her, given the fuckton of meds she's been taking, but I remember her in the beginning, when she just had GP and some mental issues, how she was excited by every procedure and how she was getting a kick out of getting her way inside the NHS.
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Sounds like her little one was stillborn quite early.
Yeah I've jokingly told friends before I should train the dog to fetch us some beers. But nah I get up off my ass and get my own shit.
I just can't understand if you're not someone with a severe neurological condition or other condition which it makes it impossible to do things like put on socks or pick things up why train your sd to do shit like get a blanket. It's so much more fun to teach them to do fun stuff like play dead and balance on stuff and do the lassie pose.
I'm assuming that she does understand the very real difference between late miscarriage and stillbirth?? Although it's largely irrelevant to the heartbreaking outcome.
Saged for gynea/obst armchairing.
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Dunno what's the deal with this chick but honestly, this photo makes me cringe. What's with all these women who have doormat men?!
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>>365526>What kind of a moron rides in a shopping cart as an adult?
These legendary heroes.
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JBN has gotten her BUDDY BEADS!! lolol they show her sooper special "journey with chronic illness"
What a joke this girl is.
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The text to go with above IG picture.
I believe she buys it herself. At least she has done so with the "tubie" bear which she has stated is given to children for free (because you know it is meant to help a child) but that she was able to pay for as an adult.
These beads are straight up out of a children's craft kit - might be different where she lives but the beads of courage I typically see are typically not al the super cheap plastic kid crap. Giving yourself beads for entering a pageant, "raising awareness", and donations is not a thing.
I give stickers to my 3-year old clients for a job well done in therapy. Real adults don't need stickers and prizes for every task they do.
The whole idea, I believe, is to help kids stay calm and tolerate painful things (for kids). Don't fight the nurse drawing blood, you get to add a bead! You're scared to go into an MRI, but when you're done you'll get a new bead! It's basically bribery, but a great idea that I totally support for kids. And if kids want to show off what they've survived through, of course, because they're kids and aren't old enough to have an ulterior motive. But even a teenager, and especially an adult, should not have to be bribed to behave at the doctors', and tolerating medical things such as an iv as an adult does not make you brave. If you're an adult, you should be able to handle a needle prick without needing a medal. Instead these spoonies have turned a great idea into another way to compete with each other over who's sicker.
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Hey Nicole, they make these, too! Helpful for someone your age, judging by your recent bead order
I used to have my Beads of Courage, received when I first had cancer at age 8, on my wall next to my medals from various races. When I had a recurrence aged 16, I was a bit of a surly teenager and declared I wanted none of that childish shit, much to the chagrin of the CL lady.
I just took the whole set of beads (gosh, they're heavy!), put them in a plastic bag and took the whole shit up to the attic. After seeing Nicole with her stupid beads, I couldn't bear the sight of them. Maybe someday, but not for now.
(Sage for blogging and no1curr)
CPL is a trainwreck. A few interesting factoids:
- She was obsessed with the idea of a home oxygen concentrator. She tried to get one prescribed from three different docs. All said nope as she can maintain good sats without assistance. So at one time she actually asked me to help her look for one on eBay (I use an oxygen concentrator and bottles of O2 as chemo fucked up my lungs).
- At one point, she told me and a friend of mine that she's glad she's got physical health issues because now she's being taken seriously. Wut.
- The reason she had her parents buy a powerchair? Her OT did not sign off on it, as her physio rightly said that what she needed was to move her joints to avoid them stiffening into a single position. Well, you can guess what happened.
- Around the time two relatively well known spoonies (as one has passed away, I will not give names) started using CPAP devices, she reallyreally wanted one. As I had to use one for a while she actually asked me if I would let her have mine. That… weirded me the fuck out and I'm not easy to weird out!
- She has decided, like so many with multiple health conditoins, that she has Mito, which explains everything, and that she's terminal. Boom. She loves mentioning it or hinting at it.
- She's on a stupid amount of drugs and her escalation is concerning at best. Worse, she has regularly said she would take an Actiq (she's got the 400mcg ones, I think, so pretty strong) when she's not in acute pain but is feeling emotional or upset or sad. That, in case you're not familiar with chronic pain management, is a big red flag. When her doctors wanted her to reduce her opioid use, she allegedly threatened suicide.
Yep, she's got a lot of milk. The boyfriend is another funny story but I can't be arsed for more right now. She fucked over plenty of her friends for them to provide more details!
So she's an addict as well as an obvious munchie. I feel sorry for her parents, as well as her poor doctors of course. How do these terrible people get so good at their manipulation?
Tell us about the boyfriend! Another enabler like Judd.
Saged for no contribution to the milk
I fucking hate how her and Shelbi take pictures of their analgesics. I'm not gonna judge people who use opiates, I abused them 10+ years. It's just unsettling to see people fetishize it and think it's ok.
Just seeing this stuff gets my heart rate up. Fuck these people are dumb.
Sorry for blogging.
How bored, lonely, or insane do you have to be to want to commemorate trips to the ER or being hospitalised?
It's like they want a memento from every blood test or urine sample the way kids want a souvenir from Disneyland.
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She's actually really rude, not to mention a medical miracle given she just said she has been dying and she's posting away.
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Oh and she's hilarious about what's in vaccines.
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Just putting this here.
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Such a try hard. Stuck a full lime in her gob, missed the point of the entire thing. Just stop lol
Bit of context "Take a bite out of lime" for Lyme awareness. You take a bite out of a lime. Not stick a full one in your mouth like you're plugging a hole
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lol scrolled back through her account and found this. I'm assuming she's gotten over this deadly allergy?
How was she even able to have sex with her husband then to get pregnant?
Wouldn't she have passed out 5minutes into it.
I remember her from years ago
Back then she just had anorexia (pretty severely actually from what i remember) and a personality disorder diagnosis
Then suddenly it was trauma and ptsd
Then it was GP and disgestive stuff (probably a continuation of her eating disorder lets be honest)
And now its… well everything really
I fucking hate this cow for wasting so many resources. I would do a blogposty rant but no1curr and dont want to infuriate le farmhand.
Sage for rage
Another reason I can't stand this bitch. My son almost died from pertussis at 3 weeks old, before he could get vaccinated. He caught it because I lived in a town that at the time was the number one city for pertussis incidences in America. A "progressive" town in which a super high percentage of people didn't believe in vaccinating their children (I've always been pro-vaccination, my daughter was vaccinated and 2 years old at the time). My beautiful son was on the heart long bypass (ECMO) and in a coma for 2 months and then a feeding tube and oxygen for over a year. Thank God he isn't brain damaged, but he still has some lasting impairments, so yeah, fuck you for advocating against vaccination Chloe. Fuck you.
Sage(USER HAS BEEN PUT OUT TO PASTURE)
Well, the personality disorder diagnosis was accurate at least.
Bitches like this wasting resources are a cancer on the NHS. At least Jaquie has to pay for some of her shit.
Was at university with bettergraces. I swear, these cows follow me around.
At first, she's a somewhat shy and a little acerbic but altogether sane English student. Like, you think that you've seen worse. She's a little full of herself and fancies herself a bit of a poet, but other than that, initially, she seemed harmless.
That is, until, with time, it turned out she was a drama magnet of epic proportions. Predictably every few days or weeks, something either happened to her ('Muh chronic fateeg!'), She claims to be on her doctoral programme but is basically on indefinite compassionate medical leave. She's an incredible drama cow.
kek, I went to uni with her too and if this was slightly more accurate I'd think it was a self post. Vendetta much?
I found her account a couple of months ago after not talking to her for years. She can be OTT and her captions are dumb, but she talks about being on medical leave.
Sage for being fucking boring
Ohhh my god that legit triggered
my gag reflex. I had to scroll away in order to stop from dry heaving.
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Morgan McCastor, the munchie who had been applying for hospice care for her sooper srs gastro?EDS/undiagnosed illnesses, is following the suit of cows with eating and personality disorders.
Boohoo my doctors won't pay attention to me, time to eat my feelings in greasy fast food. Featured Morgan's massive amount of fries and fried chicken.
Link here: https://www.facebook.com/morgansmedicaljournal/
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Dmmt wrong pic. Right pic now attached.
You are all vile bullies. I know chloe print-lambert personally and what you are saying couldn't be further from the truth.
I have a question to ask, what do you gain out of this? It baffles me. You are cyber bullying and it's horrible.
All I'm saying is STOP you wouldn't like it if it was the other way round.
You obviously all admire chloe as you are spending your time talking about her.
If you don't like her, then fine we can't all get on with everyone. What I don't agree with and will not stand for is the bullying and bullshit you are all saying..
I suggest it stops and you all get on with YOUR pathetic lives(USER HAS BEEN PUT OUT TO PASTURE)
Oh gosh, this stuff is literally nothing but laughable. The time people chose to attack is when I have just lost my baby that I have fought tooth and nail to carry? Shows what kind of person they are not me 😶
I don't know who this person is who apparent knows me but they sure do chat a lot of shit 😂 Not even going to waste my breathe there!
The NHS paid towards my chair, like most that need specialised seating, you get a voucher and pay the difference I was lucky the difference was charity funded.
I am on medication, I don't care what people think of that. I don't care about hiding it or not. I've come bloody far in the last couple years learning how to deal with my condition, push boundaries safety and I have had a purpose build space to learn indepence if you want to act like a jealous brat that's fine but seriously, it only makes one of us look utterly ridiculous and it's certainly not me…..
I have mastocytosis and my enteric plexitis (people mistake that for MCAD for some reason)diagnosed via biopsy, I have oxygen prescribed by oxygen services from respiratory consultant. I don't know where the apparent mito thing came from I've never mentioned that and certainly don't have it. I have addisons yes I'm dependant on steroids, I have fentanyl they are 200 not 400 if you must know but why do you give a shit? I'm on TPN and IV meds prescribed by consultants. I don't need help knowing how to get anything- I need enough that I would rather live without.
Jealousy is so ugly.
Right now I need to focus on my little girls funeral. It's up to me and Jordan if we feel the risk is worth it. Sex would kill me? Get a grip. If you are low life enough to make such accusations knowing that my little girl came into the world passed on, then you are not worth my time or explanation. Emma was on the cuff of weeks, legally that is one week off being viable. One week and she would've had a chance so of course I am going to be grieving her as my baby, my little girl. I shouldn't even be giving you my time of day. You can talk about me but whoever is sick and sad enough to speak about my baby and my partner- I pity you and the sad life you live.
Find something to do with your time that doesn't make you look like a judgemental group of low lives.(USER HAS BEEN PUT OUT TO PASTURE)
I disagree that she isn't milky, she definitely exploits her illness.
You're right about the timing. She should be left alone to grieve.
Completely disagree, she has just as much a right to have a child as anyone else. As does her partner.
Also, this board is for discussion of munchies, not discussion of ethics of pregnancy. Get back to the point
babyfag plz go>>366068
It's completely weird. Nobody wants to look at pictures of dead babies.
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so another meal for jaquie who apparently is so malnourished she needs a feeding tube
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So moving back into actually munchies Jacquie stop eating shit food I promise it will help your stomach and god the way her face fucking lights up about feeding tubes and infusions
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Has anyone look at Christina/watercolor_me_impressed?
I can't decide if I think she's 100% legit, or an OTT.
Does the tubie part makes her a munchie? lol
I get that it can be seen as "childish", but i guess it's also a way of making it bareable
Ha you're forgetting that CPL started out as an average teen with basic mental health problems like an eating disorder. I used to follow her in those days. She's moved onto something that meets her need for attention more, that's all. She may have some legit issues but it's nowhere near the level of drama she claims.
Agreed that Chloe Leanne is full on munchie though.
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Not an Instagram spoonie but I just wanted to point out that even the Ehlers Danlos Society- the top organization for EDS- encourages this kind of milky behavior by saying things like this. Instagram is full of spoonies who see themselves as an injured, damaged, neglected community and the top spokespeople for EDS just ag it on.
Well i've seen 10+ doctors with no one having a clue what was wrong until finally someone connected the dots and i was diagnosed
Sure a lot of these munchies go doctor shopping to get their sooper serioos EDS diagnosis, but you can't ignore the fact that many doctors simply do not know about this disease
sage for somewhat blogging i guess
You mean you doctor shopped until you found one that fit your personal narrative.
LOL. You belong on this thread. What's your ig/twitter/tumblr?
nah not really, i was referred to doctor after doctor because they couldn't seem to figure it out
Plot twist: people with EDS who are not munchies exist
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I thought that charities like Make a Wish and Dreams Come True were for people who are Terminally ill or have life limiting illnesses? At least in the US I believe they are …
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She posts today how she is in a gp flare and can keep nothing down, then next post was she was going to the store for ice cream sundae supplies bcuZ she had an urge for icecream
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Her post almost immediately after the "I'm in a flare" post
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Holy sheet. I knew answers would arrive in time but what a sad way to go for Kadee.
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Jaquie's mom moved in with them to help.
She fucking went to the set of Casualty.
Doesn't that ring ANY bells to ANYONE? Hello, Mr Psych Consultant, are you asleep at the goddamned wheel? Your patient with mysteriously severe ongoing health issues
uses her Victimhood Free Trip to go to the set of a hospital drama
If that doesn't fucking scream Munchie, I don't know what she needs to do.
I'm gonna be an asshole for a moment.
Among the things they teach you at med school are something called the 'indicae of malnutrition'. Such as: the ring/bracelet gap (losing so much weight that rings/bracelets that used to fit now are loose and leave a gap), prominent cheekbones (as the fat surrounding them dissipates), the triangle formed by the sternocleidomastoids and the suprasternal notch protruding…. I don't want to call Jaqui fat, she's normal for her range and age and gender, but anyone who would credibly deem her malnourished and give her a tube before trying other interventions is a moron. The question you ask yourself before all of these things is whether the patient has enough of a reserve to endure trying liquid nutrition (Ensure) etc. for a few weeks, +/- meds like MCP. But no, she straight got her surgical G/J. And what's more retarded, not long after she got her button. Buttons are expensive and they have to be sized for stoma length, which is why they're given only once weight has stabilised.
This is why Jacquie fucking mystifies me. It could be that my experience was being in a college health clinic rather than a traditional GP setting, but after I lost 10% of my body weight in a month, and I showed all the signs you pointed out, the doc prescribed me some antibiotics and said losing weight when you're sick is normal.
So at least in my experience, even if the signs are recognized, docs aren't keen on pumping a body full of nutrients that will recover on its own. So it more or less shows how aggressively Jacquie pursues this whole "get me a tube" angle.
Just like Nicole, for that matter. It's like they recognize they're missing something that should be filling/fulfilling, and their brain subconsciously fills in the gap by being like "Food?" So they identify this gaping hole of neediness, and try to fill that hole with medical props and liquid food.
At a college health clinic, the population is seen as having more risk factors. So it would be more, not less, likely for you to get at the very least an upper GI series and an up and down with the magic snake. There are telltale signs of ED in the GI system that we ca. Identify pretty easily with a single scope, and so it has become pretty common to send anyone with suspicious weight loss for bloods to check the actual level of malnutrition (A/G ratio and, to an extent, HbA1c, are much more telling than weight or weight loss - in and of itself, weight loss is not a problem, the problems are either the things that cause it (ED, serious illness, etc.) or the things it causes (lack of nutrients, various hyposomethingorelseosis syndromes - would you believe I saw my first and hitherto last case of beriberi at an affluent elite university campus's surgery?). So really, the whole thing stinks of parental + Jaqui pressure, and knowing what the right things to utter are. I would not be shocked if Jaqui had a close female relative who is either a doctor or had a PEG/J (we give them away pretty liberally for cancer these days as food shoved in the jejunum will usually stay the fuck there, no matter how nauseous or sick your chemo makes your area postrema).
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"Allows me to be myself"– an attention whore?
Yeah, sounds about right. At least Nicole realizes she likes to be the center of attention. You know, for a bitch that apparently got bullied for her weight in school, she sure bounced back VERY quickly and has no problem with a bunch of strangers oggling her on a stage for the merits of her beauty, especially when stacked against more traditionally attractive girls.
She's so fucking weird. Is joining pageants trying to overcompensate for the negative attention she got in school? Like sort of sticking it to her former bullies?
Though, tbh at this point I wouldn't be surprised if the bully thing was a load of shit. She could be lying about it to justify doing pageants.
I've seen this handwriting before. It's even got a name I forgot, because it's so widespread in neurology assessments (fellow medfags, pray, help me out). It happens when a person is trying to simulate a motor dysfunction, a demyelinating disorder or, in recent EDS-ridden years, weak joints. The problem is that that's not how your handwriting in those cases would actually look
. She's like the people who are asked to draw a clock face and draw a squirrel or some shit, or number the clock dial with random digits. Nope, not how it works.
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Wouldn't the bad handwriting be due to her essential tremor?
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she is eating more ice cream
Legit looks like meet new >fiends..
It's I before E except after C… or angling to add non-typical dyslexia instead of just stupidity to your ever growing list?
Her handwriting only looks atypical to most non UK residents, sadly this is pretty much how all under 25's write it's supposed to look cute but just looks shit and you know there was at least 5 attempts prior to THIS perfect one…[during the last decade presentation and spelling haven't classed as indicative of intelligence, hence the global embarrassment of our pisa scores]. Millenials here are thick as fuck, if it can't be copy/pasted they're they can't be arsed.
Sage for education rage.
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She has such a proud look in this picture like look at me with all my new attachments
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Caption that went with the above. The cut off part was asking about calories, says she's dependent on tube feeds, and is at risk for refeeding syndrome. She's also asking what the symptoms are of refeeding syndrome…
She was in one pageant - that she got in for by applying online! But she is milking that one for all its worth. She wants people to tell her how strong and brave she is for doing a pageant in her "condition". My guess is that she always wanted to be in a pageant but knew that she was too average to have any success. Now when she doesn't win she can justify it because she has the tube while still trying to score points for doing the pageant with the nose hose (as evidenced by the multiple media articles she did about it).
I half suspect that she wanted the tube put back in because she kept going on about having a family/friend (I don't remember which) wedding to attend in a couple of weeks. Other people her age have jobs, lives, school, etc… so I bet she thinks the tube will get her off the hook for having to answer those questions and bring more attention to her.
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Just going back through old posts I never saw now and noticed this dislocations thing seems a bit ott LOL. They don't really move you that much for an endoscopy…
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And throwback to her first IG post. She has no specialists but had an EDS diagnosis? Going through her account is like seeing MBI developing. obv she has some health issues but it seems she's turning it into something else to fit in with all the IG spoonies
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Looking through old JBN posts and thought some of the pics JBN posts are similar!
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Oh gahhhhh, Jacquie's 'about me' video is horrible, I have Narcolepsy (amoung other ailments) and I would never explain it the way she does. WTF. I had to stop watching before I lost brain cells… (picture 1)
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CJ picture 2
Does she have a bead for every bump and scrape she gets? Save up for a special one to commemorate a dental checkup?
How over excited and obsessed can she get? 'Ohh I'm such a chronic fighter I got my glasses prescription updated cause I'm a survivor! Here's the prize I got for being in a dentist waiting room. All the staff wanted pictures with me because I'm so chronically special'
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New munchie from where I live! Found her while typing in the word "chronically" to show my friend how many people base their identity around an illness.
Anyhoo she likes to have her mum take heaps of photos of her in hospital, and for some reason she is grinning like a Cheshire Cat in every photo (1/2)
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Grinning her head off despite being in the emergency department. Super speshal might need an NG tube in a few days if she can just pretend not to eat her special purée diet for a few days longer…
Clearly she has made all these up and bought a set of little kid plastic beads and then sorted them out.
Half of these beads would be "earned" for the same thing - she would have given herself a bead for nil by mouth before a procedure, having whatever procedure, being in the hospital, missing work - hell one doctor visit can "earn" her up to 3-4 beads at a time. Beads for contacts/glasses - like a good percentage of the population has and nobody considers debilitating.
Even kids with terminal cancer don't get a bead for most of this stuff. Does she get a bead for washing her hands after using the bathroom too?
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The official website for the Beads of Courage program (which uses artist-made glass beads, not cheap plastic crap) specifically says it's for CHILDREN. Not attention-whore adults.
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Actually the pictured plastic beads upthread are from 1boy4change and you fill out a form and you get beads sent to you
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Takes enough opiates to manage pain in an elephant and then complains GI tract is slow. No shit.
I wouldn't be surprised if she was just copying his idea and then adding to it. I checked out his order form and there are no clear beads listed for glasses/contacts or missing a day of work/school.
Although I kind of hope she just stole his framework and made her own since it seems like such a waste to make him pay international shipping on something that can be found at any store that sells children's craft supplies.
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I was also scrolling through IG to look at the "chronically" ones and found this. Basically, advertising their munchie - recovering from builimia but needs toobz to purge <cough> I mean eat. Bullshit.
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Guess who's jumped on the gastroparesis spoonie bandwagon?
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…and a new munchie was born.
She even got a vog mask!
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Gotta celebrate that eds "diagnosis"
I have scoped a lot of fragile people, and I'm not even a decent endoscopist, never mind any good. You can scope a tied down person, without needing to move them collaboratively at all (don't ask me how I know this, but working in a jail where people are a little nuts and have a propensity to swallowing things that we then need to at least visualize in two methodologies according to jail rules, so it's either scope + X-ray or x-ray + CT…). There is no conceivable way anyone competent enough to be allowed to handle a scope would dislocate multiple limbs in a regular upper scope.
Bull. Fucking. Shit.
The same way I have never misspelt oesophagogastroduodenoscopy but the other day wrote 'shitfing' instead of 'shifting' multiple times in an email. Very embarrassing. And I can't spell 'differential' for the life of me (thanks spellcheck!). The words you use most or the words you know you need most are going to be the ones that you will remember best. Munchies think that if they speak 'our languague', they'll be taken more seriously. That might even, rarely, be the case - if an adult says 'RUQ pain, intermittent, for about 3 days - Dr Anon, could we please have an ERCP?' I'm more likely to believe this is because the patient is a healthcare practitioner who knows what they're talking about (though for legal reasons I normally run their name and if I don't see them qualified as a doctor, nurse or AHP, it's a biiiiiiiig red flag and no ERCP for you!). But when a 16-year-old lists me the indications for a PEG well enough to pass FRCP, I WILL ask what the fuck is going on. Sometimes it's totally innocuous (kids who have been whisk for a long time, such as young people with cancer, have had to grow up very fast and gained an understanding of what is happening), but often it's a sign of advanced Munchies.
Top news: your cardio is shit.
Making a diagnosis in a complex pt based on HPC alone is career suicide. "I get dizzy spells when I stand up" + clear echo and ecg has a much too large differential to conclude it's POTS, and some of that differential might actually be harmed by typical treatments for POTS like Florinef.
Oh god jonzie didn't stop. She's probably got the helmet because it lets everyone know she's special.
Realistically, jonzie has probably claimed some rare seizure disorder or the rarest and hardest to treat form of epilepsy. She claimed more diseases than the others combined and manipulates her 'mummy' into taking her to emergency every twenty minutes, pushing her around in a shopping cart whilst she posts about wishing she had a stroller, and having someone take photos of her more often than Aly the emoji worrier.
My achillies tendinopathy is definately/definitely (ha see what I did there..) istg that's my blur word, never have I hated a set of letters so vehemently, Ughh I completely understand the context of earned knowledge as opposed to learned knowledge, I'd never thought if it that way tbh, it just bugs me throughout these munch threads coz I'm petty as fuck.
Saged for medical vs educational literacy feelz.(USER HAS BEEN PUT OUT TO PASTURE)
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Happy birthday, Chloe. Shame you didn't feel you couldn't spend ages listing every single health problem you have. Life's too fucking short, love. You're only 19. Whole big world out there if you let it be…..
Jonzie is back! How I missed that milk. Please post more!
I don't know too many adults without serious cognitive disabilities that go around wearing epilepsy helmets. And it seems like commenters are already trying to call her out on her lies - of course she tries to say she only sees a pediatric GI. The doctors gave her IV Keppra because she was past due for her nightly dose?
That's all I could find, sorry! I'll keep looking. She's my favorite cow.
Those helmets are usually used for children and some adults with very severe epilepsy, so severe that they would not be able to use social media in the way that babybear can. It's all bullshit.
She's still going to the ER all the fucking time. Waste of time and resources.
vog mask not big mask!
this rubbed me the wrong way, as someone with eds i can 100% confirm that joints dislocating partially and fully multiple times a day, can and does happen but only in severe forms of eds, as in there is literally no collagen holding the bones in place, and when it gets to that point operations are offered; take it or leave it you're fucked and in pain anyway.
buuuuut of course the munchies sit there saying "OMFGFIGHGJFD I DSILCOCATED MAH RIBZ AND MAH JAW AT TEH SAME TYM"
that shit pisses me off. i'm half tempted to go on a blogpost rant, but that'd make me no better than them.
lets just say if anyone claims eds, i dont believe them unless they've visibly got dislocated joints, or displaced hips in their walk, putting yourself in flexible poses does not mean EDS at all, someone with EDS would not be stupid enough to purposely hyperextend thier joints like that.
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Has anyone seen this account? Momma has not one, but two children each with multiple chronic conditions. They get appointments together and have procedures together, they're "spoonie sisters" and of course were diagnosed with all those rare but far conditions such as EDS, MCAS, POTS, gastroparesis, etc.
I'm gonna be cruel as fuck here. And I'll blog and you'll want to kill me and I am so sorry in advance.
I am a physician, and probably the only pro life doc in our hospital (major UK university hospital). I'm also the husband of a wife who had a recent miscarriage, and there's not been a day for the best part of a year that we have not cried over it (I was an Army doctor, I don't fucking cry, so this was a bit of a surprise to me). I also believe everyone has the right to have a child.
But I also believe in obligations towards that child. If, say, you're on isotretinoin, having a child that's almost definitely going to start with very bad cards is inhumane. Equally if your body is barely holding itself together, whoever told you you should get pregnant did not have your best interests at heart, never mind the child's. if the child had made it to term, I would be seriously shocked if CPL had made it out of that delivery room with a pulse.
And so, I agree she should be given the chance to grieve as any other parent who lost a child would. But let's be quite clear here. There is no charity in bringing a child to this world if your body can't handle it, if it would potentially kill you, etc.
An acquaintance of mine (I won't name names) is very, very sick. So they used surrogacy and the baby is going to be her legacy to this world when she passes, which is pretty likely to be in the next few years. I understand that. To decide that you want to bring up a child in a body that lacks the strength to sustain itself and has a lot of other issues and is riddled with toxic medications (I don't know many GI meds that are even remotely safe for pregnancy) is selfish. Sorry if that hurts, but it is.
Now, every once in a blue moon, a woman comes along with hyperemesis gravidarum so severe, we have no option other than to tube or TPN feed her. Those situations are super high risk but impossible to know in advance. When you're already on TPN and fluids and feeds and meds and god knows what, you should seriously think whether your body is the best place to put a tender, vulnerable, growing child into.
This be the sermon. I am sorry for you, CPL, and for your baby girl. Whatever I think of your decision to have her, you'll all be in my prayers.
One more thing.
> she sought all the appropriate medical advice before getting pregnant and was under close monitoring .There was no reason why her having a child would be selfish or hurting said chil
Thanks for your educated opinion, doc. One: we aren't your fucking parents or caregivers, so we cannot say 'don't do it, it's stupid!' Woman on taxanes wants a baby? We can tell her it won't happen, but we can't say 'don't do it'. We're literally not allowed. Kid on isotret wants a baby? We can explain to them they'll have heads like baseballs and more issues than Cosmo, but we can't say don't do it.
So please, think about this for five seconds.
Also, the only way her pregnancy could have been monitored appropriately would have been in a specialist maternal-foetal unit. I know every one of them, for personal reasons I referred to above. I know the people who run them. I can tell you none would so much as remotely be ok with this whole charade. She would have to have major medication changes, plus adjusting TPN to someone newly pregnant is incredibly complex.
At least don't slander our profession by saying we somehow ok'd this.
That is LITERALLY the worst ballet form I've ever seen. :O :O :O :O :O :O :O
(I dance for a company and know what I'm talking about… I'm not being mean, just honest).
Cannot disagree anon. Pregnancy IS a choice most of us in the developed world are fortunate enough to make, I'm not querying the religious/moral/ethical aspect of said choice but as you rightly pointed out a choice was made.
This isn't a site where such topics are routinely discussed nor do I believe it should be, speculation around nhs trusts ethics are subjective and in no way relevant to a general "munchie" thread.
Agreed!! Not a professional dancer here, and I see it too. In all of her pictures. I laughed when she would say that she had strong feet because if those are strong, mine must be Hulk strong.
It's funny to me that she claimed to dance at the Rock school to multiple people, especially looking through her Instagram. If you go back far enough and look at one post, she says she auditioned when she was 23 and wasn't accepted. I wonder what else she's lying about.
She's said that she's a "professional ballerina"…She's a dance major. There's a difference.
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Fair point, I was the one who asked the medfag a question but I shouldn't have done. Whether CPL's issues are legit or not, she has lost a baby and that's shitty. I apologise.
Saged for no contribution.
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Babybear is very sick, you guys. Pic 1 of 2.
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Drinking game: Everytime one of these faggots post a picture of their #vogmask, take a drink.
someone set me straight if I'm wrong but what doctor is going to do TPN before tube feeds? I mean just throw down a nasal tube and try it. TPN ruins your liver not to mention sepsis risk
sage for not contributing
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Very odd that Chloe didn't reply to the question about concentrator or cylinder to deliver her oxygen. Mask with reservoir bag is very unusual in the home setting.
I call bullshit
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She's also bragging about how much money her gofuckme has raised. Tacky, even if she wasn't already full of shit
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Look at my flat stomach and my toobz…Oh i mean, the nice present I got for my birthday! Honestly, can't she go one minute without showing off her medical paraphernalia?!
"I lost 40 pounds in two weeks"
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these 'left overs' do not look GP friendly , particularly for someone so 'malnourished' who has 'severe gastroparesis' like she claims.
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Been sifting through this account and I'm drowning in milk.
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Oh look it's an American JBN
Dr Clair Francomanco is a top EDS generics doctor and clearly stated that overlap doesn't exist. If it does exist, is it so very fucking rare. These IG spoonies are straight up lying and/or have fished for bogus diagnoses from bad, bad doctors. I'll believe it when I see the piece of paper that says they have the genetic mutation for more than one type of EDS.
vEDS is rare and patients tend not to get the common co-morbidities like; gastroparesis and PoTS, although a small proprption will do. That said, given how rare it is to have vEDS and have those associated conditions, how many are you gonna see popping up on IG?
Sage but basically calling these attention seeking assholes out for what they are - bullshiters who don't even read enough on their pet topic.
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Isn't is so fucking cringeworthy? Take a stroll through their daughters feeds and you'll find much of the same thing. For example, Rachel - "I'm nauseated because of a gastroparesis flare, I can't chew because of sensory disorder and I also can't swallow because of dysatutonomia." Those poor girls. Their mom probably convinced them they're sick and now they seem to be trying to see who can collect more diagnoses for her attention.
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Looks like a self diagnosis…
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Another shopping cart rider.
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Here's Jaquie, sitting in yet another shitty position for EDS.
Spill your wine jonzie? I am no crime scene expert but that doesn't look like it was caused by 8oz of smoothie vomit.
And on the off chance it was a smoothie - I am guessing a fruit one - I have been on this board long enough to learn that fruit is a GP no-one. But of course if she is having testing done on Monday she will want to do everything she can to try to make that test say what she wants it to say. >>367410
My guess - she is making up a lot of this story she is telling. And if not, she is trying to gain the love and attention of a new set of doctors since her antics were leaked to her old doctors.
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Is that a commode chair in the background? So lazy she can't even go to the bathroom I guess.
lol it's fucking pearhead. she has her own thread, but it's on auto-sage b/c there were a lot of spergs.
here's the thread >>340026
What the shitfuck.
There is ABSOLUTELY no justification for placing a parenteral line ahead/before an enteral line. An enteral access needs to be clean(ish), a parenteral line goes straight next to your heart and needs to be absolutely sterile. The annual costs that factor in supplies and the potential risk of treating you for septicaemia are incredible.
And to these fuckers, it's like a fashion accessory.
Yep that's what it is because some days it's apparently that bad for it eye roll
Also yeah so much for EDS and taking care not to overstretch. She always sits in the worst positions forever.
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yet again eating food thats hardly GP friendly. but of course she is sooo malnourished!
It drives me nuts how much shit she eats and cries GP. I wish I could still occasionally enjoy half the shit she gobbles down on a daily basis. Which I can't because I actually have what she cries wolf about about and actually follow a proper diet so I can avoid a tube for hopefully forever. But I also don't have a cut happy doctor who isn't for severe interventions over upset tummies because you eat shit all day.
Sage for blogging ranting piss offness
Has CJ explained why she can suddenly eat real food now? In all her videos prior to getting her tube (that I saw) she was basically catatonic because she couldn't eat, and therefore "needed the tube".
Post tube, she can magically eat again. What the fuck is she up to. Not just eating, but eating so much junk food and things that'd be hard even for someone with minor IBS hard to tolerate. Also, for someone who's apparently so malnourished they need regular TPN infusions and banana bags, she sure does seem to avoid nutritious food. I know it's hard for people with GP to eat fruits and vegetables, but all I've seen her eat is broccoli, cucumber and banana (frozen, and with peanut butter mind you) which all seem like they'd be harder to digest. If she can digest those foods, and meat, dairy, pasta, processed white bread, pastry, cake, cream… Why can't she eat proper healthy food that's easier to digest? Like soups/broth, cooked spinach, smoothies, soft veggies like sweet potato, zucchini, eggplant, cooked fruit… I could go on. Even fuckin baby food would be better than the shit she eats.
Literally does anyone know her reasoning behind all this? Surely people have brought it up to her before.
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Same old antivax bs from Chloe's chronicles.
Copy and paste scientific holes and blatant lies about what is in vaccines and how terrible they are with no proof of effectiveness. Also how they have been of NO help to the human race blah blah blah (has she forgotten about small pox?). Maybe if she'd studied some level of biology chemistry or even history she'd spot her errors
I feel bad for bettergraces, she writes a basic but sane post about vaccines and Chloe Leanne sends the raving munchies after her. none of these "vaccine injured" can stand the idea that it doesn't exist. I went to look at the post for most recent milk but she seems to have deleted it.
At least none of their doctors will be supporting this vaccine fakery, unlike Babybear who is going to get her TPN if she wants it, just like CJ will get her button. kek.
Saged for not adding shit
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Think someone else is also calling bullshit
kek this bitch is not 5 stone, unless shes ridiculously short
5 stone at like 5'2 would give her a bmi in the 14s and a dx of 'severe anorexia' and having been around plenty of anachans I can categorically say that is not the case for her. She looks slim, but a healthy weight. 5 stone my arse.
sage for noncontribution
Shit I've never heard in practicing medicine on five continents, including, yes, what was technically Antarctica:
- anaphylactic inhalatory tar allergy
- anaphylaxis selectively closing off a lobe
- Pepcid, of all fucking medications in the world, being given for an anaphylactic patient's secondary reaction who needed a breathing treatment earlier
- a girl who had a very serious inhalatory anaphylactic episode with a delayed onset reaction who has no swelling around the eyes, clear sclerae, no rubor, healthy and well oxygenated skin, make-up that somehow withstood not only the inevitable flood of tears that comes when you're choking to death but also the mist of the nebulizer
Now, some people argue that you can develop a hypersensitivity, which they call an allergy (wrongly, because 1) they're morons, 2) not every hypersensitivity reaction is an allergy although every allergy is a hypersensitivity reaction, 3) see 1) to just about anything. Funnily enough these are the people who send their patients to ELISA based 25 gazillion component allergy tests, which we all know are worth a crock of shite.
Now, Pepcid is an antihistamine all right, but why the fuck would you use an oral agent on someone who is having a recurrence of a respiratory?
In the US, it's totally illegal as most medical equipment is classified prescription only. Posting medication is even worse.
In the UK, it's legal but very much frowned upon, especially where DME is concerned that is not patient property (like feeding pumps).
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Such a munchie
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Look at her fishing for info from genuinely sick people trying to convince her docs. Queen of the munchies.
A subject I have no expertise in? Curious blanket assumption, Chloe. The evidence that 'HPV vax cause FND' is flimsy at best, it is not replicated worldwide (just about every HPV->FND case is from the UK, when the same vax ought to have led to the same phenomena worldwide!), no established causative mechanism (how does a vaccine create a psychosomatic disorder in someone), and so on?
Part of me is wondering if they aren't just hoping for a UK Vaccine Court where they can bring claims without the usual amount of evidence needed and most importantly without the strict requirements to prove causation. They're hoping for a big-ass payout, and a comfy life as a professoinal vaccine victim.
They're thirsty lazy psych cases. That's all. She has an eating disorder and a personality disorder - her behavior makes both of those very clear. She's either histrionic or borderline imo.
god knows why the UK has such a cluster of munchie cows on a fairly small island.
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Alexys is actually a terrible, terrible human being. She's lying to people who are actually sick on a support group.
She had the NJ due to anorexia and refusing to eat. Medical services abuser.
What "autoimmune diseases" - most people who name them, at least.
Vog mask? So fucking what, you can buy them.
Also, PoTS is a type of dysautomnia, you moron.
She is the munchiest of all munchies. I hope karma bites her on the fat ass.
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Of course no mention of the "super severe anorexia" or the PICA. And granted she has just resurfaced but unless she first gained a ton of weight then she didn't have 40 pounds to lose without becoming a skeleton (and given her history of anorexia would have had the doctors intervening much sooner).
"I never go to the ER unless absolutely necessary" is a joke (although I guess it depends on your definition of absolutely necessary). She has spent most of the last few years self confined to a wheelchair/bed because she was such a sick wittle girl.
I think the doctors that were previously treating her no longer are taking her BS so she is either trying new doctors or making up a medical story for internet sympathy (since we know she made up stories about doctors before)
I think you are spot on. Mamabear is no longer in the picture because of her bullshit and also I contacted TEP because she was posting creepy pics of other patients. ANYWAY, I think Mamabear got fed up with her bullshit and finally called her out. TEP kicked her out because of the picture thing, so i think she no longer wants to be associated with ED stuff because she failed miserably.
It's easier to fake invisible illnesses and with the spoonie community, I think she realizes doctors/the population in general gives "sick" people more sympathy than people with eating disorders. Even though people with genuine EDs are sick.
It's all about attention and sympathy with this chick.
She did mention the children's hospital in a previous picture. However, I think it was more of a trying not to be caught in a lie defense - someone asked her what doctor she saw and was from her area so she was quick to say she sees a GI at the children's hospital - that person then said her daughter was 30 and saw the only GP specialist of the 50 GI doctors in that system. The rest of the image was cut off so I don't know if that commenter was a bit suspicious. She doesn't seem to be emphasizing the child part right now (but bet she still acts like one).
You are right - a lot of these muchies seem to try to hide eating disorders and/or other mental illnesses behind invisible disabilities, probably because of the stigma around mental illnesses, even if they are just as legitimate as physical illnesses.
She's angling for an EDS diagnosis, so obvious.
Feel a bit sorry for her because she's young but if she lost some weight, her knees might improve.
She mostly kept to herself. She actually did wear that I'm-pretendplaying-cancer-kid beanie, but whenever asked about it, it was for her drastic hair loss ofc. She called her ensure boluses her "feedings" and always acted shy when noticeably attention-seeking (showing her actual hair for five minutes, parading around in soccer uniforms and tube stickers, etc)
Oh yeah, and she was strictly anorexic (aside from the occasional detergent binge apparently), no other problems at all. And they're onto her- she caused many people restricted laundry room access, lol.
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Frustrated because she knows more about the pump than they do LOL.
ALSO she mostly just posts about "infusion day"
i used to follow this girl for the milk but it got to the point where she was just so fucking annoying, even looking at her face drove me insane.
sage for not contributing
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Anyone look at chronicallyhangry? She's annoying with some possible actual sickness but milky with how she draws it out and gives details, see the attached screenshot of her asking how to get pain meds…
Literally one of the most annoying and OTT spoonies out there. I don't think she's faking EDS but she's milky af because she thinks there is no one sicker than her and she'll let you know it. She shits up the EDS subreddit with her bitching and self pity too.
Yet strangely she has no problem posting in the make up subs and having hobbies and interests like that. From the way she talks you'd think she ought to be in an icu bed, but it's all massively exaggerated.
I'm on LOA for a spinal fusion and second microdiscectomy on a different disc. I am on a low dose of oxycodone. Know why? Cause I have an acute injury and I fucking ASKED for them. Y'know, cause I am in actual pain. Girl needs to be a grownup, use her mouthwords, and ASK for them if she is suffering so much.
Also, y'know why docs are so reluctant to prescribe pain meds girly? Cause they are fucking ADDICTIVE. They should not be prescribed for chronic, not-too severe illnesses because that is how junkies are made.
In addition, Mr. Nurse was probably in a bad mood because he had to make a house call for something that could wait until morning. He was called at 10:30 PM. He got there at around 12:30 AM according to Ms. Princess-and-the-Pea, and I am sure he was fucking TIRED. When she called he could have been in the middle of an episode of Tim and Eric, or reading Ray Bradbury, or in the throws of a good fuck with his SO, or, y'know, SLEEPING. And Ms. Priss needed help with her spoonie nonsense. I am sure he got there and didn't want to put up with her shit. Okay, I am done now.
Sage for kinda blog, but mostly rant.(USER HAS BEEN PUT OUT TO PASTURE)
Sorry, in the above rant I was also referencing this post as well. Pain meds for actual pain make me stupid.
Image board. Screenshots plz.
yes she is so fake. so, so fake. of course she claims more than one type and claims veds eyeroll
I don't think she has any kind of eds, but raging hyperchondrija and mental problems.
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Calling it "chemo" is so attention seeking. You know you'll get more ass pats that though.
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Wasn't Nicole giving eating a break?
Umm, if eating real food causes vomiting like she claims then I don't necessarily think that going out to eat is the best idea for a date - no matter how "normal" it may be. (Not to mention the likelihood that she would then vomit up the tube).
But I forgot - its sooo easy to put your super serious illnesses on hold when you want to do something fun.
Next she is aiming to get a news article that states "he loves me even with my tube".
Annnd the weak bitch is private.
We know you read here Nicole. You're fucking pathetic. Do your fucking therapy, get your fucking head on straight, and do something good for once in your miserable, whining, pathetic life.
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JBN Tube helps her with body image problems! Go to therapy about your body image problems you fool! A tube does not make a healthy brain!!!
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Lolcow won't ruin your "relationship" you will!
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Any thoughts on Toonauseous
Most photos show off the tubes and super strange posing going on as if she is
GP - check
OTT about getting tube to use kids tubie pads - check
Not full on munchie but has ingredients in the making although some health issues may be accurate
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Pic didn't attach sorry
fuckin top kek right there>gp gainer
jesus christ these munchies get more ridiculous by the day
nobody gains weight if they arent getting enough nutrition because its physiologically impossible
see: any country in the world where malnutrition is rife
sage for no contribution
No. Just, no.
Unless she lives on Mars where healthcare works very differently, a tube would not even be discussed before a GES and possibly an EGD, and a lot of other tests. Not only is the ddx of GP symptoms bigger than Jaqui's allegedly starved fat pads, not everyone tolerates tube feeding at ALL and we will not put anyone through a PEG insertion, complete with gastropexy and cutting through the gastric wall and other unpleasant crap, unless we know they manage fine on a nose hose.
Jesus. The lies.
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Babybear hasn't even had testing for gastroparesis yet. Here she is, wearing her helmet, mocking disabled children and what they go through.
She was in the pro-ana threads.
Adult young woman under the care of a children's hospital and paediatrician, constantly taking herself to the ER.
Lied constantly about her weight and made out she was sicker than she is. Yeah, she has anorexia, no she's not on death's door or she wasn't as often as she made out.
Called her doctor "mama bear" and faked texts from her pretending they were oh so close and had a special bond. Got called out on this but not sure what happened.
Diagnosed with PICA and ate a lot of laundry detergent, hence ER visits but she made out it was her sooper serious anorexia, kidney issues and heart issues - no actual evidence of this. Well known for making herself sick by eating soap.
Called herself a sick kid all the time and glamorized every IV and wheelchair ride.
Soooooper dramatic about everything healthwise.
Took up a lot of time of childlife professionals and other medics who could have been looking after actual sick children.
Took photos of other patients and posted on social media.
Someone - maybe from here ? I don't know - contacted the IP programme and she deleted her hilariously entertaining IG.
Now she appears on social media trying to munchie it up. She is the gift that keeps on giving…..
(probably forgot some hilarious stuff that she's done. )
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Medfags - doesn't zofran delay gastric emptying? In the UK, they make you stop so many drugs for quite a while before the test, zofran is included.
And this new epilepsy thing is just silly. She never mentioned it in past antics and was driving. Now it's so severe that she can no longer drive and needs to wear a helmet typically only worn by children or adults with severe cognitive delays. Considering she claims she is basically wheelchair bound it's not like her fall risk from a sudden drop seizure is likely.
She claims she was just dropped off for the test so who takes all her stupid pictures
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this is the shit I hate..plain? No. Dump a "tiny amount" of pepper knowing it's not only bad for digestive issues, but her acid reflux that she has started crying about more and more. Note the close up picture of her bland meal. You can see a shitload of pepper in a pile right next to the mustard..and it continues on the food. Tiny bit my arse.
I wish they'd admit her or place her in a temp. Home to monitor her 1:1 and know exactly what is going in and what's going out (and how) and let her have zero control over her meds to clean her up before testings and after testing and any treatment for a few months..she probably throw a fit at this but she'd absolutely love that..all that attention and no other responsibilities but be sick while Drs can get an honest picture of her health and what she does or doesn't have..not what she does want to fake and "brag" about online.
I wonder if we will hear something like this soon,"I'm the most severe anorexic in NJ and now I have the worst GP temple has ever seen!"
Waiting for her to come back with some odd ball diagnosis
Anyone else bothered about her immediate jump on GP awareness month Aug 1?
Sage for blog-ish comment. She just really gets under my skin.
I honestly think dani needs to be in a residential setting. Not for her million imaginary illnesses, but for her glaring disability and being dangerous to herself.
I'm totally convinced she has a cognitive disability or learning disorder as well as whatever mental shit she's got going on. She needs psychosocial rehabilitation and a carer to stop her engaging in faking diseases and drug seeking in the emergency room, not access to amazon to buy medical equipment and Instagram.
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Couldn't agree more anon!!
I honestly feel like if she was in the correct environment shed actually be a decent productive part of society.
Maybe something like an assisted living facility, with her having some sort of mental handicap she can even get a life skills coach and groups to help her get her shit straight.
She would have it made at assisted living housing depending on how much she milks it (which will be a lot as is with her) plus way more attention. It would also protect her from herself. To think of it I'm surprised she hasn't thrown out
"I'm the worst in state. Drs have never seen anything as severe/ anyone as complex, I need 247 help because I fake pass out all the time and my heart is so bad (yet the Drs have never been concerned about me living alone passing out all the time..surprise) so I have to move into a nursing home/assisted living."
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Fucking lady pretending to have BPD, autism and transgender is OKAY WITH SELF DIAGNOSIShttps://www.youtube.com/watch?v=K0KVmS5KBkc
Lowers the voice by editing the audio
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FUCK BORDERLINE NARCISSIST PEICES OF SHIT
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She must be thrilled with the abundance of asspats she's getting now.
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I never wanted to admit it but the more time I spend here the more plausible it becomes to me that some spoonies revel in the overall riskiness that comes with central lines. Terrifying to think they might be neglecting the proper care of their lines or ports, sepsis is nooooo joke and nothing to mess with, so the fact that it's so much more prevalent on Instagram than in normality is even more disturbing. Sadly, deadly infection-sepsis-ICU = sooper serious and that's what a lot of these people seem to thrive on. It was unthinkable to me at first but I can see it now. Sad.
sage for not contributing
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Note the stupid kiddie bag hanging up.
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Sepsis for 5 days but well enough for selfies where she looks healthy? what a cow
They do not discharge you from hospital with sepsis. They just do not. It's very serious and can kill untreated. It can kill even when treated.
Lies. Lies. Lies.
Sadly, they can
, and not only in the Sweet Land o' Press-Ganey (of thee I sing… etc). My former boss, an absolutely fantastic gastroenterologist who now runs a major endoscopy unit in the UK, is in hot water now because of one of them (nobody well-known or even on Instagram, I think - just your garden variety Munchie who wants to be that onemorestep girl). Reportedly (and when I say reportedly, I mean corroborated by several of my former colleagues who were present), this young lady (we are talking young adult, early 20s) turned up at his outpatient clinic on a GP's referral with mum in tow. That in and of itself tends to be odd/suspicious but mostly either a vulnerable adult or young person dealing with some very grown-up issues (think getting a terminal diagnosis at 22 and having to decide about a care plan…). Well, this girl was neither. She was politely described as being 'in a healthy weight' , no prev GI history. So mum produces a letter from a (private) gastroenterologist (whose speciality is, to put it politely, not functional gastrointestinal disorder… gastro is a big fucking field, and with just about enough idiots for every corner of it) that went something along the lines of 'patient has delayed gastric emptying according to scan (enclosed), give her a PEG/J and deal with it yourselves, peasants!'. To which my former boss probably thought 'piss off' and anyone who can afford a GES and a GI consultation with this guy privately should pay for their own fucking tubes. Still, ever the gentleman, he explained mum and daughter that he's sorry for any unreasonable expectations that might have been created by the private gastro, but we don't normally do procedures without our own work up and we would not consider performing a PEG/J insertion without first admitting her, nose hosing, ruling out various treatable causes etc. - all stuff that Doc McOverpaid-Stuffins should have done instead of pocketing his fee for a half page letter that consisted mostly of his signature (what a cock). He even went beyond usual procedure and offered to do urgent bloods on her and if they looked dangerously off, she could be admitted urgently for investigations, but tubes are a last restort, and she can't expect to just turn up with a letter and get it inserted.
So she broke down in what was described by one of the eyewitnesses as 'making up in drama for what it lacked in genuineness', an observation that's still making me chuckle, and stormed out of the room, with her mother in tow, who was loudly threatening to report him to the trust. And so she indeed did, and now the Trust is investigating this l young lady not getting her way as a breach of the obligation to provide adequate care… what the fuck, honestly.
The thing is, these fucks are exploiting a system we have in place for good reasons. There are stringent oversight mechanisms on what I can do to you even with your consent, how I have to do it and whom you can bi… I mean, complain to when things go bad. And while getting hauled into an inquiry about a patient complaint is a nightmare, especially the first time around (or, as we tend to joke about it, the first 30-40 times… after that, it gets routine!), few doctors would disagree that patients shouldn't have some level of recourse if they feel the care they received was inadequate. Sadly, however, these processes attract two kinds of people like flies: Munchies and people who read about some treatment in the Daily Fail that helped someone's great-grandmother's neighbour's dog sitter and now they want it, whether it's for their disease (or whether they indeed have any disease!) or not. We keep getting these 'are you prepared for this year's flu epidemic?' e-mails at our Trust pretty constantly from August or so onwards, with helpful tips like 'wash your fucking hands' (thanks, Dr Lister, never heard of that one!). They should instead send us some warning on the impending epidemic of Munchies. Just when we got pretty OK at weeding out people who wanted to go on welfare age 18 and make a career out of it, this shit starts up. Not to put a too Malthusian point on it, but these people spend their most productive years with Instagram Syndrome, blocking beds and racking up six-digit hospital bills they'll never get to see. They get expensive medicstions just to brag about them or make 'pill art' (Christ, don't get me started on that one!) from them. What will they do when they've decided they've had enough? They'll be hopelessly behind their peers who went to university and actually completed a course and got a job. Some will be our beloved full time activists, explaining to us the poor benighted how we just don't know enough about their condition (oh, I'm sorry I did not have time to read your unsourced two page pamphlet about your specific brand of multiple chemical sensitivity syndrome, I was busy trying to see if a young father of three with stomach cancer might be a candidate for a new drug that might give him some more time with his family, but please do chastise me and the whole medical establishment for our ignorance of your terrible plight!), but the rest? I mean, I'm honestly asking here. What the fuck is the endgame here? I used to think it was an easy life on benefits, but that won't replace the attention and intensive treatment they're given now (treatment we would, by the way, occasionally withhold of elderly people because there's just not enough money to go around - thanks, Munchies! - and treating the young and possibly someday fit has always been a priority ahead of prolonging life). I just don't see where this is all going.
Sage for angry medfag being angry.(USER HAS BEEN PUT OUT TO PASTURE)
Where I work has a handful of TPN patients. They come typically from three demographics: the most severe Crohnies who need to give their GI system a rest, people with malignancies and/or vomiting problems we can't easily fix otherwise (including hyperemesis gravidarum) and people with FGIDs. One of the persistent mysteries is why FGID patients have higher neutrophil counts, are in a better state than someone suffering from debilitating Crohn's or liver cancer with intestinal mets, and aren't on anything that ought to suppress their immune system (like, you know, chemo or or immunosuppressants for Crohn's), and yet make up the majority of lines removed for infections.
There was a complete nutcase of a girl who kept fancy mice and let them nibble at her fucking central line, because it was cute. And put it on Facebook. I'll now go and write 'I will never Facebook my patients again" a hundred times. She's still alive btw, despite repeated line sepsis and a fortune spent on caspo or whatever the fuck they give for whatever the fuck her blood grows, which I presume is almost every common and uncommon nosocomial and community acquriable bug because she lets the fucking thing dangle out of whatever she's wearing, in the open air!
Yes. And it's becoming a problem.
I've described in detail how they do it in fact previous post. I won't repeat it because as someone pointed out, some sick Munchie fuck might use it to, well, use it! I have since heard that people actually discuss on ED forums that if they go to their docs asking for a tube it will be given to them as it will be seen as a sign of a willingness to heal and gain weight, then they can purge through that to their heart's content. Needless to say you can do a lot of damage to yourself doing this kind of crap, duh.
Zofran is popular because it's expensive, fancy, used to be for chemo patients only (I believe it's only been approved for non-CINV for a few years) and other than constipating, it has relatively few side effects. Domperidone causes prolactinaemia which is not great, MCP can cause fairly unpleasant extrapyramidal symptoms and most other antiemetics are basically glorified antihistamines that make you too tired to Instagram your cool medical adventures(tm)! The newer ones like the NK1ergic antiemetics (aprepitant, rolapitant etc.) are still not approved by insurance for chronic vomiters although people with cyclic vomiting (which is not chronically persistent but chronically periodic) can get it. Same for the other 5-HT3 antagonists - the others are much more expensive and as such insurance regulates them more tightly for non-CINV and/or postop nausea.
Sage for boring medfagging.
The whole 'too sick for hospital' thing fucks me off more than anything else. Doctors and nurses train for years and years but suddenly you're too special to be treated by them? Their enormous amounts of training just don't apply to you? Yeah right…
Just go take a look at the ICU, palliative oncology or PICU. I'm pretty sure if hospitals good enough for them, it's good enough for anyone.
Sage for rant/no contribution
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The mom literally bragging about being able to parked in handicapped spaces because somehow both daughters have cards to do so. Shit like this drives me nuts.
Reminds me of a cardiology tech who works in the same hospital as I do, whose job it is to walk around giving EKGs all day (to inpatients and outpatients) but always parks in the absolute closest handicapped spaces in the main patient parking lot. Fucking lazy, selfish losers. These people use much more than medical resources. They insert their irrational lifestyles onto innocent public bystanders, as well.
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See, there IS such a thing as being too complex for a hospital. If you have a one in a gazillion cancer or a rare chromosomal abnormality, you may be well too complex for the Rural Hospital of Bumfuck Egypt. That's why we have secondary referral centres (big hospitals with wide speciality units, so for instance having a neurosurgical service would be a wide speciality unit), and tertiary referral centres (such as specialist cancer hospitals like MD Anderson that may have a specialist service for, say, the removal of particular types of complex acoustic neuromas). In general, what happens when there's a complex case is that a multidisciplinary meeting is called and then a referral is made either to deal with the patient altogether or just to deal with a particular aspect of their care. There are whole jobs within the NHS as well as in every US hospital I've ever worked at that coordinate clinical services for complex patients, and relatively, these people are NOT a complex case! A complex case is the diabetic heart transplant recipient who has a MALT lymphoma, which is a 'how the fuck do we treat this guy without killing him?' situation. These fucks seem to use complex as the new equivalent of 'waaaah nobody understands meeeee!'. Picture related.
Said it far better than I could.
There's such a thing as being too complex for A hospital, but not too complex for ANY hospital
Spent some time browsing this woman's Instagram the other day, and I've got to say, there's a pretty fucking concerning dynamic going on there.
It's not so much MSbP but more like a weird mix of codependency, mental illness, shitty socioeconomic environment causing a sort of emotional deprivation that they are filling by over reliance on caregivers and adopting a sick role, and a lot of other weird shit.
It's a damn shame that CPS did not look into them earlier. I hate to sound like an asshole but I don't see a bright future for either of these girls… or a long one. They are being overtreated and overmedicated with serious shit that DOES shorten lives, and their mother seems to almost get off on all of this. Add to that the weird religious angle and the whole thing is a trainwreck. Gee.
Sage for no real contribution. Sorry.
I feel so bad for the daughters. How old is Caroline exactly? It all feels very MSbP to me. The mother is actively trying to get Caroline a feeding tube AMA, she reports the doctor saying he doesn't want to place one…
And she forced them to put Caroline under GA for her endoscopy when the anestheist didn't want to do that. She's going to end up killing them. Both girls look miserable and seem isolated af.
lol these "10 completely self-sacrificing ways to coddle the feelings of someone with borderline personality disorder" lists. they're always written by histrionic munchie-types who contribute nothing to the world, see themselves as "neurodivergent", and think it's ableist to be appalled by shitty behavior.
some latch on so hard to bpd diagnoses (real or self-dx) because they love its association with "trauma".
i think the autism dx is just in their defense arsenal to protect them from criticism and in some cases as carte blanche to have daily meltdowns.
Spot. On. These girls will never lead fulfilling lives. Imagine what happens to them when their mother passes? Who will take care of them? They clearly can't take care of themselves.
Caroline can barely go out of the house without falling into some sort of psychosomatic induced "anaphylaxis." It's tragic, really.
Sage for assumptions.
Not always. It's a general rule to pull lines with suspected sepsis however there are always differences in each patients care. When sepsis is not full blown sepsis and obviously not septic shock, sometimes they can save the lines. This is part of why early treatment is so important. Treat it before it gets bad and have better outcome. (Again, not always)
They can take cultures from your line without cutting the inner tip off, depending on what signs and lab results show.
Often when one comes in ER with suspected sepsis cultures are taken first and the assessment determines what to do..too risky to use the line, an IV is given and use of line is stopped, if the patient is doing ok, and they can save the line that's the course of treatment and they will start use of the line once the repeated cultures are improving after IV antibiotics for a while.
However it seems more common to not save a port line.
Some who have had many lines cannot get many more lines, every time they place one it's a big chance to scar it up and make the same place unusable. People who truly depend on their line cannot loose all access so that plays little role in trying to save a line too. (We have 6 places).
Occasionally they will give a picc instead of IV, but midline is more common and safer.
And of course if they can't save the line it's pulled asap and once the infection is cleared up a new line is placed.
It's not uncommon to have a person with a line who can go without a line if needed and that's when the fight can come up for the munchies as they are told no dr is giving you a line for saline because it's harming you (remember that oath!) You can go to infusion place like the others. The part that back fires is once discharged they have a new line because the antibiotics they need can't go in an IV. Some people don't get it removed and change Drs and story. Big back fire there lol. But thanks to medical records they don't get to play that game very long.
Because munchies are usually idiots, they don't realize the cultures will show what they did to infect themselves.
People truly sick who have record of being in and out of hospital recently that show line infections are pretty much the only excuse when it comes to what type of infection it is.
Ex- munchies has sepsis, line grew mssa. Someones been touching it
Sick person has sepsis, line grew mssa. Person has been in hospital a lot recently, hospital acquired mssa.
No they don't, but I think she is just exaggerating the treatment she's needing.
Depends on the type of infection but it's very common for people to need IV antibiotics for weeks after discharge, so they are sent home with another line (picc usually and then port or line after antibiotics are done with and cultures nirmal, or total line removals if previous treatment is stopped) And have IV antibiotics to do. Sometimes it's 247, every x hour. They will have a gravity ball, or a bag and pump, each infusion is a few hours. Some will have a nurse to come out and do it every dose,the trusted some have to set alarms.
I'm assuming she will cry she has sepsis at home for the next 3-8weeks while she needs the antibiotics instead of being thankful the worst is over, and she can continue treatment in the comfort of her home.
Btw if she is on vanco. They do level checks and if she is not doing the antibiotics right they will know she's missing doses and end up in their radar..red flag
The cultures and other labs and other tests can show what's causing the infection.
A lady tpn dependent had pneumonia that put her in ICU because her pneumonia caused sepsis but her line was not infected. They were able to save the line, but stopped use temporarily but once antibiotics were in her and the infection didn't attack her line they started using her line again.
It's a small window but it happens
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She thinks she's so fucking special.
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JBN Still attention sucking munching! I bet this challenging is the tip of the iceberg!
Probably hoping for everyone to adore her but she is so needy for attention that she will be loving this too!
1 of 2
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JBN loving that someone asked about her tube! I'm so special I have my tube back
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Bet she sent herself a message/s to say how beautiful she is.
Not really. As long as you use alcohol before using it it's fine being out..they make covers these days that have alcohol pads in them and just screw onto the filter of the line to protect it. They make the same thing but without alcohol too.
Granted they'd have to use this stuff which they probably don't like they are supposed too. But having repeated line infections and the type of infection the hospitals/drs eventually catch on
Munchies have to be a super special type of idiot.
Some people have real/legit reasons they let their line hang outside their shirt instead of under. But the ones here aim for attention.
When out and about or people coming over or whatever the people who have legit reason to let line hang out, they simply coil it, make a tap tag and safety pin inside the shirt and let it hang out when home.
Anyone who actually has gp avoids the foods that make them sick, simply because no one enjoys
feeling like that. If her precious ice cream really made her that sick, she wouldn't want to eat it, because she'd be miserable. Same with Jacquie and all the shit she eats.
With her having some sort of learning disability she probably just doesn't understand how to do the fodmat diet.
And shed loose all the junk she loves to eat and drink and cry about it being costly so shed start a fit about it not helping after a week.
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I thought she had a NG tube not NJ..? Assumed NJ could not be placed at home by lay person.
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I'm not gonna debate the varying abilities of people with disabilities, but functional literacy and the ability to post photos and complain aren't the same thing as being able to control her impulses, follow directions, or keep up with behaviour that isn't immediately rewarding.
One person with probable disability being a wanky piece of shit isn't a reflection on the rest of the disabled population, and you're taking it a bit too personally imo.
NJ tubes J tubes must be placed under stay or fluro to help guide it in with a peel stealth and guide wires to make sure it is properly placed as using it out of place can do some scary shit to you.
NG tubes and G tubes can be done by yourself or someone else at home.
A GJ tube must also be done under xray or fluro for same reasons as J.
If she had issues with repeated NG tubes I don't get why they didn't place a peg. In her case it would be a small peg and placed as high as her anatomy allowed to prevent purging. She claims spoonie dying points and an upper gi to place the peg and new bragging rights about being so sick she has a permanent tube now.
It's obvious her Drs aren't thrilled about her having the tube, but safety and health reasons peg makes more sense to me specially if she only used it at night and removed it during day.
Its usually outpatient or one night stay, and when they discontinue the tube crap they remove the peg or leave it if they think she will need it again but she isn't trustworthy and would fuck with it however she can.
It heals up pretty fast. They can place another if needed and we know she would love to have the scars to brag about.
Many birds, one stone.
This one is almost as pathetic as mls.
I read that as the tube she had placed was the last resort before an NJ but maybe I'm wrong
Sage for my opinion
MLS definitely just wants a tube so so badly.
I get a feeling that if she doesn't get a tube she will tube herself again with another NG (for the fluids she refused to drink because of her severe anorexia and it helped her keep it down despite it going into the stomach and while eating fine enough to gain) and pretend the Drs mentioned giving her a tube (she isn't going to be the one bringing it up every 2 seconds of course)
And then set another gofundme for a ridiculous amount because her insurance won't cover a pump, feed, and everything needed for tube feeds. When the truth is she begged for a tube, got denied by more Drs, bought ng tubes, tubes herself, can't afford to buy the formula because her insurance doesn't know she's on tube feeds (self tubing) and she has no medical necessity for tube feeds, there for no prescription. And she will make excuse after excuse for not going back to temple appts. Specially if things dont go the way dani wants it to go.
I just have that feeling about her..her whole I'll make myself sick to show them attitude she has. She'll come home and self tube, make up some story about how severe she is and they made her get a tube before going home instead of coming home with normal test results and no tube. (I'm so curious what they will find out with these testing and hoping they will get her on a better treatment plan. She's def. Got GI issues, just not like she claims. Anyone notice she stopped her whinning about her severe irritable bowel syndrome about the same time she cried about swallowing issues, gerd causing barriers and cancer and needing throat stretched?
Get ready for some milk from her testing "week"
Some of her tests require a tube down the nose.
You don't have to be a genius to use IG.
I do think it is likely she has some sort of at least mild cognitive delay. In the one vlog of hers that I watched she mentioned that she was born fairly premature. The outcomes for preemies are much better these days but given her age, I wouldn't be surprised if she had some sort of mild cognitive delay or at least a learning disability. It also sounds like she was over-protected by her parents. I don't know if she realizes she is doing it or not but I think she wants to be sick/likes being sick because that is what has gotten her the most attention in the past.
I do think she isn't really making a big effort to try to get better via diet changes. Seeing as she doesn't appear to do much besides go grocery shopping, she should have had plenty of time to "research" the diet so many people have recommended. I am sure that if she did she would complain about it being too expensive (she strikes me as the type of person who buys a lot of cheap things thinking that they are a good deal and ends up spending a lot more money than if she just bought a smaller amount of quality items).
She wants the tube because she needs some sort of physical sign that she is sick to gain sympathy points. For her, any attention is good attention.
What frustrates me the most is that she mentions that she has some mental health diagnoses but goes on and on about the GP and anorexia. The other diagnoses are likely the root cause of most of her issues - focusing on them would be more effective but that would gain enough spoonie points.
I only wish that I had screenshot of the IG story where she complained about blurry vision and her glasses were super smudged and grimy.
As a medfag who specializes in the actual swallowing processes, this one confuses me a bit. I don't know much about psychosomatic issues so maybe thats why but -
The food may be bypassing her oral cavity but its not bypassing the swallowing mechanism.
Unless you have some sort of nerve/structural damage, everyone swallows hundreds of times a day - regardless of whether or not you eat actual food. (If you didn't then you would be drooling constantly). She is still swallowing with the tube in. There is still a physical object (the tube) providing some sort of sensation in the pharynx/larynx while she is swallowing.
Just seems like a weird explanation that I am sure she has convinced her doctors makes sense so she can have her precious tube.
But what if temple actually finds something?
Something really bad?
Something really bad motility related?
While it's unlikely she would have GP not self induced, or anything a few minutes from the time frame for GP, I still am nervous for the results (sad I know lol) because they will find stuff, not sure what, and beyond worried they aren't monitoring her/admitting her to make sure she's not self inducing shit.
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On today's Jaquie vlog:
-She talks about how she does Monday mornings on the phone "advocating for herself" for the treatment she needs.
- She's getting a special shower chair.
- She's prepping that poor dog's food with meat from fucking Walmart. No wonder the poor thing got sick.
- "OMG normal things people have to deal with are happening, everything is so hectic!"
- She's getting Life alert because she is in so much danger of just dropping dead, hey conditions are that serious. I'm pretty sure she had mentioned an angiodema attack in MONTHS. She needs to learn to just fucking sit down if she's going to pass out.
- "OMG I had to FIGHT FOR MY LIFE" bullshit bitch.
- She's have a major breakdown because she's taking a year off of school, like people do ALL THE TIME. She claims she can't even do online classes, which I don't no understand.
- She's going to change her major because they think her ever working full time would be detrimental to her health.
They may find that it's self induced through terrible diet and purging, they may find nothing, but I think it's most likely that she will have some minor damage, no gastroparesis or ibs, just some sad abused guts that would be fine if she ate some proper food and drank some water.
Dani will choose to interpret it as an imminent death sentence, start a new gofundme for vaguely related medical supplies, and post twenty times a day about being the worst case of gastroparesis anyone has ever seen.
Nah, dying isn't what they want.
What they do want is the hushed voices of everyone around their bed asking if they're confortable or if they need more morphine, or to be brought treats when everyone comes to visit, all the attention and love and caring people naturally heap upon the very sick and dying without the inconvenience of actually dying, or having a terminal illness.
They want the painkillers without having to feel any pain, and nothing to do but rest and soak up all that attention forever.
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I found a Munchie Queen on Twitter.
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Also this IG Spoonie who has uh, documented their endoscopy…
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Omg. Just. Fucking. Why. This girl literally has her tubes hanging out in EVERY picture, and in some it's clear she has cut or sew holes into the clothes to specifically bring the tube out. Disgusting.
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Tuck that shit in!!!
How do you even get obese with a tube? If she was obese before she had it she should by all means have lost significant amounts of weight before and after getting it.
Is she eating food as well as pushing nutrition through the tube? Running 5x the amount of formula she needs?
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Oh lordy. I found a self-aware one
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It's honestly quite impressive. At least she admits that she wants to have a disease instead of just outwardly pretending like she had it
In general, there are three different types of line infections: site, tunnel and bloodstream (called 'proper CLABSI', the other two apparently aren't well-behaved enough). Site infections are simple to cause but because the skin has a fairly sane immune system, it rarely leads to severe disease in immunocompetent Munchies. It's also extremely painful. A tunnel infection is harder, and generally means the line's got to come out, but the principle is the same - introduce some infectious agent sufficiently deeply past the site and into the tunnel. Finally, CLABSI sepsis requires almost inevitably something to be pushed into the bloodstream. Inadvertent CLABSI happens by accidentally touching a port gripper needle against something or not swabbing hubs/bionectors/whatever the fuck your call them. When induced intentionally, I've seen a wide variety of absolutely fucking insane ways of doing it. All of them are playing with serious fire, and the contribution these fucks make to antibiotic resistance to last resort antibiotics is definitely appreciated by bacteria. Much to their sadness, Munchies recently learned we have discovered blood cultures around, say, the century before last, meaning that we can identify the pathogen. We know what pathogens turn up where, and if I suddenly see weird shit in the bloodstream of someone with a central line and other warning signs, we now have VERY sensitive methods that can identify exactly what that pathogen is and where it came from, including whether it was injected at a large volume (your average Munchie is not a microbiology tech, she WILL fuck it up). The saddest case bar none I've ever seen was FII by inducing dilute faecal matter (yes, really) into her bloodstream. The pt had a stool transplant (yes, that, too, really) a while earlier and we thought hey… everything's possible. Some antibiotics later and she was better. Then half a year later, she was worse again, but this time far less fulminantly than initially. Thinking this was because she did not put enough poop down her midline rather than because she developed some degree of resistance, she decided to give herself another central line enema. To the predictable effect of a piece of some solid matter getting lodged in a major blood vessel and causing a devastating stroke that killed her. It made for a depressing M&M, and that's despite the fact that we are all sick fucks who laugh about this sort of crap. Sometimes.
So basically she's fat and wants to get T3 to lose weight rather than get off the pills that make her nice and lazy and stupid and mellow and slightly high,
Fuck, I am glad I did not end up in endocrinology. I lack the poker face required to tell these fucks that their thyroid concerns will be seriously investigated.
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Toonauseous an OTT who is jumping on the Sarahah bandwagon and throws a fit when someone questions her. She wants them to not be anonymous. Well don't idiot that's the point.
Think a lot of lurkers from here will be calling it like they see it and leave negative yet realistic comments about these attention seeking munchies.
They moan so much about this site and the hurtful and dangerous things being said about them cause it's just "not fair" then in the same breath sign up to a thing where you are asking for anons to do exactly what they protest about!
Sage for not much contribution other than irony!
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Practically half population has a haital hernia, love. It's also often an incidental finding. She must be devastated that she's not got the beloved gastroparesis diagnosis. Basically, if you read between the lines of her posts, they haven't found anything wrong with her. I'd bet $100 that she's purposefully starved herself, judging by how happy she is to be admitted to the hospital.
Actually pretty easily.
1) Shitty dietitians who suck at calculating BMR. Sorry, but it happens.
2) There are vast interpersonal variations when it comes to metabolism and how much you need of what. Many of these we don't even understand and most we cannot even test for. Thankfully in a normal situation, we have a pretty decent way of understanding that eating certain things makes us feel good and makes us thin while eating other things makes us fat and feel sick. And so eventually your body figures out its individual composite diet. A tube feed, however, has to be for just about everyone. There are special feeds called elemental formulas that are basically predigested but they're expensive and a bad idea unless clinically justified. Some patients rapidly gain weight because their glycaemic control is so crap, they absorb all the carbs. This is especially a problem with certain ethnic groups who normally have a very high protein low carb diet: I've seen a number of Afro-Caribbeans with lean or even emaciated physiques balloon up on the regular formula that doesn't accommodate the fact that they're genetically geared towards a low sugar high protein diet (the same reason btw is why a lot of Polynesians get very obese and die to heart disease if they're put on a carb-rich Western diet!).
3) Most of us lack self control to the point that even if we are nauseous we desire food. It's hard to be NPO for a few days, being so for weeks is torture, and so they invent bullshit like they have 'safe foods' or plain suction it out of their bellies after consumption,
4) It's only when unable to eat that you realize how much of our social interactions revolve around food. The pace of a dinner conversation, for instance, is geared towards eating and talking, not just sitting there with an empty plate. It can get very awkward very easily. Hence the temptation by many to still try to eat. That's despite what they say an absolute no no with an NG or NJ, and even in the case of reenteralising a patient, there's an order to it and it has to happen under medical supervision. Plenty of people got very fat on a combination of no exercise, lots of steroids and hi calorie tube feeds.
Slow oesophageal passage is virtually never symptomatic and if it is, it presents as a predominantly dysphagic symptomatology (aka choking), not the nausea/bloating of profound dysmotility.
Lie better, Carmel.
>>368670>The sepsis has been confirmed I have a collection of bacteria from my bowel infecting my blood.
I would say that these details alone are concerning. How would intestinal flora end up in the blood? Occam's Razor, fam. The simplest explanation is usually the correct one. In this case the most obvious answer is that her PICC became the vehicle for introduction of gut pathogens.
A few things to note:
1. Negative line cultures do not necessarily r/o line colonization. Many times these infections will not show until the explanted catheter tip is cultured.
2. Unless she has some kind of fistula, the only other MOA is exogenous introduction of pathological flora.
Make of that what ye will.>>369207
Wow she didn't even to bother finding out the usual treatment or symptoms for the infection she faked, how lazy can you get?
I thought that munchies went to absurd lengths to look as sick as possible and would have at least similar amounts of knowledge to a med student from researching symptoms to induce or fake. From what I've seen here they're all extremely ignorant about health/biology/medicine/what doctors actually do and just a bunch of lazy fuckers who want to collect tubes and walkers and diagnoses like they're gym badges in Pokemon
The worst are the oppression point collectors.
Somebody fifteen generations back might have had a feather in his hair? #fuckDAPL #waterdefender #proudnativeamerican #indigenous!
You have a cough? #asthmawarrior.
Sore joints? #arthritisfighter.
Your grandfather's fifteenth cousin seven times removed's hairdresser's friend's kid knows someone who has cancer? #gogoldfor<nameofmonth>
Somebody expected your largely able body to perform a function it should be able to even if much more grievously disabled? #everydayableism #endableismnow
You once kinda fancied a girl at school? #lgbtpride.
I don't mind most of these, but I can't stand diseases and health issues getting mixed in here like they're badges of disprivilege to be collected.
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Someone posted to say they had a normal emptying study after having years of gastroparesis and having been previously diagnosed after an abnormal one and babybear replied…………