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Discuss people who feign or exaggerate chronic illnesses and medical crises for attention and asspats online. Previous topic focused primarily on Instagram accounts, but posts from blogs and other social media sites are admissible.
Previous thread: >>>/snow/439383
(yes there are A LOT; IG unless otherwise stated)
chronically_carmel / queerzebra (tumblr)
chloeschronicles_of_illness (insta) / Chloe's Chronicals of Chronic Illness / ChloesVaccineInjuryJourney (facebook)
diagnose rheuma (facebook)
gorgeous_gatorade_princess / unicorn.spoonie
outrageously_helpful_orion (jaquie's friend)
shelbiepaulley / beepaulley
Active Cows with Their Own Threads:
kelly.ronahan / me_and_the_mr [ >>>/snow/381123
chronically_jaquie [ >>>/snow/439930
What Is A "Spoonie"?
People who identify as 'Spoonies' are referencing 'The Spoon Theory,' written by a woman with lupus to explain the chronic illness experience to a healthy friend who asked her what it really feels like to live with her medical problems.https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
The Spoonie Community is, in general, a legitimate supportive network for people dealing with chronic illness. In recent years, however, it has become polluted with SJW types and has attracted a new breed of attention-seeking catfish: people who lie about, fake having, and/or exaggerate existing medical problems and crises for no benefit other than to garner attention.
What Is Munchausen By Internet (MBI)?
From Dr. Marc Feldman, an expert in factitious disorders including Munchausen Syndrome, first described Munchausen By Internet in 2000:>>…the advent of online support groups, combined with access to vast stores of medical information, enabled individuals seeking to gain sympathy by relating a series of harrowing medical or psychological problems that defy comprehension to misuse the groups. Communication forums specializing in medical or psychological recovery were established to give lay users support in navigating often confusing and frustrating medical processes and bureaucracy. Communities often formed on those forums, with the goal of sharing information to help other members. Medical websites also became common, giving lay users access to literature in a way that was accessible to those without specific medical training. As Internet communication grew in popularity, users began to forgo the doctors and hospitals often consulted for medical advice. Frequenting virtual communities that have experience with a medical problem, Feldman notes, is easier than going through the physical pain or illness that would be necessary before visiting a doctor to get the attention sought. By pretending to be gravely ill, Internet users can gain sympathy from a group whose sole reason for existence is support. Health care professionals, with their limited time, greater medical knowledge, and tendency to be more skeptical in their diagnoses, may be less likely to provide that support.
Links to Articles and Info on MBI:https://www.munchausen.com
(Dr. Feldman's website)https://www.thestranger.com/seattle/the-lying-disease/Content?oid=15337239https://www.abc.net.au/news/health/munchausen-by-internet-what-drives-people-to-fake-an-illness/7631990https://www.theguardian.com/society/2015/apr/29/jules-gibson-munchausen-by-internet-sickness-bloggers-fake-it-whole-pantryhttps://en.wikipedia.org/wiki/Munchausen_by_Internet#Characteristics
I made it hot and fresh!
Also kek forgot to update Kelly's thread number.
On the bright side, I updated the list of munchies to include spoonielife_amanda and chronically.amanda
Those were the two most recent additions off the top of my head!
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For the newfags
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you know, its like other people actually be exasperated with their entire life being about your invisible illness. but yea its just a fun silly thing to do to ring in the new year. what is life without self made drama?
c-diff doesn't necessarily come from direct contact with infected feces. A lot of people have c-diff bacteria in their system but never have any symptoms. If you take antibiotics you are more likely to get a c-diff infection. C-diff is fairly common in medical settings - if Aubrey has been spending a lot of time in the hospital then its likely she has come into contact with it. People with lowered immune systems are more likely to get a c-diff infection.
If munchies are getting c-diff infections often its probably a result of them spending unnecessary amounts of time in the hospital, turning to antibiotics for every little thing, or taking/doing other things that will weaken their immune systems.
Now she’s got something people with CF get a lot, wonder if that’s a goal of hers. She’s obviously a fan of Mary Frey as well, she’s even been dressing like her and has a similar look (hair, glasses), complete with feeding tube, the same small bags for it, service dog, and oxygen when they’ll give it to her. She’s trying to be a cf girl but will never be since cf can’t be faked. Instead she’s munching her way into whatever gives her toys and hospital admissions. Let’s not forget she started out witj self-diagnosed Lyme, which got her a picc line and then a port, and things very quickly escalated, which is not how a real chronic illness works. You don’t magically develop symptoms as an adult unless you’re a spoonie (exception: legitimate autoimmune illnesses that can’t be faked because bloodwork).
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blogging from the hospital so very sick, almost dead you guys but don't worry Aubrey was still feeling well enough to put some fucking mascara on
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This girl. She’s a fucking train wreck ana chan.
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Guess who doesn’t want to be left out of having a crisis. Tbh, doesn’t look like an allergic reaction to me. Looks more like she rubbed her skin to make it red. Also, Benadryl doesn’t immediately fix mcas rashes, they stick around for a while.
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I almost feel sad looking at her now. She is still skinny in this pic, but not skeletal. Hope she gets the help she needs, both mental and physical.
MCAS can be primary, secondary or idiopathic. In the case of comorbid conditions it would likely be considered secondary.
Frieri M (2015). "Mast Cell Activation Syndrome". Clin Rev Allergy Immunol. doi:10.1007/s12016-015-8487-6. PMID 25944644. Table 1
Classification of diseases associated with mast cell activation from Akin et al. 
a. Anaphylaxis with an associated clonal mast cell disorder
b. Monoclonal mast cell activation syndrome (MMAS), see text for explanation
a. Allergic disorders
b. Mast cell activation associated with chronic inflammatory or neoplastic disorders
c. Physical urticarias (requires a primary stimulation)
d. Chronic autoimmune urticaria
3. Idiopathic (When mast cell degranulation has been documented; may be either primary or secondary. Note also that angioedema may be associated with hereditary or acquired angioedema where it may be mast cell independent and result from kinin generation)
d. Mast cell activation syndrome (MCAS)…
Recurrent idiopathic anaphylaxis presents with allergic signs and symptoms—hives and angioedema which is a distinguishing feature—eliminates identifiable allergic etiologies, considers mastocytosis and carcinoid syndrome, and is treated with H1 and H2 antihistamines, epinephrine, and steroids [21, 22].
I see a lot of these kind of pictures of people with a flushed face saying they have a "mast cell reaction." Is this a thing for MCAS? I assume it's more than just being flushed, because getting flushed all of a sudden is not uncommon. I could make at least five pictures every week of myself with a very
flushed face, that's not related to anything medical. It's just called being tired.>>457791
O wow. She was pretty. I agree it's painful to look at her now. I looked at her Instagram and as another anon said. it's a mixture of hospital/sick pictures and of candy and cookies. Yet she is on TPN and can't eat? I don't really follow her and also didn't really read the posts, but it seems like she eats a lot of candy? Does anyone follow her? Does she chew and spit? Or can she somehow eat candy but not soup, bread and crackers? I don't know, but even looking at her makes me sad. She also seems to be very happy that she has found doctors who do not think it is 'just' an eating disorder. Erm.. there is no such thing as 'just' an eating disorder. Eating disorders are more deadly than any mental condition in the book. More people die from eating disorders than from gastroparesis.
In general, it seems to be mostly people who are not that
skinny who tend to use GP to cover up their eating disorder. I always assumed it was because a physical condition gains more symphathy than a psychological one, unless you are clearly severely anorexic and starving. But she is. If she would admit she still struggles with an eating disorder (and maybe/probably with GI problems as well, which makes it even more complicated) she would get pretty much the same amounts of ass pats just because of how extremely sick she looks.
Do we have screenshots of her saying she doesn't want
to gain weight?
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I don't know if this thread would be interested, but remember fitveganginger? She's back online and now her thing is pretending she's dying and having a super special rare form of cystic fibrosis that only affects her gut.
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Anyone know much about POTS? Two of her kids had completely normal tilt table tests and she's saying they probably still have POTS because the test is wrong 50% of the time? Isn't that the main test for diagnosing POTS? I thought that test was pretty accurate…
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SDP has tacky merch now. The processing on them also feels like a huge scam.
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Comment on SDP merch post.
, and same about the antibiotics. I just can't go on them anymore because every time I do, I end up getting c diff again. It sucks ass.
except the fact she's doctor shopped this entire year, is "allergic to everything in her TPN including the Saline." She should have an award for most hospitals left AMA! KEK
Total asschan with a gofuckme
It can be negative if the patient is tested at a time when they are in stable condition. There are several papers in the literature about it. >>458157
Yeah she is a dumpster fire. EDchans crossing into spoonie territory is scary af and there are so many now, but she is absolutely one of the worst.
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If you're on here. I bow to you.
I don't know how I found these threads (this one and the Jaquie-Janice show). I have learned a lot of you are dealing with chronic illness and pain and all the things.
But holy hell, y'all make me laugh so hard.
Just wanted to say THANK YOU! And happy new year, y'all.
I would not leave my son in her hospital room, esp if he's related to any of the new babies. She has something to be spiking those fevers.
It's interesting to me how that after the plan was set for her to stay in the hospital through next week and do her surgery, she seems to feel better and can walk around, paint, etc.
Painting is how Mary Frey passes hospital time, of course.
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Sorry if I'm late to the party but anyone else notice this comment on Aubrey's vlog?
"I actually diagnosed myself initially and then got it confirmed by an expert in London."
And I didn't think it was that hard to find a specialist? Don't you just need to see a geneticist first to rule out the other kinds of EDS?
(Sidenote: She is way too happy to have that PICC and is probably hoping for an infection)
Y'all - no one mentioned that Aubrey has an Amazon wish list. I'm sure you have your wallets out for the Paws loot already…>>458243
I am one of the anons who defended Aubrey early on. I believed she was sick until I read her comment about seeking the EDS diagnosis. Sigh…
And I love
the comment that says a skin reaction automatically means EDS. And here I thought a person could have a regular ol' allergy to plastics…
Just be sure to document the cat's journey to diagnosis on Instagram because I'm sure you will have to visit more than one vet because very few will be insightful enough to recognize that your cat would benefit greatly from weekly saline infusions, a port, and a half-trained service dog.
Sage, of course.
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Complete with a Frey Life shirt. Probably a child's XL because an adult small just isn't as fun!
So Aubrey and I use the same hospital and I'm here tonight in the ER. The hospital is PACKED and patients are being cared for in hallways. It enrages me to no end to think that healthy Aubrey is upstairs with TPN, antibiotics, saline, etc. in her own private room while dozens of sick patients receive their care in the goddamn hallway.
Sage for rage
She is delusional. She was hoping for a wheelchair as it was just too much to walk. She also put up a post saying she was anorexic, a month or so ago? No mention of it ever again. I’d love someone to ask her about that.
The 20# weight loss in a WEEK!? No way it wAs a week. Maybe a month?
Girl has issues.
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Always drama with SDP. 1/2
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I think that's a quote of the person she replies to, though? No matter what, that dude is very funny.
What are the theories anyway as to why this type of munchie-ing is almost exclusive to white girls? There's plenty theories about why it affects mainly women, but what about the ethnic differences? I know FII is by default very difficult to research as there's limited data since so few people will admit to it. That's mainly true for adults though, maybe there's data for children and teens? I wonder if the ethnic difference is unique to the US (and other countries that are predominantly white but also have a large black comminity) and whether that difference is still there when you control for socio-economic status and/or things like whether someone has health insurance or not. I get the impression most munchies that we discuss are either relatively affluent or come from a background that is. I could be wrong though.
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Mum has a history of hoping her kids will 'fail' a test.
You know.. I get
being sick and wanting to know the cause of it. So yeah, sometimes that means you hope the tests will show
something. Just because that means you can get treated and can go on. Being sick is no fun, and being sick without knowing what's wrong is even worse.
But there's a difference between hoping a test will show a treatable condition and a) hoping to 'fail' a specific
test; b) broadcasting your 'secret hope' on the internet and c) doing that for someone other than yourself.
How about: "whatever the tests show, we hope the results will lead to the right kind of treatment". Or: "we don't care what is says, as long as it'll help the doctors to help her." Or: "we hope ultimately the tests will show a condition that's either self-limiting or easy to treat"? Something like that may mean the same thing, but it doesn't sound as creepy.
She is one scary mum.
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Her first response is to attack them for being an ignorant "black" rather than recognise obvious troll is obvious.
Kek kek kek that bio had me in tears.
>I’ve only heard blacks say stuff like that
SDP sounds pretty shitty there damnnn
Hi, original poster here! She’s my “favorite” munchie in a sense because it seems like she’ll talk about something I’m dealing with/have dealt with and I’m just like…that’s not that serious.
She is pretty heavy, tbh. She’s at least 200 pounds at five foot something so I wasn’t sure if maybe she could have lost the weight in a week because of obesity. I would love to hear what her doctors say about her weight.
It just really pisses me off that there are so many people who are horrifically ill- like actually sick- that can’t get the kind of medical care she wastes. She goes to Mass Gen, one of the best hospitals in the country, because oh my god she threw up a few times?
Honestly, if she’d exercise and eat right, she’d feel a whole hell of a lot better but god forbid that happens.
20% education? You must be a very generous person. To be honest though, I don't see it. The only part that could be considered educating is the fact that she tells and repeats what a service animal is under the ADA. And the difference between an SD and an ESA. That's more like 2%. I don't know if it should be considered educating though if she herself abuses the huge loophole that is the ADA.
O, and you forgot bitching, but you probably meant to cover that in the shouting at people?
30% lying at the floor in public
10% dangerous driving
10% very boring shopping clips
8% "bad parenting caught on tape"
10% complaining about symptoms, doctors or other more general medical talk
30% seeking out or staging conflicts surrounding her SD so she can bitch about it.
I will gladly stand corrected if someone has a better estimate, though.
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Unicorn.spoonie's roundup of the year. It sounds like it's Kat writing here but she mentions procedures her friend has had as her own and tags her illness too. It's like she's munchieing vicariously through her less dramatic friend's actual health problems.
I was looking at that reaction and then noticed the kind of bandaid she was using. It looked like a generic beige one. I literally said to myself "have to remember that; if she'll claim EDS in the near future, that will prove her skin isn't as fragile".
Most EDSers I know will use either band aids for sensitive skin (the white ones) OR not use them alltogether and use e.g. self-adherent wrap with some gauze that doesn't stick to the skin or some other special-order or home-made alternative.
Of course there are EDSers who can use band aids, especially if it doesn't stay on the skin for too long. But if she is going to claim fragile skin as a symptom of EDS, her choice of band aids is a bit odd to me.
Who else predicted long ago that Aubrey would try to claim EDS? She stretches almost religiously and - even more odd - does it on camera (and while she is in hospital) so everyone can see she is flexible. (Not EDS-flexible, imo. But I've seen some slight hypermobility in her fingers in some postures when she supports her neck.) I just KNEW this was coming. EDS can be her ticket out of medical obscurity with her controversial 'chronic Lyme' diagnosis. Her story doesn't add up though. She was standing on one leg while stretching her other leg against her IV pole just yesterday (in yesterdays vlog, to be precise). That requires quite a lot of stability and muscle control. If she would have EDS (which she doesn't) she would have to be pretty much asymptomatic. And right now she claims her POTS and GP are caused by her chronic Lyme. IF she gets a diagnosis of EDS, would they then be caused by her lax connective tissue? Or would she do a Chloe and claim that Lyme changed her genetic make-up and caused EDS?
Argh. I wish these munchies would get off the EDS train already. It's getting tiresome. The diagnosis doesn't mean a thing anymore. The more that diagnosis is given to people who just happen to have some hypermobile joints (just like about 10-30% of the female population, depending on ethnic background), the more doctors will think that (h)EDS is "just being hypermobile".
What is "close call to knee surgery"? That she maybe
needed surgery? If she thinks it's worth to reminiscence on "maybes" she could just go ahead and mention/tag every possible differential diagnosis a doctor ever mentioned or things she was tested for to rule out as something she "almost" had.
Social security for kids isn’t that much. When I got my first check at 16, it was $180 per month. When my mom died, it went to 800. When my dad died, it went to 1300.
As long as the parents are alive, and you’re disabled before 22, there’s no sweet sweet disability checks.
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Munchie in the wild! From a Facebook thread, where a woman was talking about getting into doing full makeup to get color back into her face, after dealing with cancer for years. This chick showed up about halfway down.
'I'm so glad u posted ur comment! I'm 31 but look much older with wrinkles I shouldn't have until I'm waaay older Because of all the things Ive been through health wise wise my MANY autoimmune diseases, mainly right now dealing with mixed connective tissue disease (which is a overlapping of all the hard hitters like lupus, scleroderma,ECT feels like MS) plus I have adrenal insufficiency,and a ton of GI problems that first started with Celiac disease,but after many complicated tests(still ongoing)I've been diagnosed with chronic gastritis, psuedo obstruction, gastroperisis,and more but my point is putting on makeup makes me feel better about myself,like me again,and most people say but u don't look sick! Which is a compliment,both good and bad cuz they don't believe when I say I'm too sick to do things. But anyway you're NEVER too old to put on makeup like this.
I actually was going to be starting my own youtube channel doing makeup tutorials and lifestyle channel but I don't have the equipment or can afford the equipment to start it.
My Drs suggested it to me last year when I was about to turn 30 as a way to keep my mind off my chronic PAIN (I'm also in a wheelchair now from once being a dancer)but I feel weird starting a go fund me page asking for help,so I haven't gotten to do it.but another reason why I was going to start it was because I had a dream of being a cosmetologist/hair stylist my entire life! From kindergarten fashion show I asked my mom if I could go as a nail lady but we couldn't figure out how so I went as a mommy,) another dream I'll never get to full fill,) so since I'm to sick to have my dream job because I can't hold down a real job, youtube was going to be my way to full fill it 😍but u have to have all this equipment and a laptop which I also don't have,to do it. ANYWAY you keep being u cuz I know life is short ( ive almost died. 5times septic,honey I could write a book but wouldn't want to rehash it!)and if doing ur makeup like a pro makes u happy, keep it up!
Sorry so long no one's probably even read this! Lol
Here's her pic. I hope this was the right place for this post!
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Aubrey can't eat, but she's been venting (purging) through her G-Tube "a lot". According to her latest vlog. I don't see how her doctors don't see through her shit. I really don't.
Does anyone else find it odd that none of her four children have a job or do anything outside of the home? Can they all really be that ill? The poor girl who Makes most of the vlogs has a speech issue that should have been taken care of when she was a child.
Am I correct that they were all homeschooled?
It’s pretty sad. Those girls know nothing other than being sick. Focusing on nothing but every little pain and reaction will just make you sicker!
I know one of them is disabled and someone needs to be there for her. But, come on. You are 22 and your whole life revolves around you having a cold and using a nebulizer. You’ll live sweetie
Her dependance on the friend has always seemed a bit odd. I believe the unicorn.spoonie IG is either almost completely run by Kat. The friend's personal IG doesn't use illness/disability hashtags - and while she refers to Kat as a best friend there is another girl who she also refers to as a best friend and posts pictures of more often especially recently.
I think Kat is pretty jealous of the friend. I believe they met at a camp for the blind/visually impaired. Her friend has a undisputed and uncommon medical issue and also seems to have good family support. Kat doesn't have great family support and I think is envious of the support that her friend gets. She seems to be another one who is hoping that if she was just sicker then her family might pay more attention to her. Unfortunately she seems rather annoying and demanding/entitled which probably doesn't make her easy to be around.
It is as if Kat secretly hopes she could be her friend - the friend likely has to have frequent biopsies/cyst removals. Kat probably convinced one doctor to biopsy a mole and is now declaring she had MOHS surgery. Its just always weird that she hashtags the friends illnesses when the friend doesn't usually do it
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OTT happy.guts.recovery is making her edema out to be this huge deal and making it seem like they don't know what to do. It's pretty straightforward and happens all the time with refeeding patients with anorexia.
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There’s also this
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This psycho is really saying that because the person wrote "our white daughters" makes the troll account a black owned one?
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Has this munchi been brought up? I couldn't find it on my search. She's ALWAYS in the hospital and if she isn't she brings her child.
Typical anachan with peg tube and ng, gastro ..blah blah
Is she fucking serious? There's nothing glamorous about hospitals. There's nothing glamorous about sleep studies those electrodes and wires fucking suck. She's trying so hard to be "editorial" and "high fashion" but this just looks like a hot mess tbh. Also, why the fuck would you wear makeup to a sleep study?
And is it just me or are there two oxygen tubes in her nose? The pinkish one looks like an oxygen tube but I can't tell what that second white one is for? If someone knows please fill me in.
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There are plenty more pics.
Holy shit that's fucking infuriating. I feel like if she actually had to be there, she wouldn't feel like taking "glamour" shots. What kind of twisted mentality is that? I've never seen anything like this before. If you feel well enough to take pictures like that, you don't have to be there. That's some serious bullshit.
sage for rage
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samefag but I wonder what her doctor would think if they came in and saw her posing like this.
I think for most of the pics she's just at appointments, but there are some when she's going through testing or in the ER and those are the ones that make me mad.
I understand wanting something to pass the time while you wait for the doctor to come see you, but get Animal Crossing or something, stop posing like you're some big time model when you have EDS and probably shouldn't be in some of those positions.
That's exactly what I was thinking. There's no way she could be hanging herself upside down like that without getting symptomatic, especially if she had POTS/EDs that's bad enough to be at the doctors as much as she seems to be. There's photos like this >>459414
of her upside down, balancing on one leg, etc. all over her instagram, and it just doesn't make sense with what she claims to have.
Karolyn claims EDS, but doesn't say which kind and PTSD. Based on her website, #HospitalGlam appears to be some kind of attempt at a social movement and an attempt to make fun of the fashion industry (always something I can get behind, ha), but she seems a bit misguided.
I don't see any photos that appear to be in an ER. She claims to be an artist, so I'm guessing she has a friend who has access helping her.
She doesn't complain in her posts but writes things that advocate for healthcare, women, etc. She's more of an advocate than any of the usual "advocates" mentioned around here.
I'd much rather see these than yet another photo of a picc line or a video about a near-death heart rate a la Amy Nicole, whose "heart almost killed her" last week.
The rest of this is Karolyn's, not mine. She writes:
karolynprg#HospitalGlam examines the role image plays in our medical treatment. "Glam" references the poses and their similarity to fashion photography, the fact that chronic illness does not fit the traditional visual conception of sickness, and that we live in a place where healthcare is a luxury good. #hospitalglam is political. Enjoy. -
what are your thoughts on docs who specialize in pots, eds, mcas, and gp? does it seem to you they'll diagnose anyone for the money and expensive treatments?
I have a friend on facebook who was diagnosed with the trifecta back in september, immediately started cromolyn, beta blockers, couple other expensive meds. She's gotten a myriad of testing done, most recently an upright mri that showed 4 mm chiari. I asked what her neuro thought about this, only to find out she hasn't seen neuro at all. Her primary (as she calls it) diagnosed her with all this. The doctor is an ND and this girl sees her once a week. This to me seems like a total money grab for the doctor. She's convinced this girl she's disabled (she's applying for a service dog), that she needs crutches to walk (I saw her walk across stage at graduation, she's good), and that she needs expensive meds like cromolyn (she's gotten a rash maybe once, but hey, eds and pots? must have mcas)
did I mention she diagnosed classical EDS without genetic testing? Yep. I'm not gonna post screenshots for privacy reasons (she only posts on her personal fb, no insta) but this enrages me. This girl might actually be sick but she is abusing the system to get the best treatment for something that might not even help.
it seems pretty plausible that this upsurge in pity point begging is enticing clinics to seek out some lucrative business. pain clinics have been doing it for awhile.
while the medical field is about saving lives and making them better and whatnot, at a certain level it absolutely is a business. pharmaceutical reps exist for a reason
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New cow? I realize this post of hers is a little old but she legit tubes herself. EDS/MCAD/GP-typical bs plethora of speshul snowflake illnesses. Oh and Kate Farms feeds..have to have those!
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ive followed her for awhile. she seems ott. just another spoop wanting controlled feeds and asspats
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Hmm. From her gofuckme.
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what an ass. all her images are posing in stores and by pools and a leg up on the counter a la tuna. appears pretty mobile..
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Why do they all have to follow the same rubric? It’s like a 10-step how-to guide to supreme munchiedom and it makes them easy to spot from a mile away.
What’s this? A post about “good body image day” implying an eating disorder? Shocking.
Guess all of us wheelchair users just sit at home and do nothing all day. Ever see the Paralympics?
When you have a mobility issue, and balance issues, you use a wheelchair and a service dog to help adapt. Using a dog to do tasks that are impossible to do in a wheelchair, unless you have some custom $10k hyper mobile one, is pretty much the norm these days for people with physical disabilities.
Stop painting all wheelchair users with the same brush because that’s what it looks like from someone who has used a cane for 30 years of their life so far.
Yes. Quite salty.(no1curr)
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She’s so cringe, I hate her already.>>459654
You’re in the wrong thread, WK.
WK? Shut up NEET. You jealous because you can’t leave the house to even go to a store, right?
Wow. Must suck. At least you have workable legs. Right?
No. Seriously. You’ve never heard of the Paralympics?
My boyfriend is a bisexual fag, and he told me I would be interested in this thread.
Paralympic fag here. Yeah. I’ve never been able to do heels.
But just because I sometimes use a wheelchair doesn’t mean I don’t go to store and shit. LOL.
Forgive me for not knowing much because I’d never even heard of MCAD/MCAS before every munchie decided they had it, but wouldn’t tattoos be a terrible idea? My basic understanding is that you can have an anaphylactic reaction to anything, including stimuli, and injecting pigmented ink into your body with a vibrating needle just seems…. like a bad idea.>>459672
I mean, cool for you. Enjoy your ban and “going to store,” I guess.
Thanks! Must be nice being an asshole neet! Have a good one, sweetie pie.
Calling out a typo. Gather around everyone. It’s Regina George!(chill)
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this is not the place for you newfag if your jimmies are easily rustled. we arent your therapist
You know its bad if all the sudden Dom's ridiculous number of patches on her SD is looking good in comparison.
How is anyone supposed to take the dog seriously when you have it decked out in Harry Potter gear and patches. Sometimes less is more.
Mercifully this stuff doesn't really happen in the uk because w e have the NHS so no unnecessary treatments or tests, and no bungs for the doctor who prescribes them.
The downside is that getting a genuine EDS diagnosis can take years thanks to waiting lists or maybe just lack of knowledgable specialists in someone's clinical region.
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Guys, I can't with this bitch. She's gone full Angi Dong. She's nothing like housebound, as evidenced by her post from the very same day wherein she directs people to a Vice article about her and her cross-country travel. There are also multiple recent photos of her at parties. She obviously can't manage money for shit and just says a lot of words to confuse people about her bills. And she has to pay all her doctors before they see her kek.
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Nice outfit. Friends. An outing to bring in the new year. Definitely housebound!
Every week is a new fucking tragedy to try to scam people out of money. Hasn't her youcaring already scammed people out of over $50,000 or some of their insane amount?
She is so pathetic with her fake cEDS and fake EVERYTHING. For those unfamiliar with Katie McFarland of Arkansas, she literally posts evidence contradicting what she says she is diagnosed with such as results of genetic testing stating she has no mutations for CEDS and pictures of mostly eaten meals while claiming gastroparesis. She's like Rachel Dolezal with her activism and constantly making herself look like an ass in Washington, where she's obviously well enough to travel to in order to protest.
3 days ago, posts that she’s housebound.
1 day ago, posts photos from a new year party.
Who posted this same thing last month? I thought it was someone in Great Britain?
For one thing, in the U.S., rent is not "combined with benefits (whatever that is). Perhaps "utilities," but it would never be written as "benefits."
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Look who’s been admitted again; who remembers so much detail when they are so unwell?!
And she mentions utilities are on autodraft >>459772
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I figured out where I've seen this request for help before…from Kati herself.
Requests for help:
Current needs (auto-draft snafu/sexual assault): http://katiaches.tumblr.com/tagged/share-and-donate-if-you-can-%3C3
Month before (Auto-draft snafu, heart medication!!): http://katiaches.tumblr.com/post/167925071055/fb-messenger
YouCaring - She's going for a big surgery! - https://www.youcaring.com/kati-mcfarland-588646
Amazon Wish List! http://a.co/7SQN6TU
(Hope y'all didn't spend all your money on pet dog paw shirts or gifts of watercolor paints…)
She posted Skagra's "court case" on her Tumbler, so I guess she's vested in the outcome: http://katiaches.tumblr.com/post/168876825255/this-court-case-will-make-or-break-the-rest-of-my
Apparently, yelling at your senator improves fundraising: http://www.vocativ.com/405313/donations-woman-yelled-senator-town-hall/index.html
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No the full moon does not affect chronic illness.
This is another uk cow, with "chronic Lyme, IC, endo, fibro, PTSD, depression and anxiety". Basically a dupe of MBV but without the cash to be validated at Breakspear. But the moon hurt me, guyz.
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Look who's back in and out of the hospital for her daily asspats. kek
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Ambulance ride and trip to the ER AGAIN to yet again find that nothing is wrong with her except the desire to be ill. Wowza. That’s something.
in my uneducated opinion, POTS can be diagnosed by a primary. It's not hard to lay a patient down, take pulse, then stand and take pulse over 10 minutes. And the treatment is basically water and salt, so nothing more usually needed.
What I don't understand is having a genetic condition diagnosed by someone no MD would trust.
Almost (emphasis on the almost) faints, calls 911.
What a fucking joke.
She also gets IV infusions, just infuse your saline and take a nap.
Same fag, sorry
Just to add: now I think about it I don't know any European POTS sufferers who get saline infusions for it at all! And I know some people who are pretty disabled by it.
Look at her entire post; she was so ill but remembered every detail!
Also she equates a high lactate to Oxygen deprivation when in asthma a raised lactate is often seen from high doses of Salbutamol; same with low potassium which is also assosciated with high doses of Salbutamol!
It’s the way she over dramatises every little thing! Later post she’s home and was probably home when she posted about the (brief) admission!
I wasn’t the anon who posted her here, nor the other three or four anons discussing her. If you haven’t noticed the pattern of just about every munchie ITT starting their OTT attention-seeking behavior with an eating disorder then I can’t help you.
Sage your OT speculation.
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This girl has been mentioned here before, but her Instagram is getting milky again. She posted a picture of her "dislocated shoulder" but was doing the thing actors do, it wasn't dislocated at all, that was in a previous thread, since then she's started to fall back down the OTT spoonie/munchies rabbit hole.
Claims to have severe EDS, uses a wheelchair a walker and even uses knee braces when In her wheelchair, often uses the cripplepunk tag.
I've had MCTD from age 14 onwards and was dx'd with MS age 19. I can tell you with absolute confidence the two are nothing fucking alike at all. What the fuck is this lady even talking about…
Also, oxygen is extremely uncommon in any of her diseases save where it causes pulmonary fibrosis… which she would mention in the biggest possible letters as it IS a nasty, nasty illness.
What a fucking munchbag.
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She’s being extra milky now that she’s warped her doctor into a gastric pacemaker surgery. This cow really pushes my buttons because she’s openly admitted an eating disorder. I called her out on it on a post she made about wanting to lose weight and stop the voices telling her she’s fat, and of course she took the post down.
Definitely looks like she’s sooo nervous for her surgery. What a crock of shit.
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“Will be admitted after.” Of course you will. And of course you have to include that little detail.
I know nothing about gastric stim surgery (just enough to refuse to call it a pacemaker - next we'll be calling a spinal stimulator for nerve pain a 'pain/nerve pacemaker'). But I assume since it's abdominal surgery that it's not done as an out-patient thing regardless, or am I wrong about that?
I don't understand why doctors do this kind of surgeries on patients with eating disorders. I'm not a doctor, but if I was, I'd have them tested in and out to make VERY sure any delay in gastric transit isn't caused by ED behaviors. Even past behaviors, as they tend to resolve on it's own through refeeding. Someone
needs to find a way to do some sort of blind challenge on this patients. Like have a nasal tube with both jejunal and gastric ports and gradually switch from J to G feeds without them knowing to see if that solves the problem. Or at leat without them knowing how fast it will occur, or maybe by alternating and see if reported symptoms make any sense or not.
Patients should probably be observed 24/7 during a test like that though, so I'm not sure if that would be feasible. But I really think there's a clear need for some sort of procedure like that. If the patient gives consent, it could be done ethically. (And if the doctor makes it clear that no invasive treatment will be done without a challenge like that, patients will probably either stop asking for invasive treatment if they know they will 'fail', or consent.)
Of course, one could just start by having them observed for a week or so in either the hospital or an eating disorder clinic to do some sort of challenge with oral feeding.
I mean, even I
learned during my (psych) studies about possible physical effects of eating disorders. So I assume MD's and dieticians to know about this, too.
Dunno. Aren't they testing her for MALS as well? I assume small bowel motility would be normal in MALS?
She's planning to see some kind of hotshot motility specialist, though. I SO hope he will see through her BS.
I always tend to give people the benefit of the doubt. So I'm willing to suspend my disbelief and say that it is possible for her to have some kind of digestive problem right now. However, we know without a doubt that she didn't need her feeding tube in the first place. Who knows, maybe her current problem is even caused
by her tube? The body doesn't like having holes poked into it. And very shocking, but they can even cause complications. Odd, isn't it?
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Boomerang of court dancing on a windowsill. Oh - but your EDS triggered by a vaccine is sooper severe!
Ehm.. sitting like that
with EDS severe enough to need a wheelchair? O, sure. Next she'll be doing cartwheels.
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Spoonies fucking LOVE being in children's hospitals. I don't understand why being around seriously sick children and their anxious families doesn't give them a sense of shame.
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And in the boomerang she's doing a little shimmy. But in her post she claims she needs the wheelchair for POTS. Fer fuck's sake …
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More Aubrey. She's not having a total pancreatectomy, is she? Surely she would've mentioned that because I imagine she'd be so psyched about being diabetic like Mary Frey.
Also her dog is basically just an ESA. She's adorable, but she doesn't do any service dog work.
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So, I have a friend who has an NG tube, who showed me this vid from Chronically.Ams. There are lots of problems with it, including her non sterile precautions (sterile water doesn't actually sterilise things). Also drainage bags which use gravity are supposed to hang below the stomach to work and hers is only shoulder height (which is why she uses the syringe to get her stomach contents out, ana much?) and hers is apparently much too thin to be effective at draining. This plus the fact she always shows a tube in a pre opened packet makes me suspect she's bought one to insert/remove at will for videos like this.
And most of all, if someone needs an NG tube, and needs to be able to reinsert it themselves, a medical professional will show them how, not a munchie cow on YouTube. I'm sure the ana chans are taking notes though.
She really is the perfect example of how you can have EDS and also munchausen's. I can't stand to give her views but if she's finally left the UK, I bet her local services were sobbing with relief to see the back of her.
If only Chloe Leanne and Chloe Print Lambert would emigrate! Not that either of them has an actual illness, but the anachan plus munchie toxic combination makes them especially sickening.
Just adding another perspective for this:
In my hospital system, a lot of the “PCPs” that work in the clinics are often Emergency Med doctors who also work in the ER. They will often schedule tests and treat conditions that they know about since it takes awhile to get in with specialists, they have wide, but specific knowledge (even about some chronic things), and they have ordering rights within the hospital system. They will however
allow the specialists to interpret the tests and give the formal diagnosis, although the patient only hears it from the “PCP” and it appears as if the diagnosis comes from the “PCP” on the medical charts.
Honestly, I feel like it makes everything easier just having to see a single doctor who consults others, but - if done wrong by the doctor / type of doctor or if the patient is manipulative - I can see that it’s problematic
Actually placing an NG is not a sterile procedure.. your GI tract is not a sterile area. Not WK’ing, just a fyi.
Agree with everything else.
You're right, it isn't a sterile procedure. However, Amy is touting it as though it is and promoting poor hygiene practices.
How many young girls are going to think that sterile water will sterilize equipment etc?
There's a comment on her IG of another girl saying she sent my the NG tube she's touting in videos. Plus, she is blatantly lying about the fact she only gets sent those NG tubes for draining by her feed company - she's said in videos that her feed company only keeps the small size ones. But funny that the one she shows that she allegedly gets from her feed company is the same as the one given to her by a friend.
And as above regarding the drainage. She's posting about her weight loss now, saying she's losing weight (again). No wonder, she's never connected to her feeds.
Sage for rage.
Seriously? "hopped out".. sitting like THAT? and she needs a wheelchair? why does she need one if she can sit like that ?
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The KitKnit that was being talked about has a few images in a hashtag.
Even with mild EDS suspension from any limbs would be impossible or extremely dangerous. I don't think anyone with EDS is easily able to hang from their arms (like in a pull-up position or monkey bars) without their shoulders hanging out of their sockets and you would absolutely notice something was wrong.
I have however known numerous people with EDS who were masochists. People who actually have it tend to have a much higher pain threshold than the average population so maybe that's why it's enticing.
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Yup, her NG tube "to drain bile", the one that is too small, was sent to her by her best friend. She's repeatedly using it to drain yet if she was supposed to be doing so, she'd be prescribed an appropriately sized tube.
Good info. I don’t think she’s like really super intentional munchie necessarily.
Also the masochist thing makes sense. I figured something like that, If she is in fact in constant pain maybe the masochism actually helps?
Anyway thanks for info. Sorry if any derailing. We can focus on the real munchies now!
Oh my fucking god. Shut the fuck up about Tina. She’s actually fucking sick. Just because at one point she had an eating disorder doesn’t mean all of her problems are invalid. Her eating disorder was secondary to all of this stomach bullshit. Why can’t you low lifes stop fucking posting about her!?! They wouldn’t give her a gastric pacemaker for nothing!? You can’t just talk a doctor into that kind of shit. Her gastric emptying scan results were actually shit. She vomits everything she eats. Leave her the fuck alone, anons.
Sage for rage
She had these problems before she had an eating disorder. Even if they did cause it, it doesn’t make it less valid or real.
God you people need to stop acting like you are these peoples doctors. You don’t know shit about their care, or anything in fact. You see the fraction of their lives they choose to share on social media.
kek you obviously never watch her stories on IG. She only takes a break from her munchie bs to show off her wealth.
everytime someone defends someone they're self posting or WKing alright
Give Tina a break, even if she's faking she just had an invasive surgery.
And she's from North chicago, of course she's rich. She doesn't pretend otherwise.
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Wow, this one is super OTT! (Chronically.amy)
OMG! I hope someone told her to call an ambulance!
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Fucking Court. Yes, you do need a endoscopy to confirm celiac. Just because the blood test came back positive doesn't mean you have it. You can be a carrier.
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This was posted a few hours ago
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these women are fucking awful. you can have lab values that come in a little under or over and still be considered normal or not have any huge lasting effects. but you know, stretch the truth and get more likes because they matter right?
And don't forget, her illnesses are now terminal because her doctor said he's out of ideas to help her.
17 seconds. How the heck could anyone be that specific? Is this another wonder of the amazing apple watch?
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the nurses are being mean to Amanda again :(
also she's like 30 and has a stuffed animal
hes out of ideas because he probably went through the gambit of treatment ideas but they arent to her liking so of course they didnt work. its not a badge of pride, its an indication that she isnt willing to work with a professional and follow procedure>>461173
beccause you can fake symptoms or induce them and pass a diagnostic test. those really are the holy trinity of spoonies
I would say I wouldn't post anyone just because they post there, but IF anyone seems OTT/Munchie over there and their health complaints are the primary issue, I don't see why not. If it's just a post or two saying they have other illnesses, then no I'd post them in the Pro-Ana General.
I for one am interested in the OTT/Munch crowd especially seeing as how many of our cows OBVIOUSLY have a hx of ED and/or actively mention ED issues. Who knows, maybe we will find some of our current OTT/Munchiefags' MPA accounts! Post screenies please!
Just having a stuffed animal doesn't bother me so much. A lot of people (even adults) still have a stuffed animal they sleep with for comfort. That being said though, most people keep that to themselves and leave theirs at home. She definitely didn't need to take an overly-dramatic photo with it. Having a teddy bear is one thing, but posting it all over social media (cough
) is really odd and ott.
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Aubrey SD group ss, as requested 1/3
gotta get that self promotion in there
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Aubrey SD group ss, as requested 2/3
need a smiling hospital pic, because we know who we're dealing with here
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Aubrey SD group ss, as requested 3/3
so shy that she's all over social media and TV munching around
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Found this gem - chronically.ams has been diagnosing her friends.
Another munchie in the making at the hands of another munchie? This is gold.
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Her account is pretty milky.
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Samefag last screenshot I am posting (the last post was me too) I wish there was a way to upload bulk files.
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She has all out posts dedicated to her "best friend in the universe" @chronically.ams
It's a bit odd, they're like munchie twins.
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It’s also way too short. This is an actual nj tube.
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Samefag. Another post dedicated to the munchie twin of hers.
That's because she had an NG first. So I imagine that's just a surplus old tube? May explain why she was giving chronically.ams her NG tubes for draining?
Yes the thinner tubes are more prone to clogs. I only piped in because of the people saying it's too thin to be an NJ when that's absolutely not true. It depends on the consultant. Mine prefers thinner NJ's.
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Someone ain't keen on being called out
I never thought she was lying about that
. Well, I had some doubts for a minute. But nlt after her second post cancer vlog. She's just milking it dry. In a way, she is happy
about it. It's completely weirding me out.
Also this girl doesn't belong here. She is a nice girl and I guess she was just trying to help her friend out by giving her the NG tubes she had so her friend could get relief. Only thing she's guilty of is being too kind.
So please stop posting her,making out she's lying because you think NJ's can't be small (when they can) and don't pick on someone who hasn't done anything wrong and isn't OTT or a munchie. Poor girl.
I know of exactly one person getting saline infusions in Europe. And she's definitely OTT.
I have seen a few people with a feeding tube for extra fluids, which makes a lot more sense tbh.
Yes, your question was already answered >>460258
. Her Youtube accounts are still up.
I wonder what spurred her to change course. Did a doctor finally confront her about her doctor shopping and her munchiness and her codeine addiction?
Post her, please! We Eurofags need to see this sweet milk.
I think chronically ams used to say
she got saline infusions, but I'm not convinced that she did, or that if she did it was for POTS. She just wants to be an American spoonie (munchie).
Speaking of old cows and new…
Can anyone recommend some good, non-munchie or massively OTT accounts to follow? And yes, before anyone kicks off, I get that it's not the point of the thread - not suggesting we go completely off topic, but I would appreciate knowing who is not a nauseating mess.
For example, I follow @strongerthanpots and I like her account because it's not self pitying, she works on staying stable but doesn't pursue endless new doctors and devices, and while she did take some time out of uni, she seems to have gone back pretty normally now and be reintegrating into life. I don't mind accounts where people post about their health, personally, but it's hard to sift out the non irritating.
Saged for OT and the likelihood that no one else gives a fuck
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Becoming a munchie.
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it's a joke people on twitter have been doing
Gypsy Blanchard will appear on 20/20 tonight.
Two of her doctors suspected MBP but were unable to prove it despite Dee Dee's charade being so transparent.http://www.dailymail.co.uk/news/article-5239177/Munchausen-victim-Gypsy-recalls-listening-moms-murder.html
Autumn decided to "take an Instagram break" because it was making her obsess over her health.
Although it might have been because everyone was seeing through her blatant bullshit.
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MBV is back at Breakspear and posting endless story updates. Riveting.
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I thought "chronic lyme" was when you didn't have active infection any more?
Nah mate, symptoms that continue after the infection is gone are actually a thing
Chronic lyme is where charlatans claim the existence of lyme antibodies = existing infection that must be treated with long term abx. Despite there being no evidence of chronic lyme infection being a thing or that long term antibiotics benefit lyme patients. Also those lyme antibody tests are pretty much meaningless and, as we've seen with cows before, tests can be negative and still positive according to "lyme literate" docs.
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One of the ‘seizure injuries’
looks more like a hard wall punch
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UK Cow. Has Crohns and Fibro, which I know because she posts multiple memes about them every day. And, of course, she's waiting for "testing for EDS" because who wouldn't want to have something that disabling?
She's generally not post-worthy, more dumb than munchie, but this made me kek. That's how bruises work, gurl.
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The most sooper serious graphic man hunt that occurred and ‘accidentally’ forgetting wearing a seizure alarm that can track her because hanging herself sets of her sooper rare chiari malformation so everyone finds her and rushes her off to hospital
Ugh, who cares people? Bruises from blood draws happen more often than not. Get over yourself!!!
UK I assume, since OP anon said "NHS".
It makes me think her attempts are all quite… half hearted? Or that she's supposed to have been complying with some therapy but hasn't?
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The UK. Why does it always have to be the most severe ever?
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Endless voices is at it again lying to doctors to get her own way and be a suuuuuper sick person
She's another anachan, followed mostly by ED accounts. I have a lot of ED followers so I can see who among them follows her.
Pretty clear that she paid for this diagnosis and has fuck all wrong with her apart from being mental.
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In the hospital and fucking loving it. Caption says she got iron and blood, so she's very anaemic (can't tell due to all the fake tan though kek). That'll happen when you don't run your feed, or "drain" it all out, ana chan!
It's quite common for there to be some "crossover" symptoms. Like cEDS patients can have subluxation of joints, hEDS patients can have cEDS-style scarring or minor organ involvement (more serious in vEDS).
I mean, that's how my specialist explained it to me. I haven't read the new guidelines properly.
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Some scarring, yes, but not the same, “cigarette-paper type as ceds, and extensive skin involvement is not heds. It’s in the new criteria. Anyways, this cow is just an ana chan turned munchie. 1/2
But it doesn't sound like she is getting her precious tube right now does it?
I don't know much about gastric stimulators but are they completely under the skin? How visible are they? It may get her some spoonie validity points online (but she doesn't even seem to be very successful at that). If it's not super visible then its not going to get her the "I look super sick" points she has been aiming for with a feeding tube.
And sadly I wouldn't be surprised if she has very little support through the surgery - I could see her dad going with her as she will likely need someone to drive her home (is this the kind of surgery that will require an overnight stay?) but I doubt the supposed boyfriend of 14 years will make an appearance. I'm sure she will come up with some excuse like he has to work but if you are in a good relationship and the person you love is having surgery you find a way to be there. She sadly will likely have to recover at home alone.
And seriously how does she not know what the other procedure she is having done is? Can't describe it more than "cuts open the one valve"? I would assume they would give her some sort of paperwork with the names of the procedures being done - but she couldn't be bothered to take the 2 seconds to look it up.
On one hand she drives me crazy because she is obviously someone with mental illness that is spending time and resources chasing imaginary physical problems. On the other hand I feel a little bad for her - I think that her mental illness has driven most people away from her (at least per previous reports here) and since she isn't the sharpest tool in the shed and she is so caught up in the fact that something is wrong with her (I do believe she is actually convinced that she is seriously ill - she sits at home and perseverates on every minor ache and pain thinking it means she is dying) that she isn't really capable of questioning if these procedures are needed. The doctors are going off what she reports which isn't accurate. She will let them cut in to her for any reason when what she really needs is a better therapist and someone to help her find the right mix of meds.
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Swiss cow is back again. She had surgery for her CRPS and for a whole month she had a catheter for painmeds.
Her doctors sent her home even though the nerve pain is beyond tolerable and her breathing could stop any minute thanks to all the meds. What kind of doctor sends you home instead of transfering you elsewhere?
Who is able to write such a long blog entry while taking strong meds AND being in a lot of pain?
She published it at 10 pm on the day she got released and the blog entry is only about her surgeon visiting her before she went home and that she screamed during the car ride.
Somewhere she wrote that she needs over an hour to get home from that hospital and that she takes her meds like candy, but they don't help. So I'm just wondering how can you write such a long and detailed entry while being in pain? She doesn't allow such a question on her page.
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SDP made a second YouTube
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So much pain she can barely pose for a selfie and post it to IG with a long ass comment. Don’t worry though, she’ll still be vlogging today!
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And just a bit later, she’s fine, although she’s still soooper sick, yoo guyz. (If anything her eyes are puffy from too much sleep and purging).
Her post says she was offered The Cassel (and chose not to go). The Cassel is long term residential personality disorder treatment. Residential treatment is quite rare in the UK, as is getting the funding so her local teams are probably pretty pissed off that they put all the effort into getting her funding and a bed and then she turned it down.>>463082
Also yes, I suspect her attempts are very half hearted ligatures. Not that that means she shouldn't be in psych but clearly she has a PD diagnosis to get a Cassel place…
Papery scarring can be part of hEDS. You usually get genetic testing to check it isn't cEDS but hEDS can still have complex skin involvement.
Also whilst I doubt she is actually quoting what Prof Graheme said he is a really really good doctor. Though depending when that post was from I don't get how she got to see him because he has been semi retired for some time and even if you're paying you can no longer get on his waiting list. More common UK profs to see now are Prof. Aziz or a geneticist.
W o w, what a bitch. I know so many who would use that funding and actually be grateful. Can you post some screenshots? What on earth is her justification for turning it down…
I don't believe she ever saw Prof G. Someone who has qualified for ip psych treatment in a specialised unit here in the UK is easily fucked up enough to just be lying.
The post I've tagged below goes to the screenshot where she says she turned down Cassel.
As for her justification I'll have to go follow her on IG. I'm not the anon who was posting original milk about her.>>463064
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Soo tired and sick but make up on point
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To go with pic
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Meet Shayne, aka thehappyspoonie! “They” have all the trendy disorders: EDS, POTS, tachycardia, gastroparesis, allergies, generally compromised immune system now requiring a vog mask prescribed by doctor. Vegan, non-GMO/only organic, anti-vax, also anti-calcium chloride (tf?), and probably fluoride, too. Cuz pOiSoNz.
She said she was scheduled for a gallium scan, as those kind of tumors don't show up on a normal CT scan.
In the interest of full disclosure: I am partial to the theory that she DOES have cancer, but that she is loving every minute of it.
However, I too find it strange that they canceled her scan in lieu of a colonoscopy. As a lay person, I would've expected them to do a scan before
her surgery. Because IF she had other tumors, then maybe they could remove them all during the same surgery?
I don't get the prep though. She's been on TPN and though she had been eating some stuff, I'd expect it to be clear stuff mostly, like broth and jello. She would hardly need a prep after that. I also agree that no hospital would put her through bowel prep if she couldn't sit up and was in so much pain. That would just be torture.
But I also think they are kind of desperate to find anything
to explain the fact that she can't tolerate her feeds. They wouldn't just sent her home with TPN when there's no explanation for this, so they are probably trying to find out what's wrong before they discharge her. No doctor likes to discharge a patient whom they know won't be getting any nutrition at home. But there's also no medical reason thus far that would explain why she couldn't just run her feeds (or eat, for that matter) so they are probably grasping at straws here.
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MyBlondeVoyage has mold poisoning because of course she does. Alternative health clinics LOVE mold poisoning. I'm not sure why they had to send samples to the USA to get analysed though.
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For someone who constantly claims to be so malnurished and for so long, she sure does have quite a good bit of muscle mass and fat on her arms. No malnourishment whatsoever……
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As you can see… even December 30th, a few days after PICC placement and TPN, she already had great muscle mass and tone… no malnourished individual here
So malnourished she is gaining muscle mass IN THE HOSPITAL.
Also pretty quick turn around from 'I can't even sit up' to 'I'm on the roof garden posing with my IVs'
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From the comments on SDP Dom's Instagram post announcing a video entitled, "One Minute Fine, One Minute Not.">>458749
After getting called out by a few followers for being racist, she deleted the post.
She zones out at around 16 minutes in while eating at Chili's.
Otherwise the video is the usual snooze content including watching Max pee. Once again, Chase doesn't wear his seatbelt while driving.
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Today's vlog, still uploading.
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The placement of that aquarium irritates the shit out of me. And get some fucking curtains.
Otherwise this video is 30 minutes of her nearly passing out while shopping, complaining about people talking to Max in the store, and hanging up cheap ugly prefab decor and Motel 6-worthy art prints throughout the house. She didn't have any problem standing for prolonged periods with her hands above her head while she hammered nails into the walls.
kek, her shirt
"Anything is Possible" - I guess she had than in mind when she wished hard and whined hard for her "lifesaving" TPN.
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Sorry but she’s straight up lying. Cancerous Neuroendocrine tumors ARE treated with radiation and chemo….. they run in my family. Why should hers be any different?
Right after surgery my Aunts Merkle Cell areas were radiated.. it’s called adjuvant therapy. And they didn’t wait to do a PET scan, so why they would wait for her is beyond me as well. As for my other aunt, she had “targeted therapy”, after her surgery, radiation AND chemo, which is a treatment that targets the tumor’s specific genes/proteins/tissue environment helps it growand survive..
So…. case in point… why she is lying about cancer is so low.
Sages for mini rant about family
God please someone call her out on all this bullshit. This is too far. To lie about malnutrition is one thing but cancer is a whole other ballgame… that’s just fucked up. We need a real spoonie Knight to call her lying ass out ..
And to be asking for shit from people, good god. Making me sick to my stomach
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Lol. Even the doctors are blunt.
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Complaining of low blood sugar despite adequate volumes of NG feed (she has even posted today she has gained some weight from her initial big loss)
Maybe another one who isn’t running feeds as prescribed?!
True in her case. The one small comfort of the American munchies is that they have to pay for their shit. And honestly the same goes for the woo crowd in Britain who use Breakspear.
The very worst are those who abuse the NHS and waste time and resources. I don't care much what people buy for themselves even if it's crazy bullshit, but don't expect the public to fund your factitious illness and also take resources from the truly sick.
Sage for moralfagging
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related comment on Aubrey's instagram post
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I think she's bullshitting.
My aunt had a malignant tumor in her breast caught very early, they removed the tumor and still gave her radiotherapy just to be sure. With most cancers you definitely blast the area afterwards.
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Someone is butthurt
And how can she claim that it isn't metastatic if they haven't done a full body scan to make sure there aren't any other tumors? Wouldn't they have to first check to see if there were other tumors and then test them to see if they are related to the initial tumor.
It is odd that she doesn't talk about what stage the tumors were. I think it is possible that if the tumor was caught early and hasn't spread that surgery and regular follow up is all that is required. That being said its not super common to find a PNET tumor early - Aubrey undergoes so many unnecessary medical tests that I wouldn't be surprised if they found it early.
I am not sure if it is or isn't cancer - even if it is it think it was caught so early that the likelihood of it being fatal is small. And she is probably thrilled about that - she gets to claim cancer without having to undergo any of the usual associated treatments.
Regardless I think it is very suspicious that she hasn't had a full body scan yet. If they thought they could wait a few weeks to remove the tumor they certainly could have fit her in for a variety of scans prior to the surgery - after all if you find more tumors you might be able to remove them all at once to avoid undergoing anesthesia multiple times. Plus knowing if there are more tumors would help figure out if it was malignant cancer which could alter the course of treatment.
She may have cancer but she is definitely BSing as well.
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Found this on a pretty milky account that called aubrey out I found it quite funny.
That's the milky account I was talking about. Vogmask - check
Wheelchair - check
Super serious oximeter posts - check
Feeding tube and port? - no check but she's in England so.
OTT posts about how self diagnosis is okay - check.
Hospital selfies and medical test pictures - check
She ticks off my list for OTT
I personally think she is a cow that wants to be a farmer & thinks farming will make her exempt from being called out for being OTT
She's into the cripplepunk schtick, which is nauseatingly boring. One of the worst chronic illness tags.
If she was in the US she'd doubtless have a port and tube by now.
You know, it is sad, right?
We come here to call out the "OTT Spoonies and munchausen sufferers" but… how many of us ARE what we are calling out?… mindblowing right?
I am pretty certain about 75% of us on this thread are OTT to some degree at some point or another, even if we don't mean to be.
Sage for poking fun
I feel you there, I've noticed a lot of the whole "I am so much better than these 'munchies' because I handle my super serious illnesses better than they do and I am capable of living 'normal' life and working a full time job"
I mean, I have bets that only a few of the people posted here are faking it. I wonder what would happen if we were all to find each others accounts and pick apart every little inconsistency or OTT post ever made on the internet by us anons.
World war 3 would break out in the thread.
This thread has become a viscious cycle of OTT spoonies talking shit about OTT spoonies. It's really not what it used to be
There is more to it than that though; not all PNET cases are the same. Aubrey mentioned that her tumors were entirely resectable (removed whole without disturbing margins) and that they were non-metastatic, and in this case, surgical resection can be the only treatment needed.
In the screenshot in >>464514
, she states the correct clinical trajectory in her reply comment: "1st line of treatment is to remove it and then further treatment depends on what grade the tumor is / if they were able to get all of it surgically."
I think people need to settle down with the "ZOMG 100% LYING" accusations. None of us know for sure. Speculate away, everyone, but please don't make definitive assertions without adequate knowledge.
That said, is she loving the fuck out of this? Oh hell yes, she is clearly thrilled and getting off on the attention and drama of it all, but does that mean her tumors are not malignant? No. We just don't know without her pathology report.
TL;DR: Her story is feasible from a clinical standpoint.
True maybe, for the cancer part, but not all the other stuff, the malnutrition, “severe” abdominal pain, not being able to tolerate her feeds, having GP and POTS, having chronic Lyme, needing a service dog, the list literally goes on and on. Even if she’s not lying about one thing, her whole life is still a lie.
when your friend found out she had cancer, did she come to terms with it within 24 hours and smile the whole time and did her family not even visit her? Because that's how cancer diagnoses work in Aubrey land!
how does anyone still think that she actually has cancer lololol
I am sick of that too.
I have EDS and it pisses me right off when anons post about people saying "I HAVE EDS AND THIS ISNT HOW YOU SIT AND YOU DONT BRACE THAT YOU DONT STAND LIKE THIS" or "SOMEONE WITH EDS WOULD NEVER…" or "THEYRE USING A WHEELCHAIR THEIR EDS IS FAKE" and it's like dude, chill, just because someone doesn't deal with their EDS the same way you do, or just because someone's EDS is less or more severe than your own, it doesn't mean it doesn't exist.
Which brings me back to this site being a cesspool of OTT spoonies calling out OTT spoonies, giving it "MY EDS IS SO SEVERE THAT MEANS THIS PERSON IS LYING"
Again, unless people have definitive proof people are lying, this thread is for speculation only. Take Eli for example, we speculated he lied about cancer, he was proven to be a fraud and charged by police for scamming a charity - we now know for a fact he did lie about having cancer, before then it was just people speculating and picking at inconsistencies. There's no way to know for sure who is and isn't lying until they get caught by authorities, so please everyone - do not speak of people as though it is gospel on the thread, take everything said here as speculation, not facts.
I’ll be honest, I was definitely OTT about my illness. Thank god I found this thread and realized I don’t want to be anything like these cows, and have since stopped posting OTT “pity me pls, gimme attention” spoonie shit on instagram. This site saved me from becoming a full blown cow kek
I mostly lurk here to keep myself in check
sage for blogging(USER HAS BEEN PUT OUT TO PASTURE)
Y'all, this is becoming painful. Can we please stop with the "she's lying" because my friend was diagnosed with cancer and had chemo and a PET scan six minutes later.
Aubrey has had a biopsy. The tumor was malignant.
She is in the Texas Cancer Center (whatever it's called) system, which is a HUGE network, but they follow national protocols, research clinical trials, and if a PET scan or whatever can wait, it waits. If she needed it yesterday, she would have had it yesterday.
She was supposed to have the gallium scan before her surgery, but her feeding tube issue caused her to be hospitalized and when you have cancer (or an oncologist involved in your care who belongs to Texas Cancer Center), they stick you on that floor because NO ONE ELSE will touch a Texas Cancer Center patient while they are in cancer treatment. The oncologist runs the show. Full stop.
Now, this is not totally true (i.e., if you live out of town, you might go to your local hospital for a blood transfusion, react to that, be admitted, etc.), but I guarantee the doc at that hospital is on the phone with your oncologist. Or, if you run into a crappy hospitalist doc, they may arrogantly try to treat you, but your oncologist will be pissed.
I believe Aubey's family (her parents) live states away, so unless she's asked them to get on a plane, I don't think it's that easy. All the locals have new babies, so they should not be visiting her while she has mystery fevers, rumors of c.diff, and all that but some still are, as evidenced by paining with the young nephew. Her mother-in-law and a friend of the MIL have been walking the dog daily in the mornings, so enough with the "no one visits." She had a room-full for the tumor goodbye party.
I guess what I'm saying is that if you want to rail on Aubrey at least watch her videos or get the facts as they are being told straight. (If she is lying, at least get the lies straight.)
Thank gawd! >>464748
If you're going to argue with me, stay on point.
If you want to poke at my argument, stay on track. I'm talking about her cancer claims.
I said nothing about her being malnourished or 30 other things she claims, so you can't really say I believe all that since I didn't even mention any of it, can you?
I responded to the questions about whether she had a biopsy/if she said whether her tumor was malignant and y'all are calling me out on not saying she's lying about being malnourished? How do you even know if I think she needs a feeding tube?
Y'all are cute and fun to argue with since none of us can really know anything, but I have to call it a night.
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Here you go. Your requested image.
Do YOUR homework. There is a huge difference between a MALIGNANT tumour (meaning actual cancer) and a BENIGN one (non-cancerous). Yes, this is included for a lot of tumours, like the one I had in my nose which was non-cancerous. Tumour does not automatically mean cancer. Stop equating them. They are not synonymous. https://community.macmillan.org.uk/blogs/b/neuroendocrine_cancer_awareness/archive/2016/12/15/neuroendocrine-tumours-benign-vs-malignant
She didn’t state that the pathology report said it was malignant. She said it was non-metastatic, which simply means that it hadn’t spread. FYI, having multiple encapsulated, non-infiltrative, easily resectable NETs with zero lymphadenopathy and zero metastasis usually does not indicate malignancy. She’d also likely have chemo anyways to obliterate any remaining malignant cells.
inb4 she starts methotrexate or something.
She’s said surgery was her only treatment, unless that’s changed. So I doubt chemo, but I’m sure we’ll know sooner or later. Although chemo doesn’t automatically mean cancer, either. But also, look at the probability. Her brother had the same thing, and his was benign. Those kinds of tumors are rare, even more so in young people. So her having cancer is just incredibly improbable. Is it possible? Yes, it’s possible, but considering probability and family history and her personal history, it’s very, very unlikely. She had two tumors that they took out, it’s not cancer, and unfortunately for her, she’s going to be totally fine and live a long healthy life unless she whines her way into long term TPN (that shit is bad if you don’t absolutely, no other options need it).
Except a bunch of them end up mooching off the government disability programs, and thus aren't really paying for it at all. Other people's tax dollars are paying for it which makes it not much different from NHS in those cases. That's what gets me with these fakers, they waste everyone's time, and other people's money just to play some disgusting game of " I don't wanna grow up".
Sage for being fed up with children who can eat but won't.
I feel like it is almost worse in the US?
In the UK because of the NHS barring some exceptions (i.e. CPL) most people will just get told to get lost. You can't just switch doctors, your medical records follow you everywhere. So whilst it is bad because time= money and time= time a doctor could be with a really ill person. (Especially atm, if a UK munchie is currently in hospital or using ambulances unecessarily they are literally scum we're having a hospital crisis).
In the US because you can doctor shop (seemingly even on government assistance?) and it seems easier (?) to fundraise via gofuckme for literally anything (!) AND because the US health system is the most expensive in the world a) no one seems to tell these patients to get lost so they stay in the system longer b) doctors are used to expensive 'solutions' like saline, ports, tubes that involve expensive management i.e. homecare, surgery etc.
So overall US munchies cost more and get their munchiness fed into more. Mostly in the UK you just can't do that (like I said, excluding exceptions).
Will post screenshots in a bit but CPL is coming off loads of her meds to try and concieve again.
Nah, in order to be a supermunchie in the States you have to be wealthy. Look at the ones misusing the NHS - Paige, Ruby, HypermobileGuy, Chloe Print Lambert, Ams before she moved. There's a range of incomes and backgrounds even when you ignore the Breakspear Squad who are rich (MBV) or crowdfunding.
In the States, while there will be some abusing welfare of course, to succeed at MBI in particular you need far more drama and excitement, and more control over your treatment options (aka doctor shopping) than is possible on a low income. No one can copy Jaq without money.
I'm always sus when I see someone with "EDS" get a new wheelchair and it's top of the line, fancy, IG friendly, all that shit. 98% chance they don't need it and want the spoonie cred.
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Not strictly cow relevant, but a lady I know retweeted an an interesting article yesterday by this kid who wrote a pretty long-winded but interesting essay about why people are doing this shit. I think it's the best explanation for cows that anyone has so far come up with. You can find it here: http://chrisvoncsefalvay.com/the-cult-of-suffering/
The middle is pretty wordy, so you might wanna skip that part but the end explains muchieing so well.
wordy but really worth a read
>I found virtually nothing, save for a small number of females who have been in treatment for FII for some years and offered a valuable insight into their thought process. One point I remember to this day was that while they initially did seek the attention that came from the sick role, what they really, really craved was the role of the ‘fighter’, the strong and resilient person who faces disease and trauma with courage. They wanted to be called brave. They wanted to be called fighters. And more than anything, they wanted someone to acknowledge their actions, praise them and tell them they could be proud of it.
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So I'm on this spoonie pen pail site. I know lame. Everyone's pretty legit, a couple occasional munchies for the most part alot of them seem believe able guess who Fucking graced us with her presence?
At the risk of having a lot of people say the very same thing to and about me:
I don't think that's fair.
We all believe different things. Some may think that cow X has factitious disorder, others think they have some genuine health issues but are really OTT about it, and yet others think they are either malingering or .. well, whatever they believe.
I happen to believe that Aubrey is a giant munchie and that she doesn't have anything she claims, except
the cancer, unless it is proven that she doesn't. I also think she is loving every minute of her 'cancer warrior' status. I find it sickening how happy she is to add that to her hashtags. Yet I don't think she is lying about that one. I can give you my reasons for that, but that doesn't really matter right now.
I do however belief that her cancer diagnosis is more up for debate then most of her other health claims. Chronic Lyme, in the way she is presenting it, isn't even a thing (except a woo diagnosis) and it is very clear that she doesn't need a feeding tube just from looking at the feed rate she is using. Whether she currently has some pain or discomfort during her feeds is also up for debate, but what IS known is that in the days just before her most recent hospitalization she wasn't even trying. There's also clear evidence that she isn't malnourished.
The cancer diagnosis, IMO is more difficult to either proof or disproof. There is clearly something
going on for her to be hospitalized for so long. So yeah, some of us think that this is one of the rare cases where the girl who cried wolf is actually sick. So I don't think it is fair to call someone who basically just says "tone it down a bit with the 'OMG she is lying about having cancer' because we simply don't know
and there are indicators that can go either way" (and you may notice that they are not the first to say this, including a self-declared medfag) an Aubrey-admirer, lolcow, WK or say that they must
be Aubrey. They simply said that some things that were being said here (like that she didn’t had a biopsy and therefore could not know if the tumor was malignant, or that she had no family visit at all, or that it can't be true because they weren't in a rush do operate - just so you know, if a tumor is slow-growing a couple of weeks don't make any difference outcome-wise). NOWHERE do they say that they think Aubrey is legit in any of her other claims, or that they like her.
We make some sort of a hobby out of finding out the truth about people who are lying online. We pick apart entire accounts to see if we can find out the truth. But if someone points out evidence that maybe
the truth is a little different then the predominant opinion on lolcow, they basically get tarred and feathered.
Like I said; I don't just think that's fair.
Huh, a mention of surgery is now a trigger
? On a site for chronic ill people, no less? That's kind of insane.
But don't things like "She is lying about cancer, that's the lowest of the lowest" or "of course she is lying about having cancer", "someone needs to call her out on this, this is going too far" also indicate that people refuse to believe they may be wrong? A lot of people have been very
vocal and very
convinced about this.
I don't want to make it into a big discussion about how to or how not to speculate about someone's health - I am not the judge of lolcow. I just saw someone attacked who in my eyes just told people that some of the conclusions about Aubrey were based on the wrong facts. Now that conclusion may still be the same, but as Sherlock Holmes said: "it is a capital mistake to theorize before one has enough data".
I don't care if other people are convinced she does not have cancer. However just like I cannot be sure she actually has it, they cannot be sure she doesn't have it. And I think that someone who has another view might not be as inclined to defend someone if we all would word our views a bit more careful. I think a lot of discussion can be avoided by simply adding "I believe that.." or "I am convinced.." to a post instead of stating things as fact.
I know; this is boring. Let's go back to the milk.
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Good fucking god there is a lot of sperging about Aubrey. This is starting to feel like Kelly Ronahan 2.0, where the sooper srs medical mystery was all a fucking lie, and Kelly WKed herself constantly.
Early prediction: Aubrey and/or her flying monkeys are already here trying to firefight our poor opinion of her and her Suffering TM.
BACK TO ACTUAL COW-PRODDING.
Here is a recent post by Amanda, where with her healthy, clear skin and full cheeks, is whining about living off of less than 300 calories a day. Boo hoo hoo.
These ana-chan cows always mystify me, because they don't actually suffer under a physically mediated reduced appetite, and the way that they talk about it is clear. Judging it by calories and portion sizes is strongly reminiscent of intake control for anorexics.
When you actually have reduced appetite due to a disease process, there are different metrics you judge your willingness to engage in food, rather than how many calories. So nothing terribly out of the ordinary for the tube-fed anorexic crowd, but just one in the plethora of girls we've seen bravely parading their "malnourished" state.
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And here we have Molly pathologizing being dehydrated. Getting EMS to respond for being wobbly, especially in this kind of fucking weather? Unreal.
And I like how she's saying her symptoms must match low blood sodium.
But gotta get that sweet, sweet saline bag, ferried by her private limo service, given how often EMS must get called to her location. She's one of the many cows who spent at least a few days in the emergency room during Christmas, which again is a very very telling sign across the board for these bitches.
Everybody's gonna get validated and have a good time? Whoops, gotta put a halt to that, direct all the attention on me, and fake a medical crisis so everything can be about ME ME ME. My god, these women are so selfish and to be honest rather mean spirited. All of this shit is intentional, and they decide to make the people who care about them worry during what should be one of the happiest times of the year.
I tend to agree with that… kind of. I think her crazy munchiness lead to an abundance of medical tests that possibly revealed that she has the same type of neuro-endocrine tumors that her brother had. I do not think they are malignant. She found out way too early for them to definitively say it is cancer. I just can't imagine things work that quickly, but again, I am more behind the scenes on the financial side and not the clinical side, so I don't know how quickly this stuff gets diagnosed. But I think she is milking this for all it is worth.
True pancreatic cancer is quite terminal, isn't it? I just found out about a friend of the family who has been diagnosed with pancreatic cancer and he has been given 3-6 months to live.
I also know of a coworker who had pancreatitis and it was incredibly painful for him. He was out of work for a long time. I cannot imagine anyone vlogging during pancreatitis, even with drugs.
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Back to the milk, right?
I thought this was funny. Aubrey tells the camera that they will probably be travelling out of state to see a specialist, "because it's a really rare cancer, and.. It's kind of frustrating (and THERE is her grin) because I feel like I always have to seek out these specialists.." (at about the 4.00 minute mark)
As you can see, she thinks it's VERY frustrating to have all these 'rare' things wrong with her.
Regarding OTT spoonies.
I have two thoughts. One is, does anyone else have major doubts about Lara Bloom? I know she has a different strategy to the anachan brave lil fighters, but I am … not convinced she actually has EDS. She comes off as incredibly narcissistic and not really concerned with the illness, given how she follows many obvious munchies (e.g. actively and vocally supported Carmel with the EDS Society). She seems to me like someone who is potentially using very mild illness, probably benign joint hypermobility, for massive personal gain and self enrichment.
Second, I have also been checking out EDS UK and they seem pretty whack too. Lots of reposting from shite accounts like "chronicloveclub" which are breeding grounds for OTT and full on munchies. Real sick people aren't interested in that crap.
Not doubting they are both legal charities, but they both set my OTT (at minimum) alarms blaring.
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Why is she always in tank tops? Hospitals are always freezing, on purpose, plus being underweight or malnourishmed (kek) makes you freeze even when it’s warm. She’s that desperate to show off her lines and tubes. Also managed to get in all her hospital bands.
Her lines would be hard to access in much else other than a tank top to be fair.
She does always manage to pose so all lines are visible though i.e. her right arm in this shot.
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So much pain she couldn’t move, emergency colonoscopy. (Still no pet scan, though). She looks super upset, guys. Not like it’s her favorite thing in the world or anything. ( who lets these cows take all these surgery pics?)
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I hope we continue posting Tina. Idk why someone here made her out to be innocent lol. Shit ALWAYS goes ‘wrong’ with her procedures/tubes/surgeries, it’s the biggest load of bull.
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Guess who gets to go home on tpn. She’s ecstatic that she won the munchie grand prize. It’s quite horrifying at this point.
(Also, what feeding intolerance? You can’t have an intolerance if you’re fully capable of eating. That’s called an eating disorder).
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Already lots of asspats from followers too
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I'm no service dog expert - my only firsthand experience is with the mother of one of my clients. She's blind & has a seeing eye dog. That dog is a ninja. The first time I met the family, I didn't realize the service pup was there until halfway through our visit. I've sure never seen him play with toys or leave his spot under his owner's feet. Yet here is Aubrey's "service dog" chilling at the window, back to her, surrounded by toys. Seems legit.
the overwhelming majority of people posting who associate themselves with the idea of cripplepunk in any way are at the absolute minimum OTT, mostly MBI verging on actual munchies.
Whichever anon was bitching about not knowing who Lara is - she's the top person of the EDS Society, constantly travels for them and attends events, is always networking and socialising, and so on. You can google her. The milk is different from regular munchies, it's not the typical ana hospital pics, but egotistical use of "illness" for narc supply and gain.
It's cool for the dog to have some chill time, service dogs need breaks, but bringing a whole toy box full of toys to play with in the hospital? Yeah not necessary. I remember seeing a video of them playing fetch, IN THE ROOM. But yeah I think that's 100% unacceptable for it to be sitting on the furniture at the hospital. If the dog MUST stay with her, bring its own bed so it has a comfy place to chill.
Also her dogs nails are long as fuck and badly need a trim. She's at least cute…
Please tell me the puppy isn't a SDIT?
I had quite a lot of respect for Annie but she's started advertising Jaquie as a good person to follow for advice/inspiration. Oh boy.
If she supposedly has cancer, and they haven't done a PET scan yet/have no treatment plan other than surgery, how is she going home?
I mean, obviously she could be going home because she doesn't actually have cancer, just a benign tumor, and therefore the hospital doesn't want her taking up an Oncology bed.
Slow-growing cancers aren't an emergency. My husband had RCC and it took weeks between biopsy/dx and nephrectomy. Her being d/c is not an indicator of whether her tumors were malignant or not.
She is so classically ~*la belle indifference*~ over her whole experience, it's disgusting.
Hooray, dogs are awesome!
(sage for joy)
kek so she decided to go one further and claim she's not tolerating it to get TPN
I can't wait until her digestive system fails and she finds she's stuff on TPN forever even after she realises her mistake.
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Whoops I lied, the fastest she ever was at was 35. A whopping 1,260 calories a day if she was running it 24 hours a day, which is, again, impossible. Even continuous feeds have to be stopped to refill the bag or change sets, to give medication, and to shower. But she’s been everywhere from 35 to 15 ml/hr; most hospitals don’t discharge you after your first tube placement at less than 50 ml/hr. Normal for an adult with a gj tube is 80-120 ml/hour for at least 16-18 hours a day, since continuous feeds aren’t great for your gi system.
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Sorry there’s no dates, if anyone’s curious, her IG’s public.
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As far as her tube goes, she “accidentally” pulled out her nj tube in August (pics 1&2), and was left without one until over a month later (3&4). Those tubes don’t just come out, they’re taped way down, and they’re far enough into the small intestine that it’s lots of pulling to get one out. And no one who really needs a feeding tube is left for more than a day without one, let alone over a month. Also, she’s creepily elated to get a gj tube.
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Looking back at her account is wild, just seeing how much of munchie she is.
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And the most telling pictures of all: first is before she started any of the munchie shit, a few years ago. Second is a few days into her hospitalization for “severe malnutrition”, a week ago. There’s barely any difference.
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She just wants that sweet, sweet tpn. I have a feeling is been her end game all along. Here’s the second pic, just starting tpn, unable to use her feeding tube for weeks. She practically disappearing kek. But really, look at those guns.
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And another recent one. She’s maybe got some fluid changes, but so does everyone. (Also drinking a beer, a month before desperately needing tpn, but whatever)
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Back in 2014, idk when she got Lyme, but why else would she be on all these meds back then?
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Doesn't explain why she needed the EEG.
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That's a lot of medical records. She hasn't posted anything in a hospital or doctor's office up until this point, only about feeling crappy a few times or having the flu.
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Diagnosed with Lyme and starting treatment.
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Doesn't say what the injection is.
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Kek. All the molds. All of them.
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First mention of tachycardia I believe.
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That ever present smirk. Kek just wear sunglasses.
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First time POTS has been mentioned I believe. Also, idk why the doc would go straight to PICC.
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That pose, gotta show off the pic!
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To be fair, she does look like she's in pain in the previous image.
But 6 months of treatment down!
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Look at them abs!
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First time tagging POTS I believe.
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Since when is she immunocompromised? Never mentioned it before…
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Again, most look OTC supplements.
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First mention of port.
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Mold free you guys! Lyme should be gone in 6 months!
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Since when does she have chemical sensitivities?
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There go babesia and bartonella!
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Forgot to mention in last one, but first mention of Gastroparesis, though she hasn't really complained about her stomach before this.
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Now is tagging her posts with GP, though she never posted about getting a gastric emptying study done or any tests…Hmmm….
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i appreciate the anon going through her old stuff. when you see what she was like around her first ig post in 2013, she actually seems normal, with real goals, friends and hobbies.
sorry to get the posts out of order for you
She started going veggie at one point, and cut a lot of stuff from her diet after Lyme dx. Not being able to eat a lot of stuff could have triggered
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lel compared to her bikini port pictures and pushing her collar bones forward anachan style, yea looks pretty ed related
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Kek. Probably cause he saw right through your BS.
25lbs in 2 months? ED much?
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Whomp there it is. Ladies, Gentlemen, and those who haven't made up their minds…I present Ana-Chan Aubrey!
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Looking very ana compared to her old pics.
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Yum. Time to lie about results.
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You say the results confirm GP? Funny…Anorexia can cause GP because your stomach forgets how to work when you starve it.
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Look, I can breathe out too.
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Uh oh guys, the medicine isn't working…Is that a tube I hear in the future?
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Her…dad? is going to insist on a feeding tube? Why, because your doctors know you're an anorexic munchie and won't listen to you?
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No honey, you started this instagram as a personal account and morphed it into the munchie asspat heaven it is now.
(I'm done with screenshots for now, because we all know what comes next: Liquid diet, Kate Farms, Feeding Tube)
HAHAHA WOW! Another cow sees or saw the same electrophisiologist. You're not even allowed to have anyone in that room or any other autonomic testing room. There are also many signs asking you to refrain from taking pictures or using your phone. I know exacty who that doctor is from the poster on the wall.
She had to have only went to him for her diagnosis and another doc for her precious PICC. There is no way in hell she actually got it from her POTS doctor.
If this is the same doctor who diagnosed her with MALS (very likely) she may not have it. I believe he is seriously over diagnosing it in thin women who aren't actually symptomatic.
Absolutely not. It sucks that the OTT crowd has tarnished the reputation of saline infusion therapy. Some patients do not maintain adequate blood volume and saline infusions are a critical game-changer in their quality of life. Fuck these drama queens for even making people think this way!
TL;DR: It's a legit therapy, but OTT/Munch crowd gives it a bad name.
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Kek. "I posted about not being able to find my IUD now look how bloated I am!" When do you all think she'll say she's pregnant?
She claims Lyme caused both epilepsy and gastroparesis.
And even though she's not mentioning it, her username is still "Aubrey's Lyme Journey".
Kek, sounds like you get them.
There's a reason why they aren't available in the UK, just saying. For POTS/EDS, it's not a necessary treatment for like 99.9% of people, meaning that yes, those getting it are OTT. Especially if they use it for drama. There is a minuscule percentage who may genuinely benefit (sucks to them if they're British, sadly), but we have no way of knowing who that is, and I seriously doubt they even post it on Instagram.
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ugh don't give her ideas!
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the first commenter has a good point though, she was having issues with her IUD
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there is gabapentin too. while it is used to epilepsy and some pain issues, its used for anxiety as well.
and i think i see naltrexone which is used to help treat drug and alcohol issues
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got that sympathy money
Naltrexone is also a popular drug in alternative medicine. Seeing as she has chronic Lyme and sees a 'Lyme literate' doctor, that's probably why she takes (took?) it. The theory is that a low dose (LDN, for low dose naltrexone) teaches your opiate receptors to make natural pain relievers. Well, something lke that, anyway.
But seriously who wants te whole world to know which meds they take so they can pick it apart? Even Jaquie doesn't share ALL of her meds.
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Here's other views. 1/2
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I agree it looks more like a pregnant belly than bloating. Normally I'd say she could be pushing her belly out and since she was pregnant not too
long ago it's easier to do that and have it look like this. But I have to say she looks pretty relaxed for her to push her belly out and hold her breath.
She doesn't have a pregnancy line though, but it could easily be too early for that.
I don't know. Did she react to the pregnancy questions?
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It appears she was on IV "something" before this GFM, which means she probably couldn't pay for it. The instagram pic of her medical records is from March 2016. Both her and her husband are students, so I can't imagine they actually have any money. If they do have an insurance policy through their university, it won't cover much.
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Aubrey's earliest mention of anything to do with illness is on her instagram post on Dec. 22, 2012. She talks about sneaking a therapy dog into a hotel.
A therapy dog is supposed to be for hospitals, for sick people. Their handlers are normal people who volunteer their well trained and friendly dogs to visit people who need it.
An ESA is a personal pet that provides comfort.
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Look again. She posted this reply yesterday.
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The timing of her post makes me think that she is reading here.
No money to get tested? She has insurance now, even if she has blown all of her Youtube income on truckfulls of crap from Walmart.
Ok.. unless I am reading an intonation that isn't there, she basically means to say:
"anyone who thought I could be pregnant is a giant asshole (even though I just
posted about how I 'lost' my IUD) because ANYONE should know that because I have a condition (that has NOTHING to do with the GI tract) I am super sick so my sticking out belly can ONLY ever mean that I am even sicker and if you did not magically understand that from my first post you are clearly an ableist son of a bitch."
..something like that?
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she was just going to uwu cancer points with a beanie hanging out with her nephew. she may be a big ol manipulator but Aubrey has shown that she does like kids if you sift through her older ig stuff. shes back to being WaCkY Aubrey with her toob feeds! 15ml so painful!
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I knew aubrey reminded me of something.
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First off who the hell gets insurance that ONLY covers primary visits? Second, all the fucking money she's spent she could have gotten good insurance or paid for the test. She's so full of shit.
Yo, can we scribble out the non-cow names in comments and such? It wouldn't bother me, but there are some people who would rather not have their name on this site.
plus the commenters aren't the focus, the cow is.
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Drama Mama now thinks she broke her ankle but first gotta stop and beg for the all important tube kek
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In relation to last post
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Because her gtube and ngtube she never uses weren't working guys
Nooooo way *kek
Screen name please
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Kek at the people in the comments calling her out.
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YOU GET TPN! AND YOU GET TPN!ahem
Do I get TPN if I guessed correctly?
When you have a painful injury, maybe asking your followers a Y/N question isn't the best thing to do.
Is there a system like 111 in the USA? Here in UK we call that if we don't know which service is most appropriate and they triage us. It's fairly flawed, but it is there….
I'm guessing some doctor said it was not advisable for her to try and get pregnant at the moment so she's taking that as a chance to vlog about how heartbroken she is?
Saged for compete and utter speculation.
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>multiple chronic illnesses>child under the age of 2>cancels insurance after only 2 or 3 months
Does Chase's employer not provide insurance?
She needs to get her insurance sorted. The GOP is still determined to dismantle the ACA.
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Aubrey started feeds at a whopping 15 ml but now this.
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She's home! But not for long cos so much pain
There is literally no point to her even running her tube at that rate. Plus, she’s got her precious precious tpn. Pretty sure she wants to be fully on tpn, and is going to claim she can’t handle any of her feed (despite being able to survive totally tubeless nearly 6 weeks just a couple months ago). >>465942
This is horrifying. There are actually sick people who work full time to make enough money to survive (it’s pretty difficult to live independently on disability here). And here she is raking in the cash for her fake illnesses.
This is the most frustrating shit.
I had a failed fundraising attempt to get myself a wheelchair, but this bitch is getting handed free money?
I hate munchies so much. Toss em in the loony bin until they smarten up.
Yeah, similar in the UK. People fundraise for chairs and shit here and it's an instant signal of OTT/munchie - there have even been anons in these threads bitching about how they had to do it because MUH ILLNESS. But if you actually do need a chair, even a fucking expensive one, even for EDS or similar - wheelchair services will fund it.
And then there's CPL and her movie chair, kek. Don't know how anyone can believe she is ill when she has a literal prop
as part of her act.
Given that you mention Walmart, sounds like you're not in the UK, which is the example in anon's post.
But a lot of people think they need fancier chairs than they do.
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Shockingly, not even 24 hours after this post, Aubrey made a whole post about Lyme for the first time in ages.
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1/6. That dog looks fucking terrified, and his "alerts" look like begging/she called him up.
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She says she has an ovarian cyst. Before you know it she's going to escalate it and claim endometriosis.
Watch his "alert" described in >>440201
The 20/20 episode about Gypsy Blanchard is onlinehttp://abcnews.go.com/US/young-wheelchair-bound-woman-treated-illnesses-ended-prison/story?id=52138979
She was seen by "at least 150 doctors" but only two were found to have questioned the legitimacy of her diagnoses. In response to one of them CPS visited once and found nothing amiss.
Her mother forged documents several times to alter her birthdate to make her younger and claimed that her medical records were destroyed by Hurricane Katrina. Did none of her many subsequent providers pursued obtaining her records directly from her previous providers?
The show did not examine whether her ability to get away with it was a fluke or if the case reveals easily exploited weaknesses in the system.
Hooray! TPN for me! (Cause I totally need it)
Honestly, with how ana her body seems right now, it doesn’t surprise me in the least. Kek.
Anon I was hoping somebody would post this in the munchie threads!! I kept up with the story but don't regularly post or read here so I was hoping someone else would first so I could comment.
There is a great doc on YouTube about it. One doctor NOTES that the mom exhibits munchausens and nothing is done about it! Someone else in the hospital even remarks that everyone knows about it and that the two are to be treated with "golden gloves".
Actually in most cases USA munchies are exploiting the Medicaid system which is free healthcare provided by the govt to ppl who are below a certain income level. Ppl with private insurance usually aren’t munchies because they have to pay out of pocket for a percentage of their BS. Medicaid is 100% free and terribly abused by poor and indigent ppl because, why not? It’s free!! Hospitals and doctors don’t report fishy shit by munchies because they can bill the system out the ass for pointless stuff and make big bucks. Doctors who specialize in Medicaid patients are famous for being shady and recommending pointless unneeded procedures just to make money.
I had a friend in college who had Medicaid, she had some pretty common female problem that could be solved with minor surgery. The doctor pushed her to have a total hysterectomy because he made $10,000 on those procedures but only $1,800 on what she needed. Luckily she knew that was bonkers and wrong, but I bet
lots of women would just do whatever the doctor suggested.
All hospitals accept Medicaid, so that’s why munchies can abuse the ER so much. Private insurance ppl have to pay $100 to $500 co-pay per ER visit plus a % of the hospital bill. Private insurance put in those copay fees to discourage abusing the ERs, Medicaid has no such thing and hospitals make a ton of money billing on pointless ER visits by Medicaid munchies.
I have private insurance and one of my first questions to a provider is if they take Medicaid patients, if they do I stay away. In most fields the good doctors in the USA only take private insurance patients. (Keep in mind Medicaid is for the poor, Medicare is for older people and a different ballgame entirely.)
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Once the out of pocket maximum is met, services are covered 100% [pic related]. Munchies would reach the out of pocket maximum very quickly.
Medicaid is not available based solely on income in all states. Some states require that enrollees be on SSI (or have an application pending), be pregnant, or have dependent children. The ACA gives states the option to expand Medicaid to cover adults under 65 based solely on income, but not all states opted to expand their programs.https://www.medicaid.gov/medicaid/eligibility/index.html
in the UK wheelchair services now only fund part of the cost of a wheelchair, or will provide a standard NHS manual wheelchair, measured to your body by an occupational therapist.
Electric/custom wheelchairs are covered through social services, but it is a very strict criteria, as in if you're mobile and not bedbound, you're not getting your own electric wheelchair off them, and even if you do meet the criteria, it is a 3 year waiting list.
the motability component of personal independence payment (the new DLA) - is specifically for people who score more than X amount on the "moving around and mobility" aspect, that specific chunk of money that you get paid monthly, goes towards hiring an adapted car, a wheelchair, or a mobility scooter.
There is no need for anyone to be fundraising for a powered wheelchair if they live in the UK since the government gives you money to hire them if you genuinely need them.
Sage for NHS wheelchair fagging.
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Carrying Liam on her shoulders with her syncope and neck, back, and joint problems.
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After literally shoving the camera in his face, she falls onto Chase after which she says that it hurts and asks him to help get Liam off of her.
Dom: "He's got my neck, my spine…"
Chase: "Break it! Break her, Liam!"
This is not the first interaction between them that has caused me to raise my eyebrow.
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she so desperately wants to be ill . Anyone else know of their grandma getting a diagnosis of EDS back in her day? 😂 because this girl is the first to mention it. Pretty amazing don’t you say?!?
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After scooting several yards forwards and backwards across the floor on her butt using just her hands, she gives Liam a piggyback ride on all fours and then squats and frog hops several times. She stops suddenly and exclaims that she hurt her hip.
Lol wut? I was accused by >>466890 of white knighting in my post >>466860
How is anything I posted based "off her words that no one knows as true"?
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Amanda isn't too please at you all calling her a munchie.
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She's talking about deleting her account now.
I found a few munchie/OTT I’ve been following and am curious on all of your input. Can I just list?
First is on Facebook and not Instagram: Ella Arden Grace. Claims to have type 1 diabetes for 20 years, along with severe gastroparesis, autism, PTSD and a bunch of other shit I’m sure she’s convinced she has but doesn’t. The T1 and GP are real, but she very clearly manipulated her blood sugar and goes into frequent DKA. She has used glucagon in an insulin pump and an insulin pump at the same time. Ella claims to have “type 1 diabetes, subset type a, subset type brittle” and it is the worst in the world. She is very OTT in videos she posts in hospital and even at home, very fixated on everything medical. She has a port and like everyone else walks with it hanging out of her shirt. She gets herself into DKA, goes to different hospitals because doctors catch on to her shit, demands TPN and then gets caught and discharged. She lived in NY but is now in TN staying with a friend and once again doctor shopping. Ella’s had a feeding tube placed but claimed it caused her “800/10” pain and had it removed within a month. She is extremely OTT…cringingly so. I’d love to hear your opinions.
Next is munchie “mightylittlefighter”. Is from Canada, claims to have neurofibromatosis and has tumors in her digestive tract that have caused her to go on TPN. Except that the girl has never come out and said her diagnosis. She hasn’t tried tubes. Doesn’t answer questions. And very clearly has an eating disorder she’s trying to cover with TPN. There have been bits of information circulating from people who have proof that this Allie girl has manipulated her way into getting a line and TPN and that she has no underlying reason for TPN (no motility disorders or physical reason) other than her complaints of pain when she eats…again for no reason at all. It’s evident by taking one look at her that she’s skipping TPN infusions or clearly purging because she hasn’t gained any weight, and if you’ve been on TPN when you were “malnourished” you know that you pack on the pounds. Her pictures are all of her IV medications and talking about her sooper severe symptoms but again…no diagnosis when asked. Will avoid it.
This I need a line and TPN fad is getting old with the munchies. Not to mention that Allie has extensions on her line that are down to the floor. They are all a case of sepsis waiting to happen.
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Here are some of Ella. She is an avid fan of Facebook video, and her crying in pain picture is a whole video of her trying to make herself cry and screaming.
She also is very fixated on her nurses and seems to cling to them as maternal figures. Definitely juvenile and does not act her age..but speaks medical jargon like it’s no ones business. “At this point in time we’ll be starting an RER which is rapid electrolyte reusucitation and dispatching EMS with D10 on board wide open”. I totally just used a bunch of her bullshit words and that’s how she sounds constantly.
Awaiting screenshots on TPN puringing girl
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More on Ella latching onto her nurses. She has a home care nurse that she calls “mama”
There are many people who chose insurance plans that only cover basic care - but those aren't the people who know they have chronic illness(es).
I find the whole no insurance thing with her kind of fishy. If she is legally married to her husband she should be able to get health insurance through his employer (granted it may be super expensive and not a great plan). She said she got that health insurance plan on December 19th - most (if not all) health insurance plans typically start the first day of the month after you pay the first premium. Which means she cancelled the plan before she even tried to use it. It is difficult to figure out what health insurance plans cover (I have a higher level education and work in healthcare/am familiar with billing and I find it confusing) but most people discover their insurance plan is crap after they go to use it. If she researched it she should have known if it was good/bad and if she didn't she probably wouldn't figure it out until it was too late. Also if she is trying to get insurance through the marketplace she is running out of time because if she doesn't pick a plan by the end of the month she won't be eligible until next November and who knows what will have happened to the ACA by then).
Also how have multiple doctors told her she has GP if she doesn't have insurance. My guess is that she is using the no insurance thing as an excuse to not have tests done. >>466577
Agreed - if someone truly has a medical issue that is negatively impacting their life they would try a little harder to obtain the funds to get the necessary tests/treatment - this does not include buying and stocking a large fishtank, buying giant cat trees, and getting your toddler over 30 presents for Christmas (a few weeks before Christmas she counted 27 presents plus 15-20 cars for his stocking and thought she would get more) - you shouldn't have to cancel a kid's Christmas for medical bills but no kid needs 30 presents - much less a toddler who doesn't even really understand whats going on >>466611
I haven't heard of hospitals waiving ER fees recently (but I could be wrong). People without insurance used to use and abuse the ER because the ER can't turn you away but I think that hospitals figured out the loophole and worked to close it. Now I think they tend to bill you but they aren't necessarily allowed to aggressively pursue you to pay that bill and it doesn't have the same impact on your credit. Maybe she doesn't have a problem incurring a lot of debt? And I think they would wise up with a frequent flyer to discourage it as going to the ER for minor problems is a huge problem for ERs - it takes up time and resources that are needed for real emergencies. Generally people without insurance try to avoid doctors and ERs but she runs there for every little thing including her "broken EDS finger" - an ER visit with x-rays has got to add up.
Umm I don't know where you get your information about Medicaid but it sounds like you have been drinking some of the kool-aid.
Yes there are some people who abuse the system - both patients and doctors but ultimately those people are in the minority.
Many of my clients (they are all children) have Medicaid - almost all of them have at least 1 working parent. We don't get reimbursed as much for Medicaid patients as private insurance or private pay. What I like about treating clients with Medicaid is that I have never had Medicaid decline treatment for a child as long as I show their is a need (and this often involves more paperwork for me compared to other kids). I have had plenty of families with private insurance have to cut back on services that their child really needs due to insurance not covering it. Of the hundreds of families I have worked with I think I have only encountered 1 that I felt was trying to work the system.
Lots of doctors these days take Medicaid - almost every major hospital network takes it. If you are going to cut out all the doctors that don't take it then you are going to seriously limit yourself and eliminate some good doctors (I wouldn't want to see a doctor who considers themselves above treating low-income individuals)>>466860
Yes - private insurances usually have an out of pocket maximum that a munchie would reach quickly. Actually if you have Medicaid then being a munchie probably doesn't work out as great because you are much more limited in your ability to doctor shop and its harder to get non-standard treatments approved. Part of the reason why Dani hasn't gotten her precious feeding tube yet is that she doesn't have the resources to find a doctor who will do it.
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One of first photos.
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Very ana body type
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Rolling my eyes at this.
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Photo from the 2nd. Not much body change, but she’s wearing more clothes.
According to “IRL” sources she has had an eating disorder in the past. Looks like this is just a cover up of a relapse.
She basically admits that there is no reason for her to be on TPN???? Wtf???? What kind of doctors do they have in Canada???
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>she should be able to get health insurance through her husband's employer
What is his employment history? [pic related]
When she started documenting her health journey, she talked about not being able to afford health care and had to scrimp and save to afford to visit an EDS clinic in Texas (iirc) to get diagnosed. If their income was so low, why was she not receiving Medicaid, especially with an infant?https://www.benefits.gov/benefits/benefit-details/1618
Does Youtube issue 1099s, or are Youtubers responsible for self-reporting their income?
He should delete his old Twitter account out of embarrassment. So many "who's down to fuck?" posts.https://mobile.twitter.com/chasegraffeo
His full name is Kenneth Chase Graffeo and her maiden name is Strickland, in case anyone wants to go digging.
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Gotta keep up with the big league cows…
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But also this. Anyone know what healthcare is like in Aus? Why would her docs not be prescribing this to her?
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15 minutes of blabbering and giggling from Ella who is in the ER with sepsis.
Man she definitely looks septic to me
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Dani posted about her upcoming surgery and the fact that her surgeon has only performed the procedure twice and one of those times it went wrong. There are plenty of comments telling her she's an idiot to go through with it but this comment in particular made me laugh.
I don't follow her because I can't stand her, but one of her recent posts came up on my feed with that new feature that shows you stuff you might be interested in (kek no), and all I can say is… uk people, get your vom bowls ready. She's full narc.
Sorry I can't screenshot but my phone is shit.
From her About page:
Hi, I'm Moli
I'm 22 years old and have multiple chronic illnesses! I started vlogging to bring awareness to Ehlers Danlos Syndrome, POTS and Chronic Lyme Disease. On my channel you will find videos uploaded daily, that feature my day to day life with my husband Kyle and our dog Ripley! I hope to connect with you through my channel, Facebook and instagram!
Follow me on social media
Instagram : @chronically_sick.n.smiling
Facebook : https://www.facebook.com/chronicallysickandsmiling/
Joined Nov 9, 2017
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I have never heard of any of these treatments. Am I correct in assuming that they are all pseudo-medical woo bullshit?
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She and her doctor's office are ignorant of the law. Under the ACA, insurance companies are no longer allowed to deny coverage for pre-existing conditions.
We have removed the posts regarding the underage person posted.
Please remember to not post anyone under the age of 16 on this site. https://lolcow.farm/rules
(See Global Rule 2)
Thats crazy - also I doubt that a doctor would admit that they have only performed the surgery twice and certainly not that one time it wasn't fine. Doctors learn ways to skirt around those kind of questions - they are never supposed to admit fault. Plus it puts the doctor at high risk of being sued if something does go wrong.
The doctor didn't say there is a chance he could cut too deep or too long because he has only performed the procedure twice - he has to explain the possible risks and thats probably why he mentioned the possible complications.
It is sad that she probably wants there to be complications - nothing would make her happier than a medical emergency and a longer hospital stay. If what she is saying is true then it is sad that she would just go along with it without question. Her desire to be seen as super sick is so high she will let any doctor cut into her without question.
>>467401>>The doctor didn't say there is a chance he could cut too deep or too long because he has only performed the procedure twice - he has to explain the possible risks and thats probably why he mentioned the possible complications.
As to the "he's only done it twice and one didn't go well" - I imagine the doctor could've said something like "out of every two of these procedures, one does well and for the other it doesn't work" - something like that. Maybe
he has said that he doesn't do much of these procedures or that it's relatively new to their hospital. That's not completely outside the realm of possibilities. But he definitely has NOT said to her "I've only done two of them and you have to know I am kind of a hack". Even if a patient would ask a doctor flat-out how many times they did X procedure, most (like 95%) doctors wouldn't tell them if it was only two times. They would say something like "not very many, but I've assisted on them/it's not very complicated/I've done many other procedures that utilize the same technique/other blablah".
And we all know that Dani isn't the person to ask a doctor that question anyway, so we can be 99% certain that didn't happen.
Read the OP. Anon was asking if we have a 111 phone number to call to talk to a nurse and get triaged. Not asking if we have something similar to the NHS.
With that being said, just because you want a doctor who doesn't treat Medicaid patients doesn't mean everyone thinks that way. I'd rather have a competent doctor whose primary reason for treating people is due to the Hippocratic oath, not money.
Funny, but not everyone who has neurofibromatosis is "lumpy." There are other symptoms that are visible, however, including freckled armpits, spots in the eye, short stature, and cafe au lait spots. She could easily confirm by showing her armpits or a close up of her eyes.
I don't doubt her having this illness because it would be kind of ballsy to say that someone does without much proof, but she definitely is OTT. I know someone who has the exact same illness (type 1) and she never talks about it, but it affects her life a lot. She has lots of joint pain, is very short, is knock-kneed, and has brown spots on her irises. So this girl should have something to show for her illness, besides being skinny (which is not really a symptom of type 1).
Precisely - she so desperately wants to be ill that she is willing to undergo surgery even if the doctor and success rate of that surgery are in question. I almost expect that she wants there to be complications so she can have a longer hospital stay. Most people would say they were told they could be in the hospital for a day or two to a week but they are hoping they will only have to stay a day or two. She is like the doctor hasn't done this a lot so I could be in the hospital longer depending on if he screws up. While a normal individual would say I hope there arent any complications that would prolong my stay.
Is her 14 year boyfriend going with her for the surgery? Surely if you were in a relationship with someone for 14 years and were planning to move in together (any more news on that?) you would make an effort to be present if one of them was undergoing surgery.
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Neither Dom nor Chase was wearing their seatbelt.
Will she answer or delete?
I was going to say something like "well, regardless I hope it actually helps her and it also satisfies whatever need she is feeling inside so she won't push for a tube anymore".
Then I googled pyloroplasy. Looking at the risks and side effects, that doesn't look too good for her. One if the risks is increased reflux, including bile reflux. We established a while ago that she probably has quite bad reflux already, so unless they start treating the reflux quite agressively, it doesn't look too good.
Will they do anything else besides those two procedures? Dr. Google just told me that pyloroplasy is rarely done alone, it's usually combined with a vagotomy (which would
help reflux) or something else. I'm no doctor, but it sounds like she would benefit more from a vagotomy or a Nissen then pyloroplasy or implanting a Stim.
Weren't her specialists supposed to be actual motility experts?
Yes, she's been going to the motility clinic at Temple which makes this even more baffling. I expected them to see straight through her BS and she should've been turned away from the research study due to her history of ED.
I assumed the big motility clinics had similar standards but I guess not.
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Latest post. She didn't get the procedure, just the stimulator. She must be devastated.
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New cow? Already munchies her way onto TPN. Multiple hospital admissions/ER visits. Pots/EDS/bs bs. Instagram is full of milk.
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Her dad posted photos on Facebook. No sign of the boyfriend as usual.
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Although her Facebook post implies she's staying at least overnight.
Because TPN is a totally normal treatment for EDS. eyeroll
You're either her or an incredibly dumb white knight.
Practically no one with GP needs to be on TPN.
Allie (mightylittlefighter) is the one that has neurofibromatosis and no other conditions (POTS, GP, MALS, SMA). There really is no logical reason for her to be on TPN other than the fact that she refuses to eat. How is she doing regular TPN but not gaining a pound? She fished from day 1 of a hospital asking for a PICC and TPN. She is classic munchie material that is itching for diagnosis. God I wish I could tell y’all everything I know 🤦🏻♀️ I am friends with someone knows her IRL and she is no doubt a munchie. No doubt.
Ella is the girl with T1 and she has severe gastroparesis. She is incredibly OTT, incredibly. When she goes to “awareness events” to speak or just show up she comes dressed in scrubs with a stethoscope around her neck.
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More Dani. Can't believe she's reading lolcow while in hospital kek
She usually gets mad whenever someone mentions that the boyfriend isn't really a boyfriend. But if you claim to have been together for 14 years, live close to each other and don't see each other frequently much less on major holidays, and he doesn't support you during an operation then maybe you need to reconsider the boyfriend title. Now if there is a sort of guy friend you like to sleep with every once in a while - thats totally fine but don't pretend its something it isn't.
Leave her friends out of it - what friends? as far as I know she doesn't spend time with anyone except her parents, aunt, doctors/therapist, and the "boyfriend". Oh wait - there are always the neighbors. She is probably just mad because its the first time her dad's name has appeared on here.
Anyone notice how this hospital trip is the best she has looked in months. She looks clean and even pretty and she genuinely looks happy.
Because she's actually having something medical done that people can't say much about..like she wouldn't have this big surgery if she didn't need it..they don't do surgery for no reason type situation.
Jokes on her though..its not a big surgery, a pacer has the most benifiet on nausea which is why it was done on her. She jumped on the chance which is why she didn't get a second opinion and spun lies about needing more surgeries like a jtube and the sphincter cut. She would have blindly followed a dr into amputation just to get this done. She also likely pushed for the pacer. As soon as she realized what they may be willing to do to her she took it and ran. She had many options between her appt And the surgery step that she skipped and just like with feeding tubes, if she pushed enough for trying the pacer they are going to do it. Specially since it is a high research object. It doesn't take much for someone to get one. They itch to put them in for experience and research. I think she will discover that the attitude will change from her temple team once she has healed. Less nausea medication will be a blow to her.